medical records

 

e-patient stories, e-pts resources, key people, medical records, net-friendly docs, positive patterns, precision medicine, pt/doc co-care

Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care

This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on realizing improved health status for populations through unique, individualized approaches.   A funny thing happened on my recent annual […]

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medical records, positive patterns, trends & principles

History lesson! “LINC with Tomorrow”: Warner Slack on “educational TV,” 1967

The much-quoted line “Patients are the most under-used resource in healthcare” was first uttered in the 1970s by Warner Slack, MD, when he was a young doctor in Madison, Wisconsin. It’s seen many versions and incarnations since then, but it all started with Dr. Slack’s feeling that patients could help a lot by directly entering the […]

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medical records, policy issues, positive patterns, pt/doc co-care, trends & principles

A first: Participatory Medicine thinking in the Harvard Business Review

As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we’ve been advocating since 2009: Participatory Medicine is a model of cooperative health care that seeks to achieve active involvement by patients, professionals, caregivers, and others across the continuum […]

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hc's problem list, medical records, PM Tech

Peter Elias: a physician experiences a portal from the family side, and… #fail

Peter Elias MD (in photo at left) is a member-at-large on the board of our Society for Participatory Medicine. See his earlier posts here. Particularly relevant is his Proposal for a TRULY patient-centered medical record, The experience he recounts here, as a caregiver of a family member trying to partner with her providers, fell far short […]

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general, medical records, policy issues, pt/doc co-care, reforming hc, shared decision making

Just Say “No” to Medicare’s MACRA Tokenism

On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an article entitled, “You Won’t Believe What Medicare Just Did on Patient Engagement!” In it, I showed how the long-awaited draft […]

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e-pts resources, medical records, policy issues, positive patterns, pt/doc co-care

OpenNotes study in BMJ Quality & Safety finds patient-doctor “relational benefits”

As regular readers know, we’ve written many times about OpenNotes, the project funded by Robert Wood Johnson that blew the doors off of beliefs that bad things happen when patients see their charts. (We blogged about the original results in 2012.) Now a new study in BMJ Quality & Safety adds the results of a […]

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medical records, policy issues

You Won’t Believe What Medicare Just Did on Patient Engagement!

Quick summary for the impatient: Michael’s post urges public comment in the upcoming comment period, and ends with this: “If we in the patient community do not raise questions and objections to this critically important MACRA rule, you will definitely not believe what happens next.” – e-Patient Dave Sure, I’ve always wanted to write a clickbait […]

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medical records, policy issues, positive patterns

SPM survey results at HIMSS: “Patients want to be involved with their health information”

It’s time again for the gigantic (50,000 people) HIMSS trade show – the Health Information Management Systems Society, in Las Vegas this year. These new SPM slides (on Slideshare) will be shown in the Consumer Engagement zone, summarizing our two surveys on what patients want: The following is an editorial – my opinion, not a resolution […]

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medical records, PM Tech, positive patterns, reforming hc

New England SPM members: free admission to 3/29 local HIMSS meeting

SPM members Janice McCallum and Pat Rioux are also members of the New England chapter of HIMSS, the gigantic Health Information Management Systems Society. They have arranged a special deal for SPM members: free admission to their March 29 meeting (if you register by 3/18). SPM co-founder e-Patient Dave will be the featured speaker. The topic is […]

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medical records, PM Tech, policy issues

Proposal for a TRULY patient-centered medical record

The other night I participated in a very useful Google+ hangout with SPM members Adrian Gropper and Michael Mascia, and Michael Chen [of NOSH, explained below]. The discussion focused on a subject I think is incredibly important: the patient-centered health record. Really: patient-centered. Like, built around the patient – not a provider system built with supposed “patient-centered” thinking. This topic […]

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