Society for Participatory Medicine
e-patients.net blog
medical records
general, key people, medical records, PM Tech, policy issues, pt/doc co-care, reforming hc
SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine’s Public Policy Committee completed a last-minute blitz and submitted comments in response to the Office of the National Coordinator for Health [...]
Read Morekey people, medical records, trends & principles
Anniversary of a health data earthquake
Four years ago this week, e-Patient Dave published, “Imagine someone had been managing your data, and then you looked,” and forever changed the national conversation about health data. I have described that post as an earthquake — a surprise to those who were not looking for signs and indicators of trouble, not a surprise to [...]
Read Moremedical records, net-friendly docs
“Show Me the Data!” – Eric Topol rocks the #HIMSS13 keynote
Not only did famed cardiologist Eric Topol wear his brand new Regina Holliday “Walking Gallery” jacket this morning, for his major keynote address at the HIMSS health IT conference; he cited several other members of our society, including Hugo Campos. Then he ended with a huge crowd-pleaser: this mash-up of the famous scene in the [...]
Read Moremedical records, news & gossip
Revised: *could have been* the biggest HIMSS news for e-patient families: CommonWell Health [data] Alliance
Update March 24: I’m retitling this post, and putting it on hold, pending resolution of important concerns raised by other members of our Society for Participatory Medicine. In particular, see Adrian Gropper’s posts on The Health Care Blog. This is almost a retraction, pending whether CommonWell changes its position and actually becomes patient-driven. If not, I [...]
Read Moremedical records, news & gossip, PM Tech, positive patterns
SPM and HIMSS announce collaboration and tweet-up (and book!)
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s leading health information technology groups. Upcoming webinar: Over the next few months, we will be [...]
Read Moremedical records, policy issues, reforming hc
Final HIPAA Privacy & Security Rule – What’s in it for Patients?
After years of delay, the federales finally finalized the HIPAA Privacy, Security, Breach Notification and Enforcement Rules. Introduction The Final Rule offers significant changes to patient rights and patient protections. (There is much more to the rule, but other aspects are not addressed in this post. Here you may find a link to the HIPAA Omnibus Rule, [...]
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Thoughts on requirements for Patient-Centric HIT Systems
The latest buzzword in the Healthcare IT (HIT) world is “patient-centric”. It seems that everyone’s device/software/solution is designed to be patient-centric. On the Society for Participatory Medicine’s internal listserv we discussed what does it take for an HIT system to be really patient-centric. We were wondering if a good definition of patient-centric even exists. Could [...]
Read Moregeneral, medical records, reforming hc
1 Million VA Patients Can Now Access Their Complete Health Record
This weekend is momentous not only for the 2nd inauguration of the President. History will say the Veterans Health Administration is innovative, truly patient centered and even a bit risky. Today, VA patients can view, print and download ALL their health record data in their My HealtheVet personal health record. It’s the time when veterans [...]
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Breaking news: HHS publishes long-awaited HIPAA rule changes
On Twitter @HCI_GPerna just posted that the Dept of Health & Human Services has announced the long-awaited rule changes to HIPAA, the Health Insurance Portability and Accountability Act of 1996. These are the changes to implement HITECH, the 2009 stimulus bill that brought us the EMR incentives and Meaningful Use. Next week the changes will [...]
Read Moregeneral, medical records, PM Tech, pt/doc co-care
ONC’s new visual companion to their great vids about EHRs
Most of our readers are familiar with the brief animated video introduced last summer by ONC, the health IT group in the US government. (If you haven’t seen it, you can watch it below, in long and short versions.) Now they’ve introduced a new poster (click the tiny version at right) that conveys the same [...]
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