medical records

 

e-pts resources, general, medical records, policy issues, pt/doc co-care, reforming hc, trends & principles

#NoMUwithoutME: Primary School Edition

-+*        Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your records. Ideally, electronic versions of your records that you can look […]

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medical records, policy issues

NY Times editorial on forces who “knowingly interfere” with health info exchange

-+*It’s often hard for our movement to get major media attention, but it looks like it’s happening: things are heating up on the “empire strikes back” front that we reported on twice this week. Friday’s New York Times, page A30, carried an editorial Roadblocks to Sharing Medical Records, about the report ONC sent to Congress last […]

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medical records, news & gossip, policy issues, reforming hc

“No MU without ME”: join the campaign to fight health data hiding

-+*Several edits made, 1-2pm There is a movement underway – a movement for patient liberation and autonomy – and the empire is striking back, interfering with our efforts. We – the whole movement, not just SPM – need your help. If you’re in a hurry, skip down to the Do this first section. But come back […]

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medical records, news & gossip

Proposed rule change will *reverse* data sharing requirements; Regina & Farzad call for “National Day of Action” to fight back

-+*Friday evening I got a tweet from SPM member Sherry Reynolds about something that had just happened in Washington. Today it unfolded. (Don’t miss her comment, too, about the history of this issue and her role in it.) Change can provoke upset. Technological change can be hard, especially in an industry that’s not known for its […]

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medical records, policy issues, positive patterns, pt/doc co-care, reforming hc

OpenNotes in the BMJ: the message goes global, adoption is international

-+*Our Society for Participatory Medicine is all about effective patient-clinician partnerships, and to us that simply requires patient access to all information about the case. As SPM co-founder Dr. Danny Sands often says in his speeches, “How can patients participate if they can’t see what I see??” So, naturally, this blog has been one of the biggest, […]

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medical records, PM Tech, policy issues, positive patterns

From OpenNotes to OurNotes: New project heads toward *real* participatory medicine

-+*I’m beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we’ve been striving toward, or what?? For years we’ve written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson Foundation, which established that when patients can read their doctors’ unedited visit notes – the hairy detailed medicalese […]

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general, medical records, positive patterns

Patient Generated Health Data webinar featuring SPM members

-+*The Health Data Consortium, the folks who bring Health Datapalooza to life in DC every year, have increased the input of the Consumer Circle ahead of this year’s event, which is on the calendar for May 29 thru June 3 at the Marriott Wardman Park in Washington DC. As part of that commitment to increasing the […]

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medical records, news & gossip, policy issues, positive patterns

Evidence: “Patients value direct, independent access to their medical exams.” Who knew??

-+*Edited an hour later – added Business Impact section at end Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we can view the data you collected about us. Even us over-50 ones, who are widely believed to be […]

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general, key people, medical records, positive patterns, reforming hc

(Video) Larry Weed, father of the Problem Oriented Medical Record – Grand Rounds, 1971

-+*Students of medicine (surely most MDs) will know the name Larry Weed, but I didn’t until a few years ago on this blog, when I learned that in 1999 our founder “Doc Tom” Ferguson gave Weed an Outstanding Achievement Award. In the late 1960s Dr. Weed created the concept of the POMR: the Problem Oriented Medical […]

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e-patient stories, medical records

Request: true stories of where patient engagement in the chart made a difference

-+*I’m giving a talk in Vermont next week, to health IT workers, and in talking with the organizers we realized it would be great to give them a vision of WHY we’re doing this – some true stories of where patients benefitted from seeing the data in their chart. (By the way, the event is […]

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