medical records

 

medical records, policy issues

“We demand a medical record SPIGOT!”

Please see my long-overdue post contributing to the @GetOurHealthData movement, on their blog. The more I’ve thought about all the different issues around data transfer, meaningful use, APIs and everything, the more I’ve approached the inescapable conclusion that there’s only one answer: most medical record vendors say they’re paralyzed about this and too backlogged with […]

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medical records, policy issues

“Taxpayers need better access”: Last day to comment to CMS on #NoMUwithoutMe

Today (11:59pm ET) is the deadline for public comments on the proposed rollback of “Meaningful Use 2″ regulations for patient access to their medical records. SPM feels that this is a major issue for enabling patient-provider partnerships; as SPM co-chair Dr. Danny Sands often says, “How can patients participate if they can’t see what I […]

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general, key people, medical records, news & gossip, PM Tech, policy issues, positive patterns

BREAKING: Susannah Fox is HHS’s new Chief Technology Officer

A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox​ is the new Chief Technology Officer at U.S. Department of Health and Human Services​. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as the biggest government-based Mazel Tov in the history of the e-patient movement!  Bringing heart […]

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general, medical records, policy issues, pt/doc co-care

Patient Advocates Fight for Access to Medical Data: ‘It’s a Matter of Life and Death’ (KQED)

The advo-cacy of individual SPM members is gaining increasing visibility in the mainstream media, driving home the human impact of policies that help – or don’t help – patients be active contributors to their families’ health and care. This is excruciatingly important as America debates the proposed rule changes for patient data access mentioned here last […]

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e-pts resources, general, medical records, policy issues, pt/doc co-care, reforming hc, trends & principles

#NoMUwithoutME: Primary School Edition

        Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your records. Ideally, electronic versions of your records that you can look […]

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medical records, policy issues

NY Times editorial on forces who “knowingly interfere” with health info exchange

It’s often hard for our movement to get major media attention, but it looks like it’s happening: things are heating up on the “empire strikes back” front that we reported on twice this week. Friday’s New York Times, page A30, carried an editorial Roadblocks to Sharing Medical Records, about the report ONC sent to Congress last […]

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medical records, news & gossip, policy issues, reforming hc

“No MU without ME”: join the campaign to fight health data hiding

Several edits made, 1-2pm There is a movement underway – a movement for patient liberation and autonomy – and the empire is striking back, interfering with our efforts. We – the whole movement, not just SPM – need your help. If you’re in a hurry, skip down to the Do this first section. But come back […]

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medical records, news & gossip

Proposed rule change will *reverse* data sharing requirements; Regina & Farzad call for “National Day of Action” to fight back

Friday evening I got a tweet from SPM member Sherry Reynolds about something that had just happened in Washington. Today it unfolded. (Don’t miss her comment, too, about the history of this issue and her role in it.) Change can provoke upset. Technological change can be hard, especially in an industry that’s not known for its […]

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medical records, policy issues, positive patterns, pt/doc co-care, reforming hc

OpenNotes in the BMJ: the message goes global, adoption is international

Our Society for Participatory Medicine is all about effective patient-clinician partnerships, and to us that simply requires patient access to all information about the case. As SPM co-founder Dr. Danny Sands often says in his speeches, “How can patients participate if they can’t see what I see??” So, naturally, this blog has been one of the biggest, […]

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medical records, PM Tech, policy issues, positive patterns

From OpenNotes to OurNotes: New project heads toward *real* participatory medicine

I’m beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we’ve been striving toward, or what?? For years we’ve written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson Foundation, which established that when patients can read their doctors’ unedited visit notes – the hairy detailed medicalese […]

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