medical records

 

general, hc's problem list, medical records, policy issues

Individuals’ Rights to Their Health Information: The Federales Awaken

A long time ago (in internet years), the original HIPAA regulations were promulgated. (The final Privacy Rule was published in 2000.) They’ve been tweaked and updated over the years, most notably in the “mega-reg” promulgated a few years  back in order to implement the updates included in the HITECH Act. For purposes of the present […]

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e-pts resources, medical records, policy issues, positive patterns, pt/doc co-care

50 million more patients to get OpenNotes! Huge win for empowered partnership!

Big news: a multi-foundation $10 million grant will spread OpenNotes access to fifty million more patients! Nearly 20% of America will have full access to their providers’ visit notes, so they can review them from anywhere! Regular readers know we’ve always been loud fans of the OpenNotes project. Initially funded by Robert Wood Johnson Foundation […]

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medical records, policy issues

NPR Shots: Small Violations Of Medical Privacy Can Hurt Patients And Corrode Trust

One pillar of participatory medicine, as SPM co-chair Dr. Danny Sands often says, is access to our medical records: “How can patients participate if they can’t see what I see??” But a major impediment to free-flowing information is incompetence or malfeasance in protecting our data, which makes some people want to clamp down. Patients and […]

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e-patient stories, end of life, found on the net, medical records, pt/doc co-care, pts as teachers

Forbes article featuring Carol Gunn: One Doctor’s Quest To End The Plague Of Screwed-Up Medical Diagnoses

Carol Gunn, an SPM physician member, was featured in a Forbes article about her sister’s misdiagnosis, and her mission after her sister’s death. Carol’s tips for patients to avoid being victims of diagnostic mistakes: Tip #1: Get a second opinion that’s completely independent. Although this may seem obvious, many patients make the mistake of seeking out second […]

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medical records, policy issues

EHR? What is it good for?

I live in a small country: Sweden has the population of Michigan on the land area of California, so you shouldn’t really have even heard of us. But I guess that ABBA, IKEA, H&M and the Nobel Prize sort of helps :). Living in a small country of course has both pros and cons, and […]

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e-pts resources, general, medical records, pt/doc co-care, pts as teachers, shared decision making, trends & principles

Guest Post by Mary Beth Schoening: a Definition of the Engaged Patient

This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy behaviors.  As a digital health strategist, she has developed strategies and tools to engage both […]

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medical records, policy issues

“We demand a medical record SPIGOT!”

Please see my long-overdue post contributing to the @GetOurHealthData movement, on their blog. The more I’ve thought about all the different issues around data transfer, meaningful use, APIs and everything, the more I’ve approached the inescapable conclusion that there’s only one answer: most medical record vendors say they’re paralyzed about this and too backlogged with […]

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medical records, policy issues

“Taxpayers need better access”: Last day to comment to CMS on #NoMUwithoutMe

Today (11:59pm ET) is the deadline for public comments on the proposed rollback of “Meaningful Use 2” regulations for patient access to their medical records. SPM feels that this is a major issue for enabling patient-provider partnerships; as SPM co-chair Dr. Danny Sands often says, “How can patients participate if they can’t see what I […]

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general, key people, medical records, news & gossip, PM Tech, policy issues, positive patterns

BREAKING: Susannah Fox is HHS’s new Chief Technology Officer

A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox​ is the new Chief Technology Officer at U.S. Department of Health and Human Services​. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as the biggest government-based Mazel Tov in the history of the e-patient movement!  Bringing heart […]

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general, medical records, policy issues, pt/doc co-care

Patient Advocates Fight for Access to Medical Data: ‘It’s a Matter of Life and Death’ (KQED)

The advo-cacy of individual SPM members is gaining increasing visibility in the mainstream media, driving home the human impact of policies that help – or don’t help – patients be active contributors to their families’ health and care. This is excruciatingly important as America debates the proposed rule changes for patient data access mentioned here last […]

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