Society for Participatory Medicine
e-patients.net blog
net-friendly docs
demographics, net-friendly docs
How do (older, lower-income) patients learn?
Rebecka Sexton of the Center For Innovation at the Carilion Clinic in Roanoke, VA, emailed a great question and I’d like to share it more widely: We are working on a project here at Carilion on chronic diseases related to Population Health Management related to COPD. I am specifically working on the education component from [...]
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Farewell (seven years ago today), Doc Tom
This morning on Facebook, an SPM member (who were you??) pointed out that it was seven years ago today that “Doc Tom” Ferguson, the visionary who foresaw the e-patient movement, passed away unexpectedly while being treated for multiple myeloma. Click the image (or this) to visit his site for more information, and just to say [...]
Read Moremedical records, net-friendly docs
“Show Me the Data!” – Eric Topol rocks the #HIMSS13 keynote
Not only did famed cardiologist Eric Topol wear his brand new Regina Holliday “Walking Gallery” jacket this morning, for his major keynote address at the HIMSS health IT conference; he cited several other members of our society, including Hugo Campos. Then he ended with a huge crowd-pleaser: this mash-up of the famous scene in the [...]
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Eric Topol at Rock Health
Thanks to Carla Berg for sharing this: Eric Topol was on Rock Center tonight. He talked about the patient empowerment and give us our data themes he brings up towards the end, he did everything but mention #gmdd and patients in the drivers seat explicitly. The key to better health care may already be in your [...]
Read Morenet-friendly docs, reforming hc, shared decision making, trends & principles, Why PM
Nancy Finn: Collaborative Teams that Include Patients Make Care Coordination Possible
Today’s guest blogger, author and SPM Secretary Nancy Finn, originally posted this essay on her personal blog. Care coordination requires that the right information reaches the right people within an optimal time frame, so that a patient’s full information is always at the point of care, and all of the follow-up clinical work, as well [...]
Read Morenet-friendly docs, positive patterns
What Bryant and Katie saw, while Doc Tom was seeing the future
We’ve often written here about what a visionary our movement’s founder “Doc Tom” Ferguson was. As the medical editor of The Whole Earth Catalog and publisher of the magazine and book Medical Self-Care , he saw the role of the patient and family in healthcare. And when the internet came along, he saw how profoundly it would [...]
Read Morenet-friendly docs, patient networks, pt/doc co-care
Bowling Alone, Healing Together
One year ago, I read a JAMA commentary that was so good I had to stand up while I was reading it: Are Patients Knights, Knaves, or Pawns? I blogged about it here (touching off a heated discussion) and started an email correspondence with one of the authors, Sachin Jain. The result of that correspondence, [...]
Read Moregeneral, net-friendly docs, news & gossip, positive patterns, reforming hc, Why PM
SPM Rolls Out Participatory Seal Program
At Health Datapalooza today in Washington, DC, the Society for Participatory Medicine announced the live beta launch of our Seal Program. The SPM Seal will be awarded to clinicians and to patients who make four simple, achievable, but powerful participatory commitments. Clinicians also agree to allow patients to verify that they are keeping those commitments. [...]
Read Morefound on the net, net-friendly docs, positive patterns, shared decision making, social media
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence that more physicians are recognizing the value of these patient-empowerment tools, contributing to a trend toward patient-centered, [...]
Read Moree-patient stories, medical records, net-friendly docs, social media
Regina Holliday / Ted Eytan interview: StoryCorps audio, now in the Library of Congress
One of the best-known sad stories in the e-patient movement is that of SPM member Regina Holliday, her husband Fred, and their two children. Fred died three years ago of kidney cancer in a series of failures of American healthcare, leaving a story that Regina now tells in public speaking, blogging, and – most especially [...]
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