Society for Participatory Medicine
e-patients.net blog
net-friendly docs
found on the net, net-friendly docs, positive patterns, shared decision making, social media
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence that more physicians are recognizing the value of these patient-empowerment tools, contributing to a trend toward patient-centered, [...]
Read Moree-patient stories, medical records, net-friendly docs, social media
Regina Holliday / Ted Eytan interview: StoryCorps audio, now in the Library of Congress
One of the best-known sad stories in the e-patient movement is that of SPM member Regina Holliday, her husband Fred, and their two children. Fred died three years ago of kidney cancer in a series of failures of American healthcare, leaving a story that Regina now tells in public speaking, blogging, and – most especially [...]
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Health 2.0 Tools: Recommendations from a Net-Friendly Doc
This week in ScienceRoll, Dr. Bertalan Meskó blogs about several links that the e-patient community will find interesting: IBM Clinical Genomics Helps with Clinical Decision Making Haifa, Israel has developed a new clinical decision support tool that correlates a patients’ unique disease profile against various clinical guidelines and a wide range of previously acquired clinical [...]
Read Moregeneral, net-friendly docs, trends & principles
Nancy Finn: E-Visits foster continuum of care and communication, but there is a price
Nancy Finn submitted this guest post about the challenges facing doctors and patients who want to have clinical conversations online. The quest for the right communication formula and balance that will satisfy doctors and e-patients who want to experience continuous care can be partially resolved with the spread of virtual clinical electronic messaging, or e-visits. [...]
Read Morefound on the net, net-friendly docs, positive patterns
JoPM recommendation: “Team Up for Health”
The Journal of Participatory Medicine has just published a Media Watch piece about a new initiative from the California HealthCare Foundation called Team Up for Health. This website is a good example of an online tool that helps primary care providers support patients in the self-management of their chronic conditions.
Read Moreethics, found on the net, general, JoPM, net-friendly docs, social media
Social media, patients, and physicians: a sticky wicket
Social media is well established in our society and it shows much promise as a tool of patient-physician communication. But despite some cases of good and enriching rapport between patients and physicians in social media, the medical world, on the whole, is still cautiously trying to make sense of social media and how to use [...]
Read Morenet-friendly docs, patient networks
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with [...]
Read Morenet-friendly docs, pt/doc co-care, Why PM
Pioneers of patient engagement
Credit where credit is due. The Danish Medical Association’s annual meeting is coming up in a few days. For the event’s blog, they requested a post about patient engagement! I wrote about the pioneers at my hospital who for many years have been saying that patients are the most underused resource in healthcare. The post [...]
Read Moree-patient stories, net-friendly docs, pt/doc co-care, Why PM
SPM on the Air: People’s Pharmacy (NPR)
Joe and Terry Graedon, long-time friends of “Doc Tom” Ferguson, produce The People’s Pharmacy, a website and radio program on NPR. Last Saturday’s program was about the Society for Participatory Medicine, which they helped to found in 2009. (They were also among Doc Tom’s advisors on the e-patient white paper.) The full program (one hour) is [...]
Read Morekey people, net-friendly docs, positive patterns, pt/doc co-care, Why PM
“How to become a more effective e-patient” (and clinician): lecture at Duke by Dr. Charles Smith
Well, here’s a treat: Dr. Charles Smith, a founder of the Society for Participatory Medicine, recently gave a lecture at Duke titled “How to Become a More Effective e-Patient.” Here it is, in four YouTube segments. “Charlie,” as we all call him, is a wonderful guy. He’s co-editor-in-chief of the Journal of Participatory Medicine and [...]
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