Society for Participatory Medicine
e-patients.net blog
news & gossip
news & gossip
Storify feed from Health FOO this weekend
Here’s a quick starter note – I hope to say more later. Health FOO is a by-invitation “unconference” from O’Reilly Media and Robert Wood Johnson Foundation this weekend at Microsoft’s development center in Cambridge, MA. SPM members I’ve seen so far include past president and founder Alan Greene MD, founder and ACOR founder Gilles Frydman, [...]
Read Moremedical records, news & gossip, policy issues, positive patterns
Globe article on EMRs: status and the safety issue
In today’s Boston Globe, the cover story for the daily ”G” magazine is “Record-Keeping 2.0,” by Chelsea Conaboy (@cconaboy). Subtitled “Medical care is shifting to electronic data files – but how safe is it?”, it’s a good mass-market introduction to the subject and where we sit today. If your grandmother or neighbor wonders what all the [...]
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Regina Holliday in Newsweek (Shannon Brownlee on hurried docs and lack of care)
What news to wake up to – SPM’s “resident artist” Regina Holliday is in Newsweek. It’s not a happy story – nothing about her story is – but it’s good to see such things getting the visibility they deserve. The article, by Overtreated author Shannon Brownlee, is The Doctor Will See You – If You’re Quick. [...]
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Former NEJM editors on the corruption of American medicine (NY Times)
This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading “Today’s update.” As we said in December, an e-patient essential is sorting out what writings to trust, whether we find them online or in print. There’s an important update on this in [...]
Read Moregeneral, news & gossip, policy issues, reforming hc, trends & principles
The Government’s Assault on Women’s Health
I’m a little confused… I’m not sure where the U.S. Constitution guaranteed the government’s right to interfere with the doctor/patient relationship. Nowhere in this historic document could I find anything about the government’s right to dictate how women’s health and reproductive health (but not men’s) are areas appropriate to government interference. (You won’t find it [...]
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“Physicians, Patients and the Internet”: good article in Physicians Practice magazine
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s Advocate is prominently featured, along with data from the Pew Internet and American Life project and [...]
Read Moremedical records, news & gossip, positive patterns
“I have a right to my damn data”: Hugo Campos in the Mercury News
Well, SPM’s resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR’s On The Media on 1/20, and now he’s on the front page of Silicon Valley’s newspaper – a 900 [...]
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e-Patient hits the mass media: WBZ Radio and Angie’s List magazine
It’s one thing when we “talk amongst ourselves” in our own circles; it’s a whole different thing when the message starts popping up in *mass media*, where it reaches people who had no idea. So it’s big news that we’ve had TWO mass-media developments this week with almost identical titles: Fabulous article in the January [...]
Read Moree-patient stories, e-pts resources, medical records, news & gossip
Gimme My Damn Data: cancer patient Xeni finds a “ghost penis” in her bone scan
This post contains street language about body parts, harvested from Twitter last night with Xeni’s permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist is discovering healthcare the hard way. At a time when she says [...]
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Daniel Carpenter in NY Times: Move the FDA out from under politicians
I’m no expert on the FDA but my science antennas are twitching nervously about this, so I’ll post and invite discussion. In a surprising move last week, President Obama and HHS Secretary Sebelius overrules (basically, vetoed) the FDA’s recommendation to make “Plan B” morning-after contraceptives more easily available. This was widely agreed to be purely [...]
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