news & gossip

 

key people, news & gossip

A Farewell to Richard Rockefeller, e-Health Visionary

The founders of SPM were saddened this weekend to learn of the death, in a private plane crash, of Richard Rockefeller, longtime friend of “Doc Tom” Ferguson. Rockefeller was credited in Ferguson’s white paper as “a White Paper Advisor.” – e-Patient Dave ________ When the single-engine plane Richard Rockefeller was piloting crashed in rain and fog just […]

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medical records, news & gossip, policy issues, positive patterns, trends & principles

Wall Street Journal on patient access: “Health-Care Providers Want Patients to Read Medical Records, Spot Errors”

Regular readers know that this blog has long advocated for patient access to, and engagement with, the medical record. In the past 2-3 years we’ve especially advocated for OpenNotes, in which patients can see their primary’s actual visit notes.  At my hospital, Beth Israel Deaconess, not only can patients see their primary’s notes, in 2014 it’s […]

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news & gossip

SF Bay Area chapter of SPM starting. Join!

SPM member Richard Anderson @RiAnder has a lot of experience helping to found and develop another organization’s local chapters around the world. Because of a nightmare experience with the U.S. healthcare system, he has decided to work to change that system, and as part of that work, to start a local chapter of SPM in the San Francisco […]

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e-patient stories, e-pts resources, general, news & gossip, others' e-patient stories, Patient Conference Participation, patient networks, positive patterns, practice variation, pt/doc co-care, pts as teachers, reforming hc, research issues, shared decision making

Patients Invited! Health Informatics Conference seeks Patient Participation

An international conference addressing information technology and communication in health (ITCH) will be held February 26 – March 1, 2015 in Victoria, British Columbia, Canada. Professor Stephen Hawking’s statement, “we learned to talk, we learned to listen, we unleashed imagination” provides the motivation for this year’s conference. The main conference themes are: Patients Talking The […]

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hc's problem list, medical records, news & gossip, policy issues

An angry veterinarian says “I don’t understand…” (Reprise five years later)

It’s five years since the ARRA/HITECH legislation was passed that pretty much mandates that American medicine has to computerize. Policies created since then have been enormously effective at moving adoption forward. We still need vast improvements of the user interface, but things are moving in the right direction. Five years ago I myself was trying […]

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news & gossip, positive patterns, pt/doc co-care, trends & principles

“How collaborating with patients improves hospital care”: Guardian

Care designers and fans of patient-centered care, listen up: a hat tip to Danish friend Malene Louise Djurhuus Laubinger for this, from The Guardian: How collaborating with patients improves hospital care. We’ve often said on this blog that participatory medicine can extend well beyond the care encounter, to the design of care itself. Ultimately, it leads to […]

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news & gossip, policy issues

“Health cometh not from healthcare”

We often say here that clinicians should welcome activated patients. Hand in glove with that, we must also say: Yo, patients: get activated! Know what works, and act on it! Huzzah to Swedish SPM member and Parkinson’s patient Sara Riggare for this, on Facebook, which she got from SPM member Mighty Casey. (Notice a pattern?) It’s […]

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news & gossip, social media, trends & principles

Response to “We need to talk about TED” from an evangelist’s perspective

The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog.  In our Society for Participatory Medicine, part of our work is to change how people think about relationships in medicine. That involves […]

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general, news & gossip, trends & principles

How WebMD May Unfairly Influence Your Health Choices — Through Search

Go ahead and type in virtually any health or mental health condition into Google. Heck, even try a popular medication or two. Time and time again, you’ll notice a reliable trend — 2 or 3 of the top 10 search results are nearly always going to be WebMD. But not necessarily search results that link […]

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medical records, news & gossip, policy issues, positive patterns, reforming hc

Breaking news: New Orleans health chief Dr. Karen DeSalvo Named to Head ONC

As we’ve said endlessly here (and in Washington), one of the key enablers of better healthcare is access to information. For that subject there’s no more important job in the world than America’s National Coordinator for Health IT, who runs ONC (Office of the National Coordinator) with our Health & Human Services department. New Orleans […]

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