news & gossip

 

e-pts resources, news & gossip, trends & principles

“Google to offer better symptom search”: Relief at last, or “Here we go again”?

Google announces its next revision of having medical authorities curate its search results. Should we be thrilled or careful?

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key people, news & gossip, policy issues, positive patterns, reforming hc

Eric Dishman’s transformational speech on his last day at Intel: “Knowledge is survival”

I’ve known Eric Dishman for about five years, because we’re both kidney cancer patients. I’ve known that he’s a really sharp thinker, and a high-ranking executive at Intel, deeply interested in and involved in their work in healthcare. May 3 was his last day at Intel, and he gave what may be the most mind-expanding […]

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news & gossip, patient networks, pt/doc co-care

National Doctors’ Day, clinicians, hacking open access, and remembering an e-patient

Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in! And I want to shine a broader spotlight on the wider class called clinicians (Wikipedia): all sorts of medical professionals […]

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e-pts resources, news & gossip, positive patterns, pt/doc co-care, shared decision making, trends & principles

A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article

A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are better than nothing, none is near perfect, and some are junk. Learn, but as with all […]

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net-friendly docs, news & gossip, pt/doc co-care, Why PM

New Participatory Medicine Resources for Providers

Ever since the formation of the Society for Participatory Medicine we have discussed curating and sharing resources about participatory medicine. The resources might be videos, websites, blog posts, tutorials, and other online resources that could benefit patients, caregivers, and clinicians. For obvious reasons we thought to focus first on patient/caregiver resources. But because of the many […]

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general, key people, medical records, news & gossip, PM Tech, policy issues, positive patterns

BREAKING: Susannah Fox is HHS’s new Chief Technology Officer

A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox​ is the new Chief Technology Officer at U.S. Department of Health and Human Services​. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as the biggest government-based Mazel Tov in the history of the e-patient movement!  Bringing heart […]

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news & gossip, positive patterns, trends & principles

Announcement: SPM to advise ACP’s new Center for Patient Partnership in Healthcare

SPM co-founder and co-chair Dr. Danny Sands is appointed our first representative On Friday the following notice was distributed to members of our Society for Participatory Medicine. What a wonderful sign of medicine’s growing acceptance of the importance of patient-clinician partnership – and what a significant recognition of SPM as emblematic of this crucial collaboration we call participatory […]

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medical records, news & gossip, policy issues, reforming hc

“No MU without ME”: join the campaign to fight health data hiding

Several edits made, 1-2pm There is a movement underway – a movement for patient liberation and autonomy – and the empire is striking back, interfering with our efforts. We – the whole movement, not just SPM – need your help. If you’re in a hurry, skip down to the Do this first section. But come back […]

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medical records, news & gossip

Proposed rule change will *reverse* data sharing requirements; Regina & Farzad call for “National Day of Action” to fight back

Friday evening I got a tweet from SPM member Sherry Reynolds about something that had just happened in Washington. Today it unfolded. (Don’t miss her comment, too, about the history of this issue and her role in it.) Change can provoke upset. Technological change can be hard, especially in an industry that’s not known for its […]

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general, JoPM, news & gossip, reforming hc

“Lighting Goes to Ground”: Peter Elias responds to Paul Levy in JoPM

Perhaps it’s time for an argument about how we’re doing this. Many of us in the Society for Participatory Medicine have long noted that what we’re up to here is nothing less than full-bore culture change. In my own speeches I often note that culture is the set of shared beliefs about what’s possible and expectations […]

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