Society for Participatory Medicine
e-patients.net blog
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medical records, news & gossip
Revised: *could have been* the biggest HIMSS news for e-patient families: CommonWell Health [data] Alliance
Update March 24: I’m retitling this post, and putting it on hold, pending resolution of important concerns raised by other members of our Society for Participatory Medicine. In particular, see Adrian Gropper’s posts on The Health Care Blog. This is almost a retraction, pending whether CommonWell changes its position and actually becomes patient-driven. If not, I [...]
Read Moree-patient stories, found on the net, news & gossip, positive patterns, reforming hc, research issues, trends & principles
Health Affairs Patient Engagement Edition – with videos and commentary
The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog post. It’s worth reading, it has other interesting tidbits. The briefing was [...]
Read Moremedical records, news & gossip, PM Tech, positive patterns
SPM and HIMSS announce collaboration and tweet-up (and book!)
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s leading health information technology groups. Upcoming webinar: Over the next few months, we will be [...]
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Minnesota Supreme Court sides with patient on social media defamation suit
Guest post by SPM member @NickDawson, a former health system executive now focused on patient experience, staff happiness and healthcare innovation. He works for Frontier Health in Richmond, Virginia. There’s a moment where something changes direction, irreversibly, because of irresistible forces – like when you toss your keys in the air. There is a split second [...]
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Meet SPM’s new Executive Director, Barbara Kornblau
Below is the press release, but first a personal note: I, and all the founders and officers of our Society, are thrilled to announce that Barbara Kornblau has become SPM’s first Executive Director – a person with a real job here, passion, experience, and a charter to grow the organization and its reach. Say hello and give [...]
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Heads up: New Pew Internet report coming out tomorrow
The report was issued overnight – see Susannah’s post here about it, media coverage (via Google), and blogs. I’m stealing some Susannah Fox thunder here because I can’t wait, and you should carve out a spot in your calendar tomorrow. Here’s her tweet just now: New @pewinternet health data tomorrow! 7am ET = full report on pewinternet.org and my blog [...]
Read Moregeneral, key people, news & gossip, positive patterns, pt/doc co-care, research issues, shared decision making
“The Patient as Partner” in Medical Research at Radboud University
This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the heavily patient-centric Future of Health conferences, which started with TEDx Maastricht 2011. Editorial note: I heavily edited [...]
Read Moree-patient stories, key people, medical records, news & gossip, others' e-patient stories, PM Tech, policy issues
When is patient data not patient data? When a patient wants his or her ICD data
The latest news story to examine the issue of patient access to implantable cardiac defibrillator data (a variation on the theme of “gimme my damn data”) is an in-depth, Page One Wall Street Journal story featuring Society for Participatory Medicine members Amanda Hubbard and Hugo Campos. They have garnered attention in the past – one [...]
Read Moree-pts resources, news & gossip, trends & principles, Why PM
“Mind the Gap” on patient engagement: uck, “What???” and the scapegoat disconnect
Over on Mind The Gap, Steve Wilkins (Twitter) has a poster about patient engagement that annoyed me:-) right out of the box – because although I pretty much like everything he does, the poster starts with what I find to be the ouchiest mental disconnect in all of medicine today. But it quickly follows with [...]
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Hey lurkers – hi! Step right up, speak up here!
For a couple of years I’ve been wondering when controversy and snark would hit this movement. Looks like it showed up this morning. Today one of our members posted on our members-only email group: I was on a phone call recently with some colleagues in health IT and I was intrigued to learn that some [...]
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