Society for Participatory Medicine
e-patients.net blog
news & gossip
end of life, general, key people, news & gossip, others' e-patient stories
Steve Jobs’ Cancer Denial
The 60 minutes interview with Steve Jobs’ biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the interview for me was watching Walter Isaacson, a former editor of TIME Magazine, talk about how Jobs was in complete denial [...]
Read Moregeneral, news & gossip
Invitation to Connected Health Attendees, 2011
Please join us for the 2nd Annual Society for Participatory Medicine Cocktail Reception, taking place on Thursday, October 20, 2011 at the Liberty Hotel in Boston (http://www.libertyhotel.com/) from 6:00 – 8:00 pm. If you’re attending the Connected Health Symposium in Boston this week, we invite you to share your ideas and enjoy a wine bottle service, [...]
Read Moremedical records, news & gossip, policy issues, Why PM
Australian Consumer Health Forum flips from opt-in to opt-out for EHR enrollment
Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position. The issue is whether by default all patients have an EHR. “Opt-out” means you’re in by default – your records will be [...]
Read Moregeneral, news & gossip, research issues, trends & principles, understanding statistics
Why Sometimes Health Reporting Should be Done By Journalists
I’m all for citizen journalism, and can even stand the content mills like LiveStrong, who have pimped out their name and brand in order to make a quick buck. But I draw the line with bad reporting and worse, biased representation of the data to prove a point. Case in point — the blood test [...]
Read Morekey people, news & gossip, policy issues
“Father Knows Best”: Vint Cerf on what innovation really is
For those who like to look deep into the structure and causes of change, something fun is in process: an interview with Vint Cerf, with an explicit e-patient component. Cerf is acknowledged as one of the fathers of the internet. In my lifetime few people, if any, have contributed more to ground-breaking, earth-shaking change. The interview [...]
Read Morefound on the net, news & gossip, positive patterns
Would Your Doctor Pay for Wasted Time? (CNN.com)
Strictly speaking this isn’t about participatory medicine, but it is about being an empowered consumer of care. There are several dimensions to empowerment, including (but not limited to): Knowing what you want Recognizing whether you’re getting it When you’re not, speaking up about it – courteously, when you can. You know real change is happening [...]
Read Moregeneral, medical records, news & gossip
Bye Bye Google Health
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its Google Health service, after just 3 years being open to the [...]
Read Moregeneral, news & gossip, policy issues, trends & principles
2011 Socialnomics video is out
On this blog we try to understand and explain how the world has changed and is changing, with the goal of helping everyone – policy people, patients, clinicians, administrators, businesses – optimize for the world as it changes. Nowhere is that more apparent than in how social media is connecting us. Two years ago Erik [...]
Read Moregeneral, news & gossip, policy issues, reforming hc, shared decision making
Accountable Care Organizations and Patient-Centeredness
As you may know, the proposed Accountable Care Organization regulations were released yesterday. I’ve posted links to the various documents and some early news reports on my blog: Accountable care organization proposed regulations released for public comment. I’ll be participating in the ACO Watch roundtable discussion on the ACO regulations this afternoon – feel free [...]
Read Morefound on the net, news & gossip, positive patterns, pt/doc co-care, Why PM
ABCNews.com: “The Biggest Wasted Resource in Health Care? You.”
ABCNews.com has posted a great new piece by Roni Zeiger MD, “The Biggest Wasted Resource in Health Care? You.” Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It’s well reasoned and clearly written, and continues the trend we cited a month ago, when Time posted Dr. Zack Meisel’s article saying that patients [...]
Read More
