found on the net, JoPM, others' e-patient stories

Kathleen O'Malley | September 7, 2011

The Journal has just published a commentary by SPM member Kathy Kastner, “My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient.” The author describes the “aha moment” when she decided to become a participatory patient and shares the attributes that helped her achieve her goal — they include discipline and hard work, as well [...]

found on the net, JoPM, others' e-patient stories, reforming hc

JoPM book review: “Out of Her Mind”

Kathleen O'Malley | August 16, 2011

The Journal of Participatory Medicine has just published a review of “Out of Her Mind: Women Writing on Madness.” Writer Meredith Linden, who lives with bipolar disorder, describes how the selections in this book can help validate people struggling with mental illness, including herself, and how the mental health industry still needs to become more [...]

e-pts resources, general, others' e-patient stories, positive patterns, social media

Wendy Station: A community lifts up a priest in need

Kathleen O'Malley | July 19, 2011

SPM member John Novack, of the Inspire.com patient communities, submitted this guest post by Wendy Station about another online community — another great example of patients engaging in their care, supplementing the value they get from their medical professionals by using online connections. “I feel cornered, at the end of my rope, trapped!” exclaimed Father [...]

e-patient stories, others' e-patient stories, Why PM

Paul Roemer’s e-patient story: Cancer, who’s in charge here?

e-Patient Dave | June 21, 2010

Paul Roemer (LinkedIn, Twitter ) is speaking this Thursday at Health 2.0 in Bethesda. He’s a Twitter friend who has a lot in common with me: a cancer kicker with a business background, who now sees himself as an e-patient. There’s one big difference: he went through his first major medical experience years before I [...]

e-patient stories, hc's problem list, others' e-patient stories, positive patterns, reforming hc, Why PM

Great news from “Mama Lion” Engelman and daughter

e-Patient Dave | June 7, 2010

Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly needed a mitral valve replacement, vs the much [...]

e-patient stories, others' e-patient stories, policy issues, pts as teachers, reforming hc, trends & principles, Why PM

Donna Cryer’s “I am an e-patient” story: e-patient advocate to the FDA

e-Patient Dave | May 22, 2010

Meet Donna Cryer – another person who was an e-patient before she ever heard the word. (Weren’t we all?) As with Diane Engelman’s “mama lion” story this week, we connected with Donna through the internet. I heard her speak last month at the National Library of Medicine’s e-Patient Conference. (Yes, they had an e-patient conference!) [...]

e-patient stories, others' e-patient stories, policy issues, reforming hc

Some people just won’t take death for an answer.

e-Patient Dave | February 18, 2010

We often talk here about empowered patients’ struggles to get – or even create – the care they need. Usually we’re talking about it in a medical sense. But as far too many people know, sometimes there are other obstacles. Laurie Todd is, to me, an outstanding example of someone who wouldn’t take death for [...]

e-patient stories, others' e-patient stories, positive patterns, Why PM

From incurable to “We can now call you cured”: Cheryl Greene’s story

e-Patient Dave | November 11, 2009

Here’s another true e-patient story from one of our team. Cheryl Greene is third from the left in the banner at top of this blog. She’s a long-time friend of our founder “Doc Tom” Ferguson, a board member of the Society for Participatory Medicine, executive producer of DrGreene.com (AMA: “the pioneer physician web site on [...]

e-patient stories, net-friendly docs, others' e-patient stories, trends & principles

An e-Patient is Born: Elyse Chapman’s story

e-Patient Dave | April 26, 2009

One of the key learnings of my first year as a student of the e-patient movement, studying how healthcare is evolving, is this: People get radicalized when it gets personal. This is one such story: it’s the e-patient awakening of a long-time personal friend of mine. Facing a painful medical crisis, she asked questions and [...]

e-patient stories, others' e-patient stories

Patient Power: Andrew Schorr

Susannah Fox | October 6, 2008

Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a [...]