patient networks

 

found on the net, patient networks, positive patterns, pt/doc co-care, shared decision making

From BMJ: The interdependent roles of patients, families and professionals in cystic fibrosis

Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s a link to the PDF of the article: http://qualitysafety.bmj.com/content/23/Suppl_1/i90.full.pdf+html Here’s a link […]

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e-pts resources, patient networks

Rare Diseases: Powered by Patients

A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and caregivers–and I think you’ll agree that the answer is definitely, […]

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e-patient stories, end of life, ethics, key people, others' e-patient stories, patient networks, pts as teachers, social media

e-Patient Lisa Adams

In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused by two articles that criticized her efforts. A hashtag was […]

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e-patient stories, key people, others' e-patient stories, patient networks, pts as teachers, social media

Regina Holliday: The Walking Gallery film

Regina Holliday and her Walking Gallery project are featured in a new short film. Here it is: The Walking Gallery of Healthcare from Eidolon Films on Vimeo. How a movement begins…

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hc's problem list, patient networks, policy issues, pts as teachers, reforming hc, shared decision making, trends & principles

e-Patient Manifesto: “Patients Included”

In 1517, Martin Luther nailed his “Ninety-Five Theses” to the wooden doors of Wittenberg Cathedral, sparking a global reformation of the Christian faith that’s still going on today. In the 1950s and 1960s Dr. Martin Luther King Jr. worked to drive inclusion for all in a society that had long separated people of different backgrounds. […]

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patient networks, positive patterns, pts as teachers

Summit on Identifying Family Caregivers on Medical Records – by Suzanne Mintz

Below is a guest post by Suzanne Mintz, founder Family Caregiver Advocacy about a summit where patients and caregivers were an integral part of the healthcare redesign process. More and more you will see us featuring meetings and conferences that include patients and asking others to include patients and caregivers. Suzanne is a social entrepreneur, family caregiver […]

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e-patient stories, e-pts resources, JoPM, patient networks, positive patterns, social media

Join #s4pm tweetchat Saturday 10/12 at 3pm ET

We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care social media, and patient-centered design. Come meet the friends you made at MedX and share […]

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e-pts resources, patient networks, policy issues, positive patterns, pt/doc co-care, social media, trends & principles, Why PM

New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern

SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu, @Yogileana; and Carla Berg, @Confluently. We’ll be hosting an #s4pm tweetchat on the 2nd and 4th Saturdays of the month, with our 2nd […]

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e-patient stories, medical records, patient networks, positive patterns, pt/doc co-care, trends & principles

Erin Moore’s speech: What if CF had a Collaborative Care Network?

SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged in creating the future that her son […]

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e-patient stories, key people, patient networks, positive patterns, pt/doc co-care, Why PM

A parent speaks: “Our child’s disease is OUR disease”

Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the speakers and his words were so compelling that I asked if we could publish them […]

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