Society for Participatory Medicine
e-patients.net blog
patient networks
patient networks, trends & principles
Alpha Geeks in Health Care
Here’s how tech guru Tim O’Reilly describes his work: So often, signs of the future are all around us, but it isn’t until much later that most of the world realizes their significance. Meanwhile, the innovators who are busy inventing that future live in a world of their own. They see and act on premises [...]
Read Morenet-friendly docs, patient networks
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with [...]
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Peer-to-peer healthcare on NPR
To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs“). I read up on the facts and try to make sense of the latest turn [...]
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Peer-to-peer Healthcare at the White House
It’s hard to say this without sounding like I’m bragging, but that’s not going to stop me: I’m going to the White House tomorrow to talk about Pew Internet Project’s latest research on peer-to-peer healthcare.
Read Morepatient networks, pts as teachers, trends & principles
NPR’s Talk of the Nation: Patients Seek Moral and Medical Support Online
Yesterday (March 3), NPR’s popular program “Talk of the Nation” covered something we discuss often: how e-patients find information and find each other, online. Featured guests were Pat Furlong, mother of two boys with a rare disease, who started an online community, and Susannah Fox of the Pew Internet and American Life Project, a frequent [...]
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Healthcare Out Loud
Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising even myself with some of what [...]
Read Morepatient networks, trends & principles
Cancer 2.0
Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world) does not miss this latest opportunity for education and discovery? The Pew Internet Project‘s latest report on health and health care, Cancer [...]
Read Morehc's problem list, patient networks, reforming hc
The Future of Health: Robots, Enchanted Objects, and Networks
I have seen the future of health and it’s networks (with apologies to Lincoln Steffens). Chronic disease is exploding in the U.S. The number of primary care health professionals is declining. Behavior change is difficult. But what are we going to do about it? Here are three ideas I’ve brought back from my travels: robots, [...]
Read Morehc's problem list, patient networks
To improve health and health care faster… (fill in the blank)
I was honored to be invited to TEDMED by the Pioneer Portfolio of the Robert Wood Johnson Foundation. Their team encouraged all attendees to complete one of three sentences: “To improve health and health care, we need to start asking…” “To improve health and health care faster, we must…” “My bold idea for transforming health [...]
Read Moregeneral, patient networks, policy issues, research issues, trends & principles
Open Health Data is Here. Welcome To The Great Data Divide!
The New England Journal of Medicine’s Health Policy and Reform just published an opinion piece about the first public release of online report cards regarding 221 of the 1,100 US cardiac surgery programs. The authors believe that this event will fuel the debate regarding the risks and benefits of public reporting, including the question of [...]
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