Society for Participatory Medicine
e-patients.net blog
PM Tech
general, key people, medical records, PM Tech, policy issues, pt/doc co-care, reforming hc
SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine’s Public Policy Committee completed a last-minute blitz and submitted comments in response to the Office of the National Coordinator for Health [...]
Read Moregeneral, PM Tech, reforming hc, shared decision making
The Black Box of You: Why the Quantified Self is so Frustrating Today
Imagine a black box. You can feed all sorts of information and data into it all the live long day. But the amount of data you can get out of it is limited. It just stares back at you with its blank, neutral sides. It can tell you things like where it was manufactured, or [...]
Read Moree-pts resources, PM Tech, policy issues, reforming hc
Provide Your Input to Inform ONC’s Consumer eHealth Strategy
On Monday, March 25, 2013, ONC, in collaboration with Cornell University, launched a new web platform for obtaining public input to inform health IT strategic planning. Check out the new PlanningRoom site, and provide your thoughts. ONCs initial focus is on consumer eHealth. To encourage public input to inform the consumer eHealth strategy, ONC is partnering with [...]
Read Moree-pts resources, PM Tech, social media
Tweetchat on Wed March 20 about Gimme my DAM Data, Blue Button Plus and Commonwell
Please join us for a tweetchat this evening – Wednesday March 20 at 8 PM ET/ 5PM PT. We’ll talk about: What’s new with Gimme my DAM Data #gmdd ? - Wall Street Journal picked the story at SXSW conference http://epatientdave.com/2013/03/18/wall-street-journal-picks-up-gimme-my-dam-data-song/#.UUmxrBysh8E Blue Button Plus – why should patients fight for it? #bluebuttonplus #abbi http://bluebuttonplus.org/history.html CommonWell alliance [...]
Read Moremedical records, news & gossip, PM Tech, positive patterns
SPM and HIMSS announce collaboration and tweet-up (and book!)
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s leading health information technology groups. Upcoming webinar: Over the next few months, we will be [...]
Read Moregeneral, medical records, PM Tech, pt/doc co-care
ONC’s new visual companion to their great vids about EHRs
Most of our readers are familiar with the brief animated video introduced last summer by ONC, the health IT group in the US government. (If you haven’t seen it, you can watch it below, in long and short versions.) Now they’ve introduced a new poster (click the tiny version at right) that conveys the same [...]
Read Moree-patient stories, key people, medical records, news & gossip, others' e-patient stories, PM Tech, policy issues
When is patient data not patient data? When a patient wants his or her ICD data
The latest news story to examine the issue of patient access to implantable cardiac defibrillator data (a variation on the theme of “gimme my damn data”) is an in-depth, Page One Wall Street Journal story featuring Society for Participatory Medicine members Amanda Hubbard and Hugo Campos. They have garnered attention in the past – one [...]
Read Morefound on the net, medical records, PM Tech
First Electronic Health Record exchange in MA @stales
Member Alicia Staley on the HIT Community (MA HI Community) blog with a great recount of the first EHR exchange in Massachusetts – it happened last week: https://www.thehitcommunity.org/2012/10/16596/
Read Moree-pts resources, general, medical records, PM Tech, policy issues, positive patterns, pt/doc co-care, reforming hc
OpenNotes: The results are in. GREAT news for patient engagement.
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to the birth of the Web, in 1994: The opening anecdote of the e-patient [...]
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#S4PM #BigData Tweetchat on Wed Aug 29 – 8 PM ET / 5 PM PT
On Wed 8/29/20012 at 8 PM ET / 5 PM PT please join us for a Tweetchat hosted by SPM member Janice McCallum @janicemccallum about Big Data in Healthcare. One good way to participate is to use the website http://tweetchat.com/room/s4pm Go to the site at the right time, login with your Twitter user name and [...]
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