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medical records, PM Tech, positive patterns, reforming hc

New England SPM members: free admission to 3/29 local HIMSS meeting

SPM members Janice McCallum and Pat Rioux are also members of the New England chapter of HIMSS, the gigantic Health Information Management Systems Society. They have arranged a special deal for SPM members: free admission to their March 29 meeting (if you register by 3/18). SPM co-founder e-Patient Dave will be the featured speaker. The topic is […]

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medical records, PM Tech, policy issues

Proposal for a TRULY patient-centered medical record

The other night I participated in a very useful Google+ hangout with SPM members Adrian Gropper and Michael Mascia, and Michael Chen [of NOSH, explained below]. The discussion focused on a subject I think is incredibly important: the patient-centered health record. Really: patient-centered. Like, built around the patient – not a provider system built with supposed “patient-centered” thinking. This topic […]

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ethics, PM Tech, policy issues, positive patterns, reforming hc, trends & principles

Key legal victory moves medical device patients one small step closer to full access to their data

For whose benefit does the healthcare industry exist? For the investors, or the people whose needs are the reason for the industry? Facebook last night was celebrating a small but significant legal victory this week for the “gimme my DaM data” movement (“Data about Me”), of whom super-e-patient Hugo Campos is a well known example. […]

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e-pts resources, key people, PM Tech, social media, trends & principles

Tune in for Patient Reviews of Physicians: The Wisdom of the Crowd?

HB post header for HOA

Patient Reviews of Physicians: The Wisdom of the Crowd? Google Hangout On Air Hosted by David Harlow with Niam Yaraghi and Casey Quinlan Wed, Jun 24, 3:00 PM – 4:00 PM ET Presented by David Harlow (aka HealthBlawg) in association with The Society for Participatory Medicine. I am hosting a conversation with Niam Yaraghi (Center […]

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general, key people, medical records, news & gossip, PM Tech, policy issues, positive patterns

BREAKING: Susannah Fox is HHS’s new Chief Technology Officer

A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox​ is the new Chief Technology Officer at U.S. Department of Health and Human Services​. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as the biggest government-based Mazel Tov in the history of the e-patient movement!  Bringing heart […]

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news & gossip, PM Tech, policy issues, reforming hc, trends & principles

SPM survey in Times Square: “Americans believe their medical data should be shared with their providers”

National Survey Also Shows 87% Think Health Information Exchange Should be Free First paragraph updated next day In case you missed it last month, there was an unprecedented, huge moment in SPM’s history – we collaborated in a national survey of Americans’ views and wants regarding something we at SPM hold dear: getting doctors to make […]

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medical records, PM Tech, policy issues, positive patterns

From OpenNotes to OurNotes: New project heads toward *real* participatory medicine

I’m beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we’ve been striving toward, or what?? For years we’ve written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson Foundation, which established that when patients can read their doctors’ unedited visit notes – the hairy detailed medicalese […]

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e-pts resources, medical records, PM Tech, trends & principles

Let’s crowdsource what a “good” medical record tool for patients is (and list some products)

Ah, social media. On Facebook a couple of hours ago, Swedish SPM member Sara Riggare posted: Responses were quick and robust: “Web MD has an app that you can download that I use. I find it pretty useful.” – Mark Burek “That’s a sticky question. I tried Caresync ([SPM member Amy McFall Gleason’s app) and thought it useful. […]

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e-pts resources, medical records, net-friendly docs, PM Tech, positive patterns

HIMSS blog: Thought Leadership – The Patient Perspective

Interesting blog at HIMSS by Pete Rivera: use the patient to redesign the workflow: Thought Leadership – the Patient Perspective For years, I advocated that health IT does not drive business.  I still do. Rethinking your processes to leverage technology is just smart business. You may be thinking, “Great, let’s get a committee together of […]

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JoPM, medical records, PM Tech, policy issues

New in JoPM: “I No Longer Have to Go to See the Doctor:” How the Patient Portal is Changing Medical Practice

SPM co-founder Charlie Smith (Charles W. Smith, MD) was “Doc Tom” Ferguson’s own physician, and currently serves as co-Editor-in-Chief of our Journal of Participatory Medicine. He’s just published a brief but important editorial in the journal. It begins (emphasis added): “Not long ago, the only options my patients had for communicating with me were to come […]

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