Society for Participatory Medicine
e-patients.net blog
policy issues
general, others' e-patient stories, policy issues, pt/doc co-care, pts as teachers, shared decision making, trends & principles
Angelina Jolie, BRCA1, Public Health, Patent Law — & the Empowered Patient
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is clearly trying to get the message out that radical choices must sometimes be made in order to increase one’s chances of [...]
Read Moregeneral, key people, medical records, PM Tech, policy issues, pt/doc co-care, reforming hc
SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine’s Public Policy Committee completed a last-minute blitz and submitted comments in response to the Office of the National Coordinator for Health [...]
Read Moredemographics, policy issues
Veteran Internet Use and Engagement With Health Information Online
New analysis of the Pew Research Center’s 2010 health survey results show differences among three populations: veterans of the U.S. military who obtain their health care within the Veterans Health Administration of the U.S. Department of Veterans Affairs (VA); veterans who are outside the VA system; non-veterans. The full article is behind the pay wall for Military Medicine, [...]
Read Moregeneral, policy issues, reforming hc
Who Are These Guys? Why the PCORI Picks Matter And a Lot More Than You Probably Realize
This guest post by Michael L. Millenson originally appeared on The Health Care Blog. Michael is president of Health Quality Advisors LLC in Highland Park, IL; the Mervin Shalowitz, MD Visiting Scholar at the Kellogg School of Management; and a board member of the Society for Participatory Medicine. The Patient-Centered Outcomes Research Institute has just [...]
Read Moree-pts resources, PM Tech, policy issues, reforming hc
Provide Your Input to Inform ONC’s Consumer eHealth Strategy
On Monday, March 25, 2013, ONC, in collaboration with Cornell University, launched a new web platform for obtaining public input to inform health IT strategic planning. Check out the new PlanningRoom site, and provide your thoughts. ONCs initial focus is on consumer eHealth. To encourage public input to inform the consumer eHealth strategy, ONC is partnering with [...]
Read Moreethics, general, policy issues, positive patterns, pts as teachers, research issues, Why PM
Partnering with patients – about patient centered RESEARCH METHODS
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine, as the professions begin to understand the value [...]
Read Morepolicy issues, reforming hc
Why Walk–in Medical Clinics Provide a Good Alternative
According to a recent Harris Poll, walk-in medical clinics located in pharmacies, shopping malls, office parks and workplaces are getting more and more popular with health care consumers. The poll reported that of the 3,000 adults surveyed online, 27% said they have used walk-in retail or work based clinics in the past two years. That [...]
Read Morefound on the net, hc's problem list, policy issues
What if we treated substandard *info* like substandard drugs? (Riff on an IOM report)
Major typo fix, 3:23pm – “they’re giving” is not same as “they’re given”! Sorry. This note arrived today from the Institute of Medicine. I’m in DC at the moment, at a big briefing by the Health Affairs policy journal about patient engagement, and a key issue keeps coming up: the problems that happen when patients [...]
Read Morenews & gossip, policy issues
Minnesota Supreme Court sides with patient on social media defamation suit
Guest post by SPM member @NickDawson, a former health system executive now focused on patient experience, staff happiness and healthcare innovation. He works for Frontier Health in Richmond, Virginia. There’s a moment where something changes direction, irreversibly, because of irresistible forces – like when you toss your keys in the air. There is a split second [...]
Read Moremedical records, policy issues, reforming hc
Final HIPAA Privacy & Security Rule – What’s in it for Patients?
After years of delay, the federales finally finalized the HIPAA Privacy, Security, Breach Notification and Enforcement Rules. Introduction The Final Rule offers significant changes to patient rights and patient protections. (There is much more to the rule, but other aspects are not addressed in this post. Here you may find a link to the HIPAA Omnibus Rule, [...]
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