policy issues

 

general, policy issues, positive patterns, reforming hc

The movement gets real: one of Doc Tom’s sightings gets $28 million with Iora Health

There are times in a movement when value is revealed and recognized, and you know something real is happening. In the engaged-patient movement, the first I noticed was when Amy Tenderich’s Diabetes Mine blog (and its community) was acquired several years ago. That takes it from what some people might view as “clubby” to tangible […]

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medical records, PM Tech, policy issues, positive patterns

From OpenNotes to OurNotes: New project heads toward *real* participatory medicine

I’m beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we’ve been striving toward, or what?? For years we’ve written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson Foundation, which established that when patients can read their doctors’ unedited visit notes – the hairy detailed medicalese […]

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general, policy issues, pt/doc co-care, reforming hc, trends & principles

Engaging Patients in Safety: Naughty or Nice?

This post by long-time SPM member Michael Millenson first appeared on the EngagingPatients.org blog. We’re re-posting it here to both put it on the membership’s radar, and to invite comments on Michael’s POV that “As much as we can argue that patient engagement with their own healthcare decisions is progress, asking patients to keep doctors honest about the […]

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medical records, news & gossip, policy issues, positive patterns

Evidence: “Patients value direct, independent access to their medical exams.” Who knew??

Edited an hour later – added Business Impact section at end Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we can view the data you collected about us. Even us over-50 ones, who are widely believed to be […]

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policy issues, reforming hc, trends & principles

WHO in Geneva – SPM in the house!

SPM member Casey Quinlan (who’s posting this) was invited to attend an event at the WHO in Geneva. This post originally appeared on her Mighty Casey Media blog, and is reposted here in its entirety by SPM request. Guess who got invited to WHO? No, really. The World Health Organization (WHO) invited yours truly to its First Global […]

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medical records, policy issues, positive patterns, pt/doc co-care

OpenNotes in the news: Now 3 million patients – and mental health, too

We’ve often written here about the OpenNotes study (here’s a site search), which documented that when patients can see what their clinicians wrote, the sky doesn’t fall; instead, all kinds of good things happen. This is game-changing, even world-changing for how we conduct medicine: As I’ve often said, “People perform better when they’re informed better,” […]

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policy issues, positive patterns, reforming hc

Keeping Patients in the Dark: SIIPC14

  Several SPM members were in attendance at the recent SIIPC14 conference at Dartmouth, where the ongoing work on healthcare system transformation  has been the source of much great content on e-patients.net over the years. Casey Quinlan – yes, yours truly – has put up a post on the Mighty Mouth blog that gives one […]

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medical records, news & gossip, policy issues, positive patterns, trends & principles

Wall Street Journal on patient access: “Health-Care Providers Want Patients to Read Medical Records, Spot Errors”

Regular readers know that this blog has long advocated for patient access to, and engagement with, the medical record. In the past 2-3 years we’ve especially advocated for OpenNotes, in which patients can see their primary’s actual visit notes.  At my hospital, Beth Israel Deaconess, not only can patients see their primary’s notes, in 2014 it’s […]

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JoPM, medical records, PM Tech, policy issues

New in JoPM: “I No Longer Have to Go to See the Doctor:” How the Patient Portal is Changing Medical Practice

SPM co-founder Charlie Smith (Charles W. Smith, MD) was “Doc Tom” Ferguson’s own physician, and currently serves as co-Editor-in-Chief of our Journal of Participatory Medicine. He’s just published a brief but important editorial in the journal. It begins (emphasis added): “Not long ago, the only options my patients had for communicating with me were to come […]

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e-patient stories, e-pts resources, found on the net, policy issues

Times science reporter asks: “Ever hit a paywall?”

Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer “yes” and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from non-scientists. Plz email me amy@nytimes.com — Amy Harmon […]

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