Society for Participatory Medicine
e-patients.net blog
policy issues
medical records, policy issues, trends & principles
What Do Aggregators Know About Me and Why It’s Important
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with them. The information moves and collects in secondary locations such as insurers (claims), public health agencies [...]
Read Morefound on the net, medical records, policy issues, trends & principles
KQED blog on Hugo Campos and his quest to access his data
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he wrote, “Just had the biggest arrhythmia ever. I’m trying to recover [...]
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Hugo Campos has major arrhythmia, goes to ER, wants his data even more now
SPM member Hugo Campos has had much coverage here and in the media (NPR, SF Chronicle, San Jose Mercury-News) for his desire to see the raw data coming out of his implanted defibrillator. The vendor, Medtronic, feels that its responsibility is to give Hugo’s doctor the data, to understand what episodes happen in Hugo’s heart, [...]
Read Morefound on the net, policy issues
@Ahier on the AHA’s “it’s too hard”: Planetree hospitals give access while still in-patient
[Reminder: The place to register an official comment to the government is this page on Regulations.gov.] SPM member Brian Ahier is Health IT Evangelist at Mid-Columbia Medical Center in The Dalles, Oregon. Today he posted this on Google+; reposted here with permission: (emphasis added) First, I want to say that I am strongly opposed to [...]
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Millenson on THCB: Will Regina Holliday Become Health Care’s Rosa Parks?
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] How slowly culture changes. In September 2009, at the founding of our Society for Participatory Medicine, the cover of Health Leaders magazine said the e-patient was The Patient of the Future. It was a great, in-depth article [...]
Read Moregeneral, medical records, policy issues, reforming hc
SPM’s responses to the proposed rules for Meaningful Use Stage 2
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: “How often, before this administration, did Washington make it truly easy for anyone to tell their story, from home? This administration is really open to this, and I [...]
Read Moremedical records, policy issues
“With this the AHA admits that it does not know what an EHR was and is meant for”
Cross-posted from the ICMCC blog, a post by its chairman, Lodewijk Bos, a Dutch cancer patient who is a great advocate for information, technology, and patient engagement. The ICMCC news feed is a terrific daily compilation of health IT news. A long-time advocate for patient empowerment – from his own experience beating unbeatable odds – [...]
Read Moremedical records, policy issues, positive patterns
Important ONC/NeHC Webinar, noon ET – the Patient’s Role in EHR Data Quality (SPM speaking)
I should have announced this long ago but I’ve just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It’ll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important, and it’s not guaranteed. As long-time readers (and members of [...]
Read Moregeneral, medical records, policy issues
American Hospital Association declares war on patient empowerment. Please act.
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] ____________ New, 11pm ET on May 2: See Regina Holliday’s addition at bottom. Evening addition: In a comment below, SPM policy chair David Harlow notes that (perhaps in addition to what you do below), [...]
Read Moremedical records, news & gossip, policy issues, positive patterns
Globe article on EMRs: status and the safety issue
In today’s Boston Globe, the cover story for the daily ”G” magazine is “Record-Keeping 2.0,” by Chelsea Conaboy (@cconaboy). Subtitled “Medical care is shifting to electronic data files – but how safe is it?”, it’s a good mass-market introduction to the subject and where we sit today. If your grandmother or neighbor wonders what all the [...]
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