Society for Participatory Medicine
e-patients.net blog
policy issues
hc's problem list, news & gossip, policy issues
Regina Holliday in Newsweek (Shannon Brownlee on hurried docs and lack of care)
What news to wake up to – SPM’s “resident artist” Regina Holliday is in Newsweek. It’s not a happy story – nothing about her story is – but it’s good to see such things getting the visibility they deserve. The article, by Overtreated author Shannon Brownlee, is The Doctor Will See You – If You’re Quick. [...]
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Petition and Call for Public Comments (from you): Strengthen the Patient Engagement requirements of Stage 2 Meaningful Use
SPM member Brian Ahier posted this petition notice – and call for comments to the government – on the SPM member listserv. Written by Dave Chase of Avado, it deserves public attention. ONC: Strengthen the Patient Engagement requirements of Stage 2 Meaningful Use Why this is important: Nothing would result in improving the health of [...]
Read Morepolicy issues, shared decision making
System 1, System 2, Elephants and Illusions
One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become “responsible drivers of their care, and providers welcome and value them as full partners,” patients participate in decisions – and inevitably start to understand the decision process that used to be the domain of the [...]
Read Morepolicy issues, reforming hc
What happens when an engaged consumer tries to help control costs?
Since November I’ve been blogging on my personal site about what happens when a patient tries to help control costs, in my cost cutting edition posts. Most recently I noted that this stuff takes time, especially since our glorious American healthcare system seems to be set up to block our access to what things actually [...]
Read Moremedical records, policy issues
Getting copies of your medical records: rule & resource info from CDT
The Center for Democracy and Technology (CDT) is one of my favorite sources for accurate information on the rules about our rights to access our medical records. Their wizard Deven McGraw is widely recognized as one of the best authorities anywhere on HIPAA – the 1996 law and regulations that established in 2000 that you [...]
Read Moregeneral, news & gossip, policy issues, reforming hc, trends & principles
The Government’s Assault on Women’s Health
I’m a little confused… I’m not sure where the U.S. Constitution guaranteed the government’s right to interfere with the doctor/patient relationship. Nowhere in this historic document could I find anything about the government’s right to dictate how women’s health and reproductive health (but not men’s) are areas appropriate to government interference. (You won’t find it [...]
Read Moree-patient stories, found on the net, policy issues, trends & principles
Hugo Campos: compelling 3 minute video (Medicine X promo video)
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his call to action, for patients to have access to their [...]
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Michael Millenson: Will health reform move patient-centeredness to center stage?
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient’s voice grown from an ethical demand of the patient rights movement into a series of specific, measurable behaviors? That question, and issues [...]
Read Morepolicy issues, pts as teachers, reforming hc
Regina Holliday’s testimony at NCVHS
SPM member Regina Holliday is known for her “Walking Gallery” of painted jackets, each telling one person’s healthcare story, which she relates in an accompanying post on her blog. On Tuesday she became the latest e-patient to testify at a meeting of NCVHS, the National Committee on Vital & Health Statistics. The slides she presented [...]
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An e-Patient Perspective on Stage 2 of Meaningful Use (Adrian Gropper)
At last week’s enormous HIMSS (health IT) conference, ONC (the Office of the National Coordinator for health IT) announced the long-awaited rules for Stage 2 of meaningful use. (These are the rules that must be met, for health IT systems to qualify for Federal incentives and, later, avoid penalties. Stage 1 rules were announced last [...]
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