positive patterns

 

positive patterns, pt/doc co-care, pts as teachers, research issues

WSJ: “Researchers are asking patients to help design clinical trials.”

I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the “European ASCO” cancer conference) in Madrid last month: Amy Dockser Marcus has another great piece on how medicine is truly starting to engage with patients as active contributors to improving healthcare. Woohoo! The lede: Scientists […]

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general, key people, medical records, positive patterns, reforming hc

(Video) Larry Weed, father of the Problem Oriented Medical Record – Grand Rounds, 1971

Students of medicine (surely most MDs) will know the name Larry Weed, but I didn’t until a few years ago on this blog, when I learned that in 1999 our founder “Doc Tom” Ferguson gave Weed an Outstanding Achievement Award. In the late 1960s Dr. Weed created the concept of the POMR: the Problem Oriented Medical […]

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e-patient stories, found on the net, positive patterns, reforming hc

Health Affairs – Narrative Matters: Suzanne Mintz’s article about caring for caregivers

Our member Suzanne Mintz, a Family Caregiver Advocate, shares the link to her Narrative Matters article/podcast in the current issue of Health Affairs: The Double Helix: When The System Fails The Intertwined Needs Of Caregiver And Patient www.healthaffairs.org/narrative-matters/ The policy recommendations for improving care for families living with multiple chronic conditions include: Document primary family […]

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general, positive patterns, reforming hc, trends & principles

New evidence: Engaged (activated) patients do better and cost *less.*

Update: instant egg on the face! This article is actually 18 months old, part of the big Health Affairs issue “New Era of Patient Engagement,” which Ileana Balcu blogged about at the time. Well, this post has already been retweeted ten times in 90 minutes, so I guess I’m not the only one who didn’t […]

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medical records, policy issues, positive patterns, pt/doc co-care

OpenNotes in the news: Now 3 million patients – and mental health, too

We’ve often written here about the OpenNotes study (here’s a site search), which documented that when patients can see what their clinicians wrote, the sky doesn’t fall; instead, all kinds of good things happen. This is game-changing, even world-changing for how we conduct medicine: As I’ve often said, “People perform better when they’re informed better,” […]

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JoPM, positive patterns, trends & principles

An important moment in our movement (JoPM article): The evolving language of patient engagement

An article of importance to our movement appeared in June, in our Journal of Participatory Medicine. It’s an analysis of twelve years of literature about patient engagement, documenting what words people used, what context they appeared in, and (perhaps most importantly) how the language has shifted – a sign of cultural evolution. Finally, the article proposes a […]

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positive patterns, reforming hc, research issues, shared decision making

Researcher seeks patient input: what should a stent decision aid include?

Preface by e-Patient Dave: We have often written here (see posts) about Shared Decision Making, in which patients are engaged in choosing among treatment options. A key method is to give patients a “decision aid” (DA) – a document or video that explains the options, with pro’s and cons. A vital question in the design […]

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key people, net-friendly docs, positive patterns, pt/doc co-care

Guest post by Zack Berger, MD, PhD: The pledge of the patient-centered physician

This blog welcomes guest posts from SPM members on relevant topics. Zack Berger of Johns Hopkins (@ZackBergerMDPhD) is highly committed to participatory medicine, and as this post shows, his book Talking To Your Doctor gets right down into the how-to’s. (More on this at end of post.) This is his pledge as a patient-centered clinician. – e-Patient […]

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policy issues, positive patterns, reforming hc

Keeping Patients in the Dark: SIIPC14

  Several SPM members were in attendance at the recent SIIPC14 conference at Dartmouth, where the ongoing work on healthcare system transformation  has been the source of much great content on e-patients.net over the years. Casey Quinlan – yes, yours truly – has put up a post on the Mighty Mouth blog that gives one […]

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found on the net, positive patterns, research issues, trends & principles

From BMJ: The BMJ’s own patient journey – Seeks to promote patient partnership by walking the talk

An interesting editorial in the BMJ (British Medical Journal) describes BMJ’s path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world. http://www.bmj.com/content/348/bmj.g3726 Our new strategy aligns with our “too much medicine” and “open data” campaigns and our support […]

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