positive patterns

 

general, policy issues, positive patterns, reforming hc

The movement gets real: one of Doc Tom’s sightings gets $28 million with Iora Health

There are times in a movement when value is revealed and recognized, and you know something real is happening. In the engaged-patient movement, the first I noticed was when Amy Tenderich’s Diabetes Mine blog (and its community) was acquired several years ago. That takes it from what some people might view as “clubby” to tangible […]

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medical records, PM Tech, policy issues, positive patterns

From OpenNotes to OurNotes: New project heads toward *real* participatory medicine

I’m beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we’ve been striving toward, or what?? For years we’ve written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson Foundation, which established that when patients can read their doctors’ unedited visit notes – the hairy detailed medicalese […]

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positive patterns

Opening the ICU doors to family: report from Virginia Mason

Cross-posted from my personal blog yesterday On Twitter Friday night I learned from Dr. Sachin Jain of a November article that should be of interest to all of us who want to work toward full patient and family engagement in all aspects of medicine. To be sure, the changes we’d like are not always simple, and […]

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general, medical records, positive patterns

Patient Generated Health Data webinar featuring SPM members

The Health Data Consortium, the folks who bring Health Datapalooza to life in DC every year, have increased the input of the Consumer Circle ahead of this year’s event, which is on the calendar for May 29 thru June 3 at the Marriott Wardman Park in Washington DC. As part of that commitment to increasing the […]

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general, positive patterns, reforming hc

Consumer Reports: “Respectful” treatment key to patient safety?

In a report released today (December 16, 2014), Consumer Reports shares insights from a survey of 1,200 people who were recently hospitalized. SPM is not surprised by the findings, which include the fact that patients who said they received respectful treatment by hospital clinicians reported fewer medical errors and better experiences in their hospital stays. […]

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medical records, news & gossip, policy issues, positive patterns

Evidence: “Patients value direct, independent access to their medical exams.” Who knew??

Edited an hour later – added Business Impact section at end Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we can view the data you collected about us. Even us over-50 ones, who are widely believed to be […]

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positive patterns, pt/doc co-care

“Activate your super-patient powers”: Public event (free!) at Brown next Monday

Cross-posted from my own site. This is about a free, non-commercial event that’s intended to be a radical exploration of a new way to discuss participatory thinking with people who don’t live in health policy circles – ordinary citizens! ______ For years I’ve been saying that this movement won’t really be creating change until it gets […]

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positive patterns, pt/doc co-care, reforming hc, trends & principles

#epatient – Are Millennials Born That Way?

Reposted from the Mighty Mouth blog Most of the people I meet in my voyages ’round healthcare system transformation, grassroots edition, arrived at the portal of #epatient via a trip through the medical-industrial complex. Either they, or someone they cared for, wound up getting “a thing” – cancer, Parkinson’s, multiple sclerosis, player to be named […]

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general, key people, patient networks, positive patterns

Inaugural Emerging Leader Award from CCFA- DC Chapter for Carly Medosch

Society for Participatory Medicine member Carly Medosch and her mother Mary Jo have run the Crohn’s and Colitis Foundation of America’s Fredericksburg, VA support group for the past 6 years. Crohn’s disease and ulcerative colitis are two forms of imflamatory bowel disease (IBD) – conditions with chronic or recurring immune response and inflammation of the […]

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news & gossip, positive patterns, pt/doc co-care, pts as teachers, trends & principles

Mayo chief residents name SPM patient as Visiting Professor in Internal Medicine

Wikipedia says “Participatory medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as  full partners.” That movement gets a big boost in credibility today: the Chief Residents at the Mayo Clinic have invited SPM co-chair “e-Patient Dave” to be […]

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