positive patterns

 

e-pts resources, medical records, policy issues, positive patterns, pt/doc co-care

OpenNotes study in BMJ Quality & Safety finds patient-doctor “relational benefits”

As regular readers know, we’ve written many times about OpenNotes, the project funded by Robert Wood Johnson that blew the doors off of beliefs that bad things happen when patients see their charts. (We blogged about the original results in 2012.) Now a new study in BMJ Quality & Safety adds the results of a […]

Read More
e-patient stories, key people, Patient Conference Participation, PM Tech, policy issues, positive patterns, pt/doc co-care, pts as teachers, reforming hc, trends & principles

#OpenAPS is bearing big fruit, part 2: Quantified Self presentation in San Diego

A truly significant moment in the history of medicine happened last Wednesday. I say that after attending almost 500 conferences and policy meetings in the past seven years, and I don’t say it lightly. Something many people think is impossible was presented live on stage: patients, informed and empowered by access to their data and access to tools, […]

Read More
e-patient stories, key people, PM Tech, positive patterns, pts as teachers, trends & principles

#OpenAPS is bearing big fruit, part 1: Dana Lewis’s speech at O’Reilly’s OSCON

For some reason we haven’t written much about this here – our only post is from SPM Past President Nick Dawson 15 months ago – but this is such a big deal. Here’s an 11 minute introductory video on this – I won’t say more, I’ll just ask you to click and watch this. The speaker is […]

Read More
end of life, Patient Conference Participation, positive patterns

CCCC conference announces inaugural class of palliative care e-patients

Guest post by SPM member Liz Salmi of CCCC, an organizational member and supporter of our Society for Participatory Medicine. Note also (at bottom) that this event provides a model for other organizations to follow: patient participation is enabled by a foundation grant. In our society, talking about serious illness and death and dying is often difficult. Having these […]

Read More
chapter reviews, DocTom10, positive patterns, pt/doc co-care, pts as teachers

#DocTom10, post 2: Please download the White Paper / Libro Blanco

Yesterday, in Honoring the memory of “Doc Tom” Ferguson, ten years after his death, we started a series of posts to mark his untimely demise and look back on his work. As we noted, at his death he was working on a project funded by Robert Wood Johnson’s Pioneer Portfolio to document the reality of, and […]

Read More
e-patient stories, positive patterns, pts as teachers

Sara Riggare: “The new kind of patients challenge healthcare”

SPM member Sara Riggare is a PhD student at Karolinska Institutet in Stockholm and a member of the BMJ’s Patient Advisory Panel. She has Parkinson Disease, and is highly proactive in dealing with it. One thing some Parkinson patients do is non-contact boxing, e.g. the Rock Steady program, and Sara has often posted pictures and videos on Facebook […]

Read More
medical records, policy issues, positive patterns

SPM survey results at HIMSS: “Patients want to be involved with their health information”

It’s time again for the gigantic (50,000 people) HIMSS trade show – the Health Information Management Systems Society, in Las Vegas this year. These new SPM slides (on Slideshare) will be shown in the Consumer Engagement zone, summarizing our two surveys on what patients want: The following is an editorial – my opinion, not a resolution […]

Read More
positive patterns, Why I joined

Participatory Medicine: An Administrator’s Point of View

Guest post by Mark Reifsteck [left], who joined our Society in 2014. Follow him on Twitter at @MarkWReifsteck. To become a member, individually or organizationally, see our Join Us page. It started innocently enough: I made an off-handed comment on the SPM member listserv about tone-deaf (my term) administration of a healthcare institution, which prompted […]

Read More
Patient Conference Participation, positive patterns, pts as teachers

Scholarships available to e-patients for palliative care summit

The Coalition for Compassionate Care of California (CCCC) is inviting e-Patients to apply for a scholarship to their 8th Annual Summit in Newport Beach, California, on May 12-13, 2016. The deadline to submit an application is March 10, 2016. Learn more and apply here.

Read More
medical records, PM Tech, positive patterns, reforming hc

New England SPM members: free admission to 3/29 local HIMSS meeting

SPM members Janice McCallum and Pat Rioux are also members of the New England chapter of HIMSS, the gigantic Health Information Management Systems Society. They have arranged a special deal for SPM members: free admission to their March 29 meeting (if you register by 3/18). SPM co-founder e-Patient Dave will be the featured speaker. The topic is […]

Read More