Society for Participatory Medicine
e-patients.net blog
positive patterns
ethics, general, policy issues, positive patterns, pts as teachers, research issues, Why PM
Partnering with patients – about patient centered RESEARCH METHODS
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine, as the professions begin to understand the value [...]
Read Morepositive patterns, trends & principles
“My Health Counts: e-Patients” to premier on WNED!
This is the big update to our preview post last November. There’s a stage in a movement where it starts to get serious media coverage, and ours is coming of age. We’ve documented the progress: 2009: Susannah Fox was on NPR’s Morning Edition: Participatory medicine and health data rights on NPR 2010: Time reported on SPM [...]
Read Moree-patient stories, found on the net, news & gossip, positive patterns, reforming hc, research issues, trends & principles
Health Affairs Patient Engagement Edition – with videos and commentary
The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog post. It’s worth reading, it has other interesting tidbits. The briefing was [...]
Read Morehc's problem list, positive patterns, reforming hc
What if health care…?
For over a year I’ve been the accidental manager of a community garden. All I did — I swear — is point out an open plot of land and people started pitching in, planting, asking friends to join them. All of a sudden we’d transformed a bare patch into something beautiful. I thought for sure [...]
Read Moremedical records, news & gossip, PM Tech, positive patterns
SPM and HIMSS announce collaboration and tweet-up (and book!)
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s leading health information technology groups. Upcoming webinar: Over the next few months, we will be [...]
Read Moregeneral, key people, news & gossip, positive patterns, pt/doc co-care, research issues, shared decision making
“The Patient as Partner” in Medical Research at Radboud University
This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the heavily patient-centric Future of Health conferences, which started with TEDx Maastricht 2011. Editorial note: I heavily edited [...]
Read Moremedical records, policy issues, positive patterns
Mobile Devices: Know the RISKS. Take the STEPS. PROTECT and SECURE Health Information
I haven’t blogged about it much this year due to the pressures of my own work, but I’m seriously impressed with the relevance, quality and user-friendliness of the work being done by the folks at ONC (the health IT branch of the department of Health & Human Services). In the summer they released a superb [...]
Read Moree-pts resources, general, policy issues, positive patterns, reforming hc, trends & principles
New Hospital Safety Score data: a key enabler for informed choice
The PDF at right is a summary of sample data from this new dataset. The Leapfrog Group is a highly respected patient safety organization. They’ve earned a reputation for carefully and thoughtfully assessing providers’ actual performance in quality and safety. Their mission statement: To trigger giant leaps forward in the safety, quality and affordability of health [...]
Read Morepositive patterns, reforming hc, Why PM
“My Health Counts: e-Patients” (coming soon from WNED, PBS Buffalo!)
Check this trailer for a new program, to be launched in January, produced by WNED, the PBS affiliate in Buffalo: One of the challenges of starting a movement like this, especially a Society with little budget, is that you have to bootstrap, like any modern business: you take what you have, make something of it, [...]
Read Moregeneral, positive patterns, Why PM
What makes a doctor-patient partnership flourish?
TEDMED last April was a big time for our Society. Many members were there, especially our artist-in-residence Regina Holliday and videographer Ross Martin, who collected the footage for his now-famous Gimme My DaM Data video. And, as we reported here, The Role of the Patient was selected as one of the Great Challenges for TEDMED 2013. Today [...]
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