positive patterns


e-pts resources, general, hc's problem list, key people, Patient Conference Participation, patient networks, positive patterns, pts as teachers, shared decision making

Sep 26 – Patient Summit on Diagnosis in Alexandria, VA

To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of the pre-conference program of the Diagnostic Error in Medicine conference and takes place […]

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found on the net, positive patterns, pts as teachers, research issues

Crohnology blog: “Doctor Thyself: How Patients Self-Care”

The site Crohnology, well known patient community for patients with IBD (Inflammatory Bowel Disease), recently started focusing their blog on explaining IBD- focused research to patients. Their most recent blog post describes a study that studied what patients with IBD do for self-care. This is a topic dear to our hearts and we are doubly thrilled […]

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Patient Conference Participation, positive patterns, trends & principles

Partnering with Patients – From Theory to Practice: #HealthcareTransformers

Three continents. Five patients. Three conferences. Dramatic change is occurring in healthcare where patients, “the true trans­formers in care”, are changing the playing field, and redefining how they want to engage and affect change. The Society for Participatory Medicine is a non-profit organization devoted to promoting the concept of participatory medicine, a movement in which […]

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e-pts resources, news & gossip, positive patterns, pt/doc co-care, shared decision making, trends & principles

A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article

A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are better than nothing, none is near perfect, and some are junk. Learn, but as with all […]

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policy issues, positive patterns, trends & principles

SPM applauds King v Burwell – “making healthcare accessible & participatory for all”

The Society for Participatory Medicine believes that an effective healthcare system is a collaborative one, where care providers and the patients and families they care for work together toward the best possible health outcomes. The importance of this partnership cannot be overstated; its supporters range from the Institute of Medicine to the World Health Organization, […]

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key people, net-friendly docs, positive patterns, pt/doc co-care

Guest Post by Matthew Katz, MD: E-Patients Deserve E-Doctors

Matthew S. Katz, MD, is the Medical Director of Radiation Oncology at Lowell General Hospital and a lifetime member of S4PM. He is former Chair of Communications Committee for the American Society for Radiation Oncology (ASTRO) and external advisor for Mayo Clinic’s Center for Social Media. He is co-moderator of the #radonc journal club and […]

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e-pts resources, found on the net, others' e-patient stories, positive patterns, pt/doc co-care, pts as teachers

“Inside Medicine at Weill Cornell: Meeting in the Middle”

Weill Cornell produced a series of mini-documentary style videos showcasing mentoring at their institution. This final video specifically focuses on how patients mentor their students. http://weill.cornell.edu/news/news/2015/05/inside-medicine-meeting-in-the-middle.html Go Weill Cornell! Let’s hope we will find out more about their LEAP (Longitudinal Educational Experience Advancing Patient Partnerships) program!

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others' e-patient stories, positive patterns, pt/doc co-care

“The perfect thing a doctor can tell a patient with chronic illness”

That’s the title of a new post on the Mighty blog written by Catherine Richardson, a 23-year-old chronic illness patient from Vancouver, Canada, who also blogs at findingmymiracle.com. It’s about something simple, but helpful, that her doctor told her, which illustrates the sense of “We’re in it together” that e-patients so often seek from their clinicians. After listing some of […]

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general, key people, medical records, news & gossip, PM Tech, policy issues, positive patterns

BREAKING: Susannah Fox is HHS’s new Chief Technology Officer

A quick first post, copied from Facebook: “Hugest news EVER! Susannah Fox​ is the new Chief Technology Officer at U.S. Department of Health and Human Services​. How amazing is that??” My comment on Susannah’s short post: “This wins my prize as the biggest government-based Mazel Tov in the history of the e-patient movement!  Bringing heart […]

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news & gossip, positive patterns, trends & principles

Announcement: SPM to advise ACP’s new Center for Patient Partnership in Healthcare

SPM co-founder and co-chair Dr. Danny Sands is appointed our first representative On Friday the following notice was distributed to members of our Society for Participatory Medicine. What a wonderful sign of medicine’s growing acceptance of the importance of patient-clinician partnership – and what a significant recognition of SPM as emblematic of this crucial collaboration we call participatory […]

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