Society for Participatory Medicine
e-patients.net blog
positive patterns
medical records, policy issues, positive patterns
Important ONC/NeHC Webinar, noon ET – the Patient’s Role in EHR Data Quality (SPM speaking)
I should have announced this long ago but I’ve just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It’ll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important, and it’s not guaranteed. As long-time readers (and members of [...]
Read Moremedical records, news & gossip, policy issues, positive patterns
Globe article on EMRs: status and the safety issue
In today’s Boston Globe, the cover story for the daily ”G” magazine is “Record-Keeping 2.0,” by Chelsea Conaboy (@cconaboy). Subtitled “Medical care is shifting to electronic data files – but how safe is it?”, it’s a good mass-market introduction to the subject and where we sit today. If your grandmother or neighbor wonders what all the [...]
Read Morefound on the net, net-friendly docs, positive patterns, shared decision making, social media
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence that more physicians are recognizing the value of these patient-empowerment tools, contributing to a trend toward patient-centered, [...]
Read Moree-pts resources, found on the net, positive patterns, trends & principles, Why PM
Gangadhar Sulkunte: TEDMED 2012 Highlights
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the Patient.” as on of its next “Great Challenges.” I was able to secure a scholarship [...]
Read Morefound on the net, positive patterns, pt/doc co-care
Patient Engagement shows up big in special WSJ section on Healthcare Innovations
Thanks to SPM co-founder Joe Graedon of PeoplesPharmacy.com for this note about today’s special section in the Wall Street Journal on healthcare innovation. (Some of the content requires a subscription, but you can register for 8 weeks free.) Joe’s note, with additions…
Read Morepositive patterns, trends & principles, Why PM
TEDMED and RWJF accept “The Role of the Patient” as a Great Challenge
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, “We must vote.” You did. We’re in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and click “The 20 Great Challenges” at bottom left. (The site doesn’t offer direct URLs to [...]
Read Morepositive patterns, pt/doc co-care, Why I joined
“People without medical background can understand if you tell it in a language they understand”
In the latest post in our Why I Joined SPM series, guest blogger Dr. Nabin Sapkota shares his story of discovering that patients like to be taught what’s going on, and how this replaced what he’d lost when he gave up doing teaching rounds. Every “why I joined” post is inspiring to me, but this one brought me [...]
Read Morefound on the net, news & gossip, positive patterns, trends & principles
“Physicians, Patients and the Internet”: good article in Physicians Practice magazine
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s Advocate is prominently featured, along with data from the Pew Internet and American Life project and [...]
Read Morefound on the net, JoPM, positive patterns, pt/doc co-care, shared decision making
A psychiatrist touts self-care for patients and clinicians
The Journal of Participatory Medicine has published “An Introduction to Self-Care,” a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her communication with her patients in ways that enables them to engage more effectively in their care.
Read Morefound on the net, general, positive patterns, research issues
Patients: Your Researcher Will See You Now!
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15. Patient voices are needed now! The Patient Centered Outcomes Research Institute (PCORI) [...]
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