positive patterns

 

e-patient stories, e-pts resources, key people, medical records, net-friendly docs, positive patterns, precision medicine, pt/doc co-care

Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care

This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on realizing improved health status for populations through unique, individualized approaches.   A funny thing happened on my recent annual […]

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end of life, general, Patient Conference Participation, positive patterns

Apply by 1/23: PCORI grant to fund e-patients at palliative care summit!

Intro note by e-Patient Dave: What a great development!  CCCC is an organizational member of our Society, and last year we blogged CCCC conference announces inaugural class of palliative care e-patients, and now, even better news: e-patient participation is getting formal support through a PCORI grant! I spoke at last year’s event, and as I said in my […]

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medical records, positive patterns, trends & principles

History lesson! “LINC with Tomorrow”: Warner Slack on “educational TV,” 1967

The much-quoted line “Patients are the most under-used resource in healthcare” was first uttered in the 1970s by Warner Slack, MD, when he was a young doctor in Madison, Wisconsin. It’s seen many versions and incarnations since then, but it all started with Dr. Slack’s feeling that patients could help a lot by directly entering the […]

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e-patient stories, how I became an e-patient, net-friendly docs, positive patterns, pt/doc co-care

Thanksgiving Letter to my Doctor

Coming from Romania 15 years ago, Thanksgiving was not a big thing for me. I didn’t quite grasp the holiday. My husband cooked and celebrated, and I helped and observed it in a detached way. 11 years ago, it was the Wednesday before Thanksgiving. I was 22 weeks pregnant; I was waiting for a test […]

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medical records, policy issues, positive patterns, pt/doc co-care, trends & principles

A first: Participatory Medicine thinking in the Harvard Business Review

As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we’ve been advocating since 2009: Participatory Medicine is a model of cooperative health care that seeks to achieve active involvement by patients, professionals, caregivers, and others across the continuum […]

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policy issues, positive patterns, research issues

NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?

This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s original data. Many (including Vice President Biden, at Health Datapalooza (video)) have objected strongly, saying […]

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general, policy issues, positive patterns, pt/doc co-care, trends & principles

OpenNotes hits TEN MILLION patient level

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the same page,” is no joke: I was one of the subjects in the study, and I’ve […]

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e-patient stories, key people, positive patterns, research issues

e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal

We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean Ahrens and the Crohnology community he started.  In my view the most important […]

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e-patient stories, general, how I became an e-patient, patient networks, positive patterns, pts as teachers, social media

Cleo Kordomenos: How My Opinion on Online Health Communities Changed

This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post.  Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey with a concentration in Health Communication and a […]

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PM Tech, positive patterns

“Unmarried teens would jump off bridges”: NY Times on suppression of home tests

A large part of the Society for Participatory Medicine’s work is culture change, and that requires pointing to the cultural roots of today’s situation, so that well-meaning people today can understand how we got here, and how absurd today will look in the future. I’ve rarely seen a better example than in today’s New York Times […]

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