positive patterns

 

e-patient stories, how I became an e-patient, net-friendly docs, positive patterns, pt/doc co-care

Thanksgiving Letter to my Doctor

happy-thanksgiving-images-free

Coming from Romania 15 years ago, Thanksgiving was not a big thing for me. I didn’t quite grasp the holiday. My husband cooked and celebrated, and I helped and observed it in a detached way. 11 years ago, it was the Wednesday before Thanksgiving. I was 22 weeks pregnant; I was waiting for a test […]

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medical records, policy issues, positive patterns, pt/doc co-care, trends & principles

A first: Participatory Medicine thinking in the Harvard Business Review

As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we’ve been advocating since 2009: Participatory Medicine is a model of cooperative health care that seeks to achieve active involvement by patients, professionals, caregivers, and others across the continuum […]

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policy issues, positive patterns, research issues

NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?

This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s original data. Many (including Vice President Biden, at Health Datapalooza (video)) have objected strongly, saying […]

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general, policy issues, positive patterns, pt/doc co-care, trends & principles

OpenNotes hits TEN MILLION patient level

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the same page,” is no joke: I was one of the subjects in the study, and I’ve […]

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e-patient stories, key people, positive patterns, research issues

e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal

We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean Ahrens and the Crohnology community he started.  In my view the most important […]

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e-patient stories, general, how I became an e-patient, patient networks, positive patterns, pts as teachers, social media

Cleo Kordomenos: How My Opinion on Online Health Communities Changed

This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post.  Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey with a concentration in Health Communication and a […]

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PM Tech, positive patterns

“Unmarried teens would jump off bridges”: NY Times on suppression of home tests

A large part of the Society for Participatory Medicine’s work is culture change, and that requires pointing to the cultural roots of today’s situation, so that well-meaning people today can understand how we got here, and how absurd today will look in the future. I’ve rarely seen a better example than in today’s New York Times […]

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key people, patient networks, positive patterns, pts as teachers, social media, Why PM

Teaching Health Communication with Participatory Medicine Highlights

In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient participation in their own healthcare. With the help of numerous colleagues from the Society for […]

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general, Patient Conference Participation, positive patterns, trends & principles

Health 2.0: first conference to offer Patient Activist awards. Vote!

Voting ends Sunday July 31 Patient activists who attend conferences know that it’s been a long climb to get patient voices welcomed. The #PatientsIncluded movement has been around for years, making small dents, but Health 2.0 is one of the best: while they don’t provide stipends to cover travel costs, they admit patients and caregivers to […]

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Patient Conference Participation, positive patterns, trends & principles

“Sister” Organization! AACH: American Academy of Communication in Healthcare

SPM member Danny van Leeuwen is @HealthHats on Twitter. Last week I attended the American Academy of Communication in Healthcare (AACH) Conference in New Haven – 2016 ENRICH Healthcare Communication Course and Research Forum at Yale, entitled, Diverse Voices, Common Vision: Fostering Effective Healthcare Communication through Inclusion. The AACH is the professional home for all committed to improving communication […]

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