Society for Participatory Medicine
e-patients.net blog
positive patterns
positive patterns
Hugo in the San Francisco Examiner – in a *non-medical* column
I’ve often said that we won’t really be making a dent until our conversations show up in the popular culture – outside health and technology circles. Well, I just spotted a great example: yesterday Janet Gallin, host of the San Francisco talk show Love Letters Live, posted a great piece about SPM member Hugo Campos (TEDx), written totally [...]
Read Morenet-friendly docs, positive patterns
What Bryant and Katie saw, while Doc Tom was seeing the future
We’ve often written here about what a visionary our movement’s founder “Doc Tom” Ferguson was. As the medical editor of The Whole Earth Catalog and publisher of the magazine and book Medical Self-Care , he saw the role of the patient and family in healthcare. And when the internet came along, he saw how profoundly it would [...]
Read Moree-pts resources, general, medical records, PM Tech, policy issues, positive patterns, pt/doc co-care, reforming hc
OpenNotes: The results are in. GREAT news for patient engagement.
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to the birth of the Web, in 1994: The opening anecdote of the e-patient [...]
Read Morepositive patterns, pt/doc co-care, pts as teachers, Why PM
Final weeks: Register & attend Regina’s “Partnership WITH Patients” conference
Yes, “Regina” – you know who I mean.:-) You know someone’s a star in the firmament when they gain first-name status. (Especially in healthcare, where “the other Regina” happens to be Surgeon General!) As we reported here in June, Regina Holliday has led a band of patient colleagues and professional partners in creating this event, hosted [...]
Read Morefound on the net, positive patterns, pt/doc co-care, shared decision making
Eve Harris: Health coaches and involving patients in primary care decision making
Another blog post from Eve Harris on KQED describing the use of medical assistant health coaches to help patients make and keep their health care goals. http://blogs.kqed.org/stateofhealth/2012/07/26/primary-care-efforts-to-involve-patients-in-decision-making/ Go Eve!
Read Morepolicy issues, positive patterns, pt/doc co-care, reforming hc, shared decision making
Input please for ABIM Foundation Forum: Choosing Wisely in an Era of Limited Resources
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated “The Role of the Patient” as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it in the coming months, seeking input from all [...]
Read Moregeneral, medical records, policy issues, positive patterns
“What’s in YOUR record?” Make data quality fun: play along in ONC’s video challenge!
Think everything in your medical record is spotless and flawless? Think again: almost everyone I know who’s checked their record has found flaws, omissions, orders that were never carried out. There’s a lot we can do, e-patients, engaged consumers, to improve the quality of our records. And the time to do that is now, before [...]
Read Morefound on the net, medical records, policy issues, positive patterns
Ted Eytan: Update on “Gimme My [image] Data” from Group Health
As Meaningful Use rolls out, and providers are required to share data with us, there are a lot of concerns about whether their lives will spin out of control as patients besiege them with ignorant questions. We’ve discussed this in our many posts about the OpenNotes project and about releasing lab results directly to patients. [...]
Read Morefound on the net, positive patterns, pts as teachers, social media
Mayo Clinic Scholarship Contest for e-Patients
This post originally appeared at http://socialmedia.mayoclinic.org/2012/06/20/2012-patient-caregiver-scholarship-contest-for-social-media-summit/. The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media Summit and related events Oct. 15-19, 2012, in Rochester, Minn. through its second annual scholarship contest for patients and caregivers. “Making sure voices of patients and caregivers are included in [...]
Read Moregeneral, policy issues, positive patterns, pts as teachers
Time trip: “Participant-Entrepreneurs: Innovating Toward Better Health” (May 2010)
Susannah Fox’s post about this two years ago pretty much went over my head: I didn’t get how important it was. But at this month’s White House conference on patient-generated data, I met Nikolai Kirienko, who was the central specimen in her post. The start: ___________ Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard [...]
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