Society for Participatory Medicine
e-patients.net blog
positive patterns
e-pts resources, positive patterns, research issues
Health News Review gets its second makeover. With comments!
We’ve often cited Gary Schwitzer’s Health News Review (@HealthNewsRevu on Twitter) as an invaluable e-patient resource. With a structured ten point evaluation process, the site’s many trained reviewers evaluate the reporting of health news. We reported on their first makeover two years ago, and they’ve just announced another. I like it – especially the new name [...]
Read Moremedical records, positive patterns, research issues, trends & principles
EHR data spurs real-time evidence-based medicine (NEJM / Health IT Exchange)
Wow. Todd Park, Chief Technical Officer at HHS, ought to be jumping out of his skin with joy at this one. This time, House, M.D. fans, it was lupus. The article “Evidence-Based Medicine in the EMR Era” published in the Nov. 10 issue of the New England Journal of Medicine might have read like a House television script, but it was a real-life glimpse of [...]
Read Moree-pts resources, patient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
Libro Blanco de los e-Pacientes en Español
To read this post in English, click here. Hacía tiempo que teníamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la segunda lengua más hablada en el mundo, [...]
Read Moree-pts resources, patient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
Announcing: the e-Patient White Paper, in Spanish
It’ s been a long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish, click here. From the editors of the Spanish edition, Elia Gabarrón and Luis Fernández [...]
Read Morepolicy issues, positive patterns, research issues
Agency seeks *patients*(!) for Patient Centered Outcomes project. Too few are stepping up! (You??)
Corrections 8:45 pm ET Monday 10/24: This post’s title originally said HHS was seeking patients. Actually it’s PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn’t part of HHS. The title also said “None are stepping up,” which disrespected those who had. “Too few” is better. As [...]
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“Know Your Numbers”: new music video parody that gets good things stuck in your ear
It’s wise to make healthy things fun, and even wiser to make them social (as touted by SPM member Phil Baumann RN’s Health Is Social). This week at the Mayo Center for Social Media, guru Lee Aase (@LeeAase) introduced a program that does both: a catchy music video that will stick in your ear, and [...]
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Conference Season: Patients and Caregivers Welcome
We are deep into the fall conference season. One of my favorite trends is the increasing rate of inclusion of patients and caregivers at health care events, on stage or in the audience. The California HealthCare Foundation was a pioneer in this regard. Patients 2.0, an off-shoot of Health 2.0, and e-Patient Connections represent a [...]
Read Moremedical records, policy issues, positive patterns, research issues, Why PM
ONC’s new Query Health initiative – what’s in it for e-Patients?
This is a guest post by SPM member John Sharp, Manager of Research Informatics at the Cleveland Clinic. John gets it about how information empowers healthcare and e-patients. I first met him at Medicine 2.0 in Toronto, 2009, after which he wrote an article for our Journal of Participatory Medicine, which began: “If you have not [...]
Read Morefound on the net, positive patterns
“Listening to the Patient Voice” – a Planetree story
I’ve long been surprised that Planetree.org is not better known by everyone who talks about patient-centered care, patient engagement, etc. I attended one of their webcasts in April and wrote about a great booklet they discussed. I’m taking the liberty of pasting in here an item from their latest e-newsletter, because it illustrates how they think and how things [...]
Read Moree-patient stories, positive patterns, pt/doc co-care
e-Patient Classic: Elyse Chapman, April 2009
Today I heard from a friend who’s had a tumor discovered. S/he decided to fire the current doctor, who would not return phone messages and was “intellectually lazy” – not interested in pursuing ideas my friend brought up that might require some effort but could definitely refine the treatment plan. The whole “let patients help” [...]
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