pt/doc co-care


Patient Conference Participation, positive patterns, pt/doc co-care, pts as teachers, reforming hc, Stanford Medicine X, trends & principles

VIDEO: How Patients are Helping Change Medical Journals: BMJ’s Tessa Richards at MedX 2015

There can be no question that Stanford Medicine X is, head and shoulders, the most patient-oriented medical conference in the world. Susannah Fox first wrote about it here in 2012 after the first annual event, and it’s gotten better every year. I agree with what she wrote about the event’s organizer, Larry Chu MD: “Larry appeared […]

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e-pts resources, general, medical records, pt/doc co-care, pts as teachers, shared decision making, trends & principles

Guest Post by Mary Beth Schoening: a Definition of the Engaged Patient

This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy behaviors.  As a digital health strategist, she has developed strategies and tools to engage both […]

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e-pts resources, news & gossip, positive patterns, pt/doc co-care, shared decision making, trends & principles

A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article

A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are better than nothing, none is near perfect, and some are junk. Learn, but as with all […]

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e-patient stories, e-pts resources, key people, policy issues, pt/doc co-care, shared decision making, trends & principles

On Making Patient Reviews of Physicians More Useful

I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The Brookings Institution) and Casey Quinlan (Mighty Casey Media) following their interesting back-and-forth online […]

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key people, net-friendly docs, positive patterns, pt/doc co-care

Guest Post by Matthew Katz, MD: E-Patients Deserve E-Doctors

Matthew S. Katz, MD, is the Medical Director of Radiation Oncology at Lowell General Hospital and a lifetime member of S4PM. He is former Chair of Communications Committee for the American Society for Radiation Oncology (ASTRO) and external advisor for Mayo Clinic’s Center for Social Media. He is co-moderator of the #radonc journal club and […]

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e-pts resources, found on the net, others' e-patient stories, positive patterns, pt/doc co-care, pts as teachers

“Inside Medicine at Weill Cornell: Meeting in the Middle”

Weill Cornell produced a series of mini-documentary style videos showcasing mentoring at their institution. This final video specifically focuses on how patients mentor their students. Go Weill Cornell! Let’s hope we will find out more about their LEAP (Longitudinal Educational Experience Advancing Patient Partnerships) program!

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others' e-patient stories, positive patterns, pt/doc co-care

“The perfect thing a doctor can tell a patient with chronic illness”

That’s the title of a new post on the Mighty blog written by Catherine Richardson, a 23-year-old chronic illness patient from Vancouver, Canada, who also blogs at It’s about something simple, but helpful, that her doctor told her, which illustrates the sense of “We’re in it together” that e-patients so often seek from their clinicians. After listing some of […]

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net-friendly docs, news & gossip, pt/doc co-care, Why PM

New Participatory Medicine Resources for Providers

Ever since the formation of the Society for Participatory Medicine we have discussed curating and sharing resources about participatory medicine. The resources might be videos, websites, blog posts, tutorials, and other online resources that could benefit patients, caregivers, and clinicians. For obvious reasons we thought to focus first on patient/caregiver resources. But because of the many […]

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general, medical records, policy issues, pt/doc co-care

Patient Advocates Fight for Access to Medical Data: ‘It’s a Matter of Life and Death’ (KQED)

The advo-cacy of individual SPM members is gaining increasing visibility in the mainstream media, driving home the human impact of policies that help – or don’t help – patients be active contributors to their families’ health and care. This is excruciatingly important as America debates the proposed rule changes for patient data access mentioned here last […]

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e-patient stories, e-pts resources, general, key people, patient networks, pt/doc co-care, pts as teachers

Guest post by Annette McKinnon: Power Equality: Why Is My Silo Two Miles Away?

This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid arthritisfor the past 30 years, and has a background in market research. She attended […]

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