Society for Participatory Medicine
e-patients.net blog
pt/doc co-care
general, others' e-patient stories, policy issues, pt/doc co-care, pts as teachers, shared decision making, trends & principles
Angelina Jolie, BRCA1, Public Health, Patent Law — & the Empowered Patient
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is clearly trying to get the message out that radical choices must sometimes be made in order to increase one’s chances of [...]
Read Moregeneral, key people, medical records, PM Tech, policy issues, pt/doc co-care, reforming hc
SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine’s Public Policy Committee completed a last-minute blitz and submitted comments in response to the Office of the National Coordinator for Health [...]
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Clinicians are from Mars, e-Patients are from Venus
Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between patients, caregivers, clinicians and health care systems. Caring about best health and getting [...]
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Medication Management: Experience of Engaged Clinicians and Empowered Patients
The overlap between the clinical aspects of our health journey and behavior of health team members occurs most often in medication management. Effective medication management depends on empowered, informed patients and caregivers prepared for clinician visits, and engaged clinicians skilled at working with activated patients. This strong relationship of health team members advances patient safety, [...]
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The Case for Being On Top of Your Case
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today – lack of coordination – and makes a compelling case for patients and families to be engaged in every case, to the full extent of their [...]
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Our latest “doctor as e-patient”: SPM member Leana Wen
It’s less common today but people used to think empowered patients were anti-doctor. One part of our response on this blog was to point out the many clinicians who are e-patients themselves, as in Let’s hear it for the d-patient e-patients (with dozens of comments). This guest post by SPM member Leana Wen, MD (Twitter: @DrLeanaWen) is another, about [...]
Read Moregeneral, policy issues, pt/doc co-care, reforming hc
Meaningful Use Stage 3 – Society for Participatory Medicine Comments on Proposed Objectives
The Health IT Policy Committee of the Office of the National Coordinator of Health IT released its proposed Stage 3 objectives for Meaningful Use. ”Eligible Providers” that meet these objectives share in the federal electronic health record incentive program under the HITECH Act. (Learn more at HealthIT.gov; here’s some more background on the Stage 1 [...]
Read Moregeneral, key people, news & gossip, positive patterns, pt/doc co-care, research issues, shared decision making
“The Patient as Partner” in Medical Research at Radboud University
This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the heavily patient-centric Future of Health conferences, which started with TEDx Maastricht 2011. Editorial note: I heavily edited [...]
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When the doctor-patient relationship splits up (Boston Globe)
In the Society for Participatory Medicine we talk about professionals and patients being full partners in care. And sometimes, as in any partnership, the two part. Have you ever “fired” anyone? Before it got to that point, did you express your concern (“I want to talk about something”)? In the In Practice column in today’s [...]
Read Moregeneral, medical records, PM Tech, pt/doc co-care
ONC’s new visual companion to their great vids about EHRs
Most of our readers are familiar with the brief animated video introduced last summer by ONC, the health IT group in the US government. (If you haven’t seen it, you can watch it below, in long and short versions.) Now they’ve introduced a new poster (click the tiny version at right) that conveys the same [...]
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