pt/doc co-care

 

pt/doc co-care, reforming hc, trends & principles

“Inviting the patient’s perspective” paper: today’s needs, 25 years ago *this week!*

March 1, 1992. 25 years ago. Yesterday I asked When was “Enriching the relationship by inviting the patient perspective” published? The words in that paper’s abstract [right] could have been written today – literally every word. It was printworthy a quarter century ago Wednesday, and it still is today. Why? It’s appeared here repeatedly: despite the scientific nature […]

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general, pt/doc co-care, trends & principles

Quiz: When was “Enriching the relationship by inviting the patient perspective” published?

Do not go look this up. I’ll post the answer tomorrow. We on this blog know Dr. Tom Delbanco as, among other things, the “father” of OpenNotes, along with “co-parent” Jan Walker, RN MBA. (For a history lesson, Tom’s also the lead author on the wonderful 2001 paper “Healthcare in a Land Called PeoplePower,” which […]

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general, positive patterns, pt/doc co-care, reforming hc

Dell Medical School and the Future of Care

In 2009, along with several physicians, patients and health activists, I helped form the Society for Participatory Medicine, a nonprofit promoting “a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.” I was drawn into discussions about […]

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e-patient stories, e-pts resources, key people, medical records, net-friendly docs, positive patterns, precision medicine, pt/doc co-care

Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care

This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on realizing improved health status for populations through unique, individualized approaches.   A funny thing happened on my recent annual […]

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pt/doc co-care

Person-Centered #CarePlanning – What data?

Last month, in Communicate What? #CarePlanning, I declared the #CarePlanning hashtag, and told from personal experience the importance of communication in enabling participatory care. I ended with this – my perspective as the person who has the problem and the only person who is always there at the point of care: I have goals and a […]

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pt/doc co-care

Communicate What? #CarePlanning

I want to share a family story and show how it connects to something we’ll all face, where real participatory thinking – and communication – make all the difference. My wife and I built a house together – the whole house, everything except drilling the well. While building, living in it and improving it over […]

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e-patient stories, how I became an e-patient, net-friendly docs, positive patterns, pt/doc co-care

Thanksgiving Letter to my Doctor

Coming from Romania 15 years ago, Thanksgiving was not a big thing for me. I didn’t quite grasp the holiday. My husband cooked and celebrated, and I helped and observed it in a detached way. 11 years ago, it was the Wednesday before Thanksgiving. I was 22 weeks pregnant; I was waiting for a test […]

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medical records, policy issues, positive patterns, pt/doc co-care, trends & principles

A first: Participatory Medicine thinking in the Harvard Business Review

As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we’ve been advocating since 2009: Participatory Medicine is a model of cooperative health care that seeks to achieve active involvement by patients, professionals, caregivers, and others across the continuum […]

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general, policy issues, positive patterns, pt/doc co-care, trends & principles

OpenNotes hits TEN MILLION patient level

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the same page,” is no joke: I was one of the subjects in the study, and I’ve […]

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pt/doc co-care, reforming hc

How can we cope with uncertainty?

We’ve written often about uncertainty, which is a recurring challenge in medicine and especially in participatory medicine, where issues of relationship and decisions are core. Some doctors have told me they were trained to display certainty even when things aren’t sure, and many patients (in my experience) want certainty about their diagnoses, or at least want their clinicians to […]

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