Society for Participatory Medicine
e-patients.net blog
pt/doc co-care
demographics, positive patterns, pt/doc co-care
The Rise of the e-Patient
Lee Rainie, director of the Pew Internet Project, presented this wonderful overview of the Project’s health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research Center’s Internet & American Life Project Another summary of the Project’s health research is the [...]
Read Morepositive patterns, pt/doc co-care, reforming hc, Why PM
MIT Media Lab’s Health & Wellness 2012: ten day innovation fest, six us-centered projects
Updated 9:38pm ET – fixed many broken links :-/ I’m spending today (ONLY today, unfortunately) at the MIT Media Lab’s third annual Health & Wellness Innovation event. It’s a two week competition – six teams pursuing some terrific ideas for the most patient-friendly health innovations I’ve ever heard of. Or close to it. I’ll write [...]
Read MoreJoPM, others' e-patient stories, positive patterns, pt/doc co-care, reforming hc
A physician who really understands patient-centered care
The Journal of Participatory Medicine has just published “The Patient Will See You Now,” a thought-provoking and rather moving narrative by John Krueger, MD. In telling his own story of becoming and maturing as a physician, the author persuasively argues that the key to practicing patient-centered medicine is devoting time to listen to patients’ stories [...]
Read Moree-pts resources, positive patterns, pt/doc co-care
Two great posts on how patients can be responsible for their care
In the Society for Participatory Medicine we talk about patients shifting “from being mere passengers to responsible drivers of their health.” Two posts Tuesday from SPM members provide some great specifics. First, orthopedist @HJLuks published Your Role in Avoiding Medical Errors, 101. A few highlights – see the whole post: “Look at your medical record. [...]
Read Moremedical records, policy issues, pt/doc co-care, reforming hc, shared decision making, Why PM
Alert: Lawrence Weed, father of the Problem Oriented Medical Record, looks ahead
The excellent ICMCC daily newsletter just alerted me to this item from Permanente Journal: Interview with Lawrence Weed, MD – The Father of the Problem-Oriented Medical Record Looks Ahead. I hope to absorb it in the next day or two, and I invite people who know this history to do the same. It’s deep, and it’s connected [...]
Read Moree-pts resources, patient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
Libro Blanco de los e-Pacientes en Español
To read this post in English, click here. Hacía tiempo que teníamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la segunda lengua más hablada en el mundo, [...]
Read Moree-pts resources, patient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
Announcing: the e-Patient White Paper, in Spanish
It’ s been a long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish, click here. From the editors of the Spanish edition, Elia Gabarrón and Luis Fernández [...]
Read Morept/doc co-care, pts as teachers, shared decision making, Why PM
Action in the face of uncertainty
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction. Sometimes I hear of patients who believe their physicians dissed a proposed or experimental [...]
Read Moregeneral, key people, policy issues, pt/doc co-care, reforming hc, trends & principles
Lab Results for All! Of Data Liberation, Participatory Medicine, and Government 2.0
On September 14, HHS released for comment draft lab results regulations that will, if finalized, effectively bathe the Achilles’ heel of health data in the River Styx of ¡data liberación! Lab results will be made available to patients, just like all other health data. (See the HHS presser and YouTube video from the consumer health [...]
Read Morepatient networks, pt/doc co-care
When Patients Band Together: Far From a Disgrace
When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a very nice piece in the Wall Street Journal about how [...]
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