Society for Participatory Medicine
e-patients.net blog
pt/doc co-care
e-patient stories, positive patterns, pt/doc co-care
e-Patient Classic: Elyse Chapman, April 2009
Today I heard from a friend who’s had a tumor discovered. S/he decided to fire the current doctor, who would not return phone messages and was “intellectually lazy” – not interested in pursuing ideas my friend brought up that might require some effort but could definitely refine the treatment plan. The whole “let patients help” [...]
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New FDA book: “Communicating Risks and Benefits: An Evidence-Based User’s Guide”
Guest post by SPM member Gangadhar Sulkunte. We posted his family’s e-patient story two years ago. The FDA’s Risk Communication Advisory Committee has published a PDF book called ”Communicating Risks and Benefits: An Evidence-Based User’s Guide.” It’s meant to help healthcare practitioners and researchers communicate their work with patients, care givers and the public at [...]
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Communication, A Vital Skill for Participatory Medicine
Guest post by SPM member Nancy B. Finn, author of the forthcoming book e-Patients Live Longer: The Complete Guide to Managing Your Health Using Technology. Participatory medicine depends on the availability of health information to all members of a care team. Communication – the exchange of thoughts, opinions, or information by speech, writing, video or signs [...]
Read Moregeneral, medical records, pt/doc co-care, Why PM
Introducing Sue Woods, new SPM board member
The Society for Participatory Medicine recently named three new board members. They’ve been introduced to the members on our private listserve, and we’ve been thinking about introducing the new leadership to the public here. One is Sue Woods MD MPH, a potent and high-energy advocate for patient engagement and full access to medical records, at the Veterans [...]
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“Don’t you wanna know??” A proposed PSA about asking questions
Now up on YouTube: You, the patient, are a vital component of medical decision making. Believe it or not, it’s worth your effort to find out about your treatment options! This informal FlipCam vignette models a physician encouraging the patient to ask: “Don’t you want to know??” Cast: Pat Mastors as the empowering physician, and [...]
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“Dumb patients? No way. It’s only normal behavior and status-quo clinical care.”
SPM member Sue Woods, of Oregon Health and Science University and the Veterans’ Administration, has posted a terrific response to CNN.com’s “Ten dumb things you do at the doctor’s office” and to our discussion of it here. Titled Dumb patients? No way. It’s only normal behavior and status-quo clinical care, it’s great. For each “dumb [...]
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The Evidence for and Experience of Engaging in Health Care: Jessie Gruman’s powerful speech at ICSI
Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including: Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about which I’ll be writing soon. (Jessie is founder and president of the excellent Center For [...]
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CNN: “10 dumb things you do at the doc’s office”? Discuss.
Additions late 5/30/11: First, once again the comment discussion has colored some people’s view, including mine, of this discussion. That’s good. Second, in response to comments, I made a couple of edits, striking through the old text, and tonight I discovered the strike-throughs didn’t take. I’ve fixed that, but I apologize for any confusion. Anyway, [...]
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Safety net populations do benefit from online PHRs: poster at ICSI/IHI Colloquium
The Society for Participatory Medicine was well represented last week at the 14th ICSI/IHI Colloquium. (ICSI is the Institute for Clinical Systems Improvement, a small midwestern think tank that’s way too poorly known.) SPM members who presented: Jane Sarasohn-Kahn of Health Populi gave the keynote for Day 2 Jessie Gruman, four time cancer patient and [...]
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Participate in SPM’s glossary project: Abbreviations, Acronyms, and Alphabet Soup
Guest post by medical transcriptionist Kathy Nicholls, member of the Society for Participatory Medicine. This idea grew out of a discussion on the SPM members listserv. To join, see instructions at bottom. The world of health care is filled with abbreviations. Sometimes that makes it really hard to understand what’s being said in the medical [...]
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