pts as teachers


positive patterns, pts as teachers, reforming hc, research issues, trends & principles

BMJ seeks more patients to be reviewers on articles about their conditions

This is a call for patient participation. We’re especially inviting members of our Society, but it’s open to anyone; feel free to circulate widely, especially to people with the conditions listed below! First, a bit of background, then the request. Regular readers know that the BMJ (formerly the British Medical Journal) is far and away […]

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Patient Conference Participation, positive patterns, pt/doc co-care, pts as teachers, reforming hc, Stanford Medicine X, trends & principles

VIDEO: How Patients are Helping Change Medical Journals: BMJ’s Tessa Richards at MedX 2015

There can be no question that Stanford Medicine X is, head and shoulders, the most patient-oriented medical conference in the world. Susannah Fox first wrote about it here in 2012 after the first annual event, and it’s gotten better every year. I agree with what she wrote about the event’s organizer, Larry Chu MD: “Larry appeared […]

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pts as teachers, reforming hc, trends & principles, Why PM

Watch: Webcast – patient engagement from the patient’s point of view

This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy behaviors.  As a digital health strategist, she has developed strategies and tools to engage both […]

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e-pts resources, general, hc's problem list, key people, Patient Conference Participation, patient networks, positive patterns, pts as teachers, shared decision making

Sep 26 – Patient Summit on Diagnosis in Alexandria, VA

To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of the pre-conference program of the Diagnostic Error in Medicine conference and takes place […]

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found on the net, positive patterns, pts as teachers, research issues

Crohnology blog: “Doctor Thyself: How Patients Self-Care”

The site Crohnology, well known patient community for patients with IBD (Inflammatory Bowel Disease), recently started focusing their blog on explaining IBD- focused research to patients. Their most recent blog post describes a study that studied what patients with IBD do for self-care. This is a topic dear to our hearts and we are doubly thrilled […]

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e-pts resources, Patient Conference Participation, pts as teachers, reforming hc, trends & principles

Conference Organizers to Affected Patients: “Go Fund Yourself”!

SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund yourself” moment, is captured in this guest post. During the Holidays, I carry on a time-honored tradition in my family: […]

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e-pts resources, found on the net, others' e-patient stories, positive patterns, pt/doc co-care, pts as teachers

“Inside Medicine at Weill Cornell: Meeting in the Middle”

Weill Cornell produced a series of mini-documentary style videos showcasing mentoring at their institution. This final video specifically focuses on how patients mentor their students. Go Weill Cornell! Let’s hope we will find out more about their LEAP (Longitudinal Educational Experience Advancing Patient Partnerships) program!

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e-pts resources, general, key people, Patient Conference Participation, pts as teachers

Guest post by Annette McKinnon: Power Equality: Not Even on the Radar

This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid arthritisfor the past 30 years, and has a background in market research. She attended […]

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e-patient stories, e-pts resources, hc's problem list, key people, others' e-patient stories, pts as teachers, social media

Guest post by Duncan Cross: I Sent This Letter To A Doctor Who Pissed Me Off

Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross’s post illustrates so many aspects of how empowered, engaged, activated patients view their lives, and how important it is to have an effective partnerships with their medical professionals. This is exemplary – except for the physician’s rejection […]

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