reforming hc


ethics, PM Tech, policy issues, positive patterns, reforming hc, trends & principles

Key legal victory moves medical device patients one small step closer to full access to their data

For whose benefit does the healthcare industry exist? For the investors, or the people whose needs are the reason for the industry? Facebook last night was celebrating a small but significant legal victory this week for the “gimme my DaM data” movement (“Data about Me”), of whom super-e-patient Hugo Campos is a well known example. […]

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reforming hc, Why I joined

How can we achieve shared work, connection, and communication?

Peter Elias MD is a member at large on SPM’s board of directors. He’s a primary care physician in Maine who, when I first met him at a speaking event, said he’s always practiced this way but didn’t know it had a name – participatory medicine. He’s active both in our member community and in our executive committee’s biweekly […]

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policy issues, reforming hc

Sure to be a complex controversy: “Concurrent surgery” (Boston Globe Spotlight series)

Ah, the world of social media. This morning’s Boston Globe “Spotlight” investigative team (which won a Pulitzer in 2003) has this, citing local superstar hospitals Massachusetts General and its sister hospital, Brigham & Women’s. Within an hour the discussion got so meaty that I knew we had to move it here, because Facebook threads basically disappear in a […]

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positive patterns, reforming hc, trends & principles, Why PM

“When someone else speaks for you, you lose”: patient empowerment as a civil rights movement

Here’s something I’ve never done: I’m capturing a comment from this blog five years ago and making it a post of its own, so it’s easier to find, because I think this is going to be more and more of an issue. It’s clearer and clearer that, as SPM board member-at-large Peggy Zuckerman says, patient empowerment is becoming […]

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Patient Conference Participation, positive patterns, pt/doc co-care, pts as teachers, reforming hc, Stanford Medicine X, trends & principles

VIDEO: How Patients are Helping Change Medical Journals: BMJ’s Tessa Richards at MedX 2015

There can be no question that Stanford Medicine X is, head and shoulders, the most patient-oriented medical conference in the world. Susannah Fox first wrote about it here in 2012 after the first annual event, and it’s gotten better every year. I agree with what she wrote about the event’s organizer, Larry Chu MD: “Larry appeared […]

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pts as teachers, reforming hc, trends & principles, Why PM

Watch: Webcast – patient engagement from the patient’s point of view

A guest post from member Jeffrey Halbstein-Harris – this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout their life. I was leaving a meeting of healthcare policy experts […]

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e-pts resources, Patient Conference Participation, pts as teachers, reforming hc, trends & principles

Conference Organizers to Affected Patients: “Go Fund Yourself”!

SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund yourself” moment, is captured in this guest post. During the Holidays, I carry on a time-honored tradition in my family: […]

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general, reforming hc

No Rhyme or Reason

We have read and heard a lot about the disparities in the cost of care from one hospital or clinic to another. We have read and heard a lot of grumbling about the uneven availability of health care services in this country. Many of us have been outraged to learn that Pharma companies can charge […]

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e-pts resources, general, medical records, policy issues, pt/doc co-care, reforming hc, trends & principles

#NoMUwithoutME: Primary School Edition

        Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your records. Ideally, electronic versions of your records that you can look […]

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