Society for Participatory Medicine
e-patients.net blog
reforming hc
general, medical records, policy issues, reforming hc
SPM’s responses to the proposed rules for Meaningful Use Stage 2
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: “How often, before this administration, did Washington make it truly easy for anyone to tell their story, from home? This administration is really open to this, and I [...]
Read Moree-pts resources, reforming hc
“The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data
Updates: The text below the video was added later on 4/17, and the graphic was added 4/18. For me the evidence highlight of TEDMED last week was a talk by Ben Goldacre MD (@BenGoldacre), a charming and articulate doctor who’s dug deeply into what seems to be scurrilous business: suppression of evidence that doesn’t favor [...]
Read Morehc's problem list, reforming hc
Help TEDMED focus on what patients want. Vote.
Correction 4/12: I’m glad to say that there are in fact several patient speakers at TEDMED. There was a massive communication disconnect in the months leading up to this TEDMED, leading to my impression that there were no patient speakers; I hope to find out how it happened. So I’m editing out those points in [...]
Read Moree-pts resources, PM Tech, reforming hc, trends & principles
Self-Service Healthcare?
In a recent commentary on the American Public Media program Marketplace Money, Francis Frei discussed the failure of self check-out at supermarkets. Her insightful commentary is clearly based on both personal experience as well as her professional knowledge of operations management and customer behavior (she is a professor at Harvard Business School). The piece is [...]
Read Morepolicy issues, reforming hc
What happens when an engaged consumer tries to help control costs?
Since November I’ve been blogging on my personal site about what happens when a patient tries to help control costs, in my cost cutting edition posts. Most recently I noted that this stuff takes time, especially since our glorious American healthcare system seems to be set up to block our access to what things actually [...]
Read Moregeneral, news & gossip, policy issues, reforming hc, trends & principles
The Government’s Assault on Women’s Health
I’m a little confused… I’m not sure where the U.S. Constitution guaranteed the government’s right to interfere with the doctor/patient relationship. Nowhere in this historic document could I find anything about the government’s right to dictate how women’s health and reproductive health (but not men’s) are areas appropriate to government interference. (You won’t find it [...]
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Michael Millenson: Will health reform move patient-centeredness to center stage?
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient’s voice grown from an ethical demand of the patient rights movement into a series of specific, measurable behaviors? That question, and issues [...]
Read Morepolicy issues, pts as teachers, reforming hc
Regina Holliday’s testimony at NCVHS
SPM member Regina Holliday is known for her “Walking Gallery” of painted jackets, each telling one person’s healthcare story, which she relates in an accompanying post on her blog. On Tuesday she became the latest e-patient to testify at a meeting of NCVHS, the National Committee on Vital & Health Statistics. The slides she presented [...]
Read Moregeneral, policy issues, reforming hc, research issues, shared decision making
Save the Date: PCORI’s National Patient and Stakeholder Dialogue
We encourage our readers to attend this February 27 event and help PCORI shape its agenda for clinical effectiveness research. You can find a link to their draft priorities by clicking to this page. Registration for the forum is required; please see the link in the press release below. The Patient-Centered Outcomes Research Institute (PCORI) [...]
Read Moregeneral, patient networks, pt/doc co-care, pts as teachers, reforming hc
An e-patient issues an RFP, saying what’s important to him
It’s funny how things turn out sometimes. Lately I’ve written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn’t you know it, life has provided me with a case study – myself. Last week [...]
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