reforming hc

 

e-pts resources, general, medical records, policy issues, pt/doc co-care, reforming hc, trends & principles

#NoMUwithoutME: Primary School Edition

-+*        Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your records. Ideally, electronic versions of your records that you can look […]

Read More
medical records, news & gossip, policy issues, reforming hc

“No MU without ME”: join the campaign to fight health data hiding

-+*Several edits made, 1-2pm There is a movement underway – a movement for patient liberation and autonomy – and the empire is striking back, interfering with our efforts. We – the whole movement, not just SPM – need your help. If you’re in a hurry, skip down to the Do this first section. But come back […]

Read More
general, policy issues, reforming hc, research issues

PHI Data Breaches May be Increasing, But It’s Not Impacting Our Sharing

-+*According to a new study in JAMA, data breaches into people’s protected health information (PHI) records are increasing: “[The] study that found almost 30 million health records nationwide were involved in criminal theft, malicious hacking or other data breaches over four years,” notes the AP reporting on the study. That’s a lot of data theft. […]

Read More
general, JoPM, news & gossip, reforming hc

“Lighting Goes to Ground”: Peter Elias responds to Paul Levy in JoPM

-+*Perhaps it’s time for an argument about how we’re doing this. Many of us in the Society for Participatory Medicine have long noted that what we’re up to here is nothing less than full-bore culture change. In my own speeches I often note that culture is the set of shared beliefs about what’s possible and expectations […]

Read More
news & gossip, PM Tech, policy issues, reforming hc, trends & principles

SPM survey in Times Square: “Americans believe their medical data should be shared with their providers”

-+*National Survey Also Shows 87% Think Health Information Exchange Should be Free First paragraph updated next day In case you missed it last month, there was an unprecedented, huge moment in SPM’s history – we collaborated in a national survey of Americans’ views and wants regarding something we at SPM hold dear: getting doctors to make […]

Read More
policy issues, positive patterns, reforming hc, trends & principles

Health Affairs: patient activation impact on cost + outcome

-+*In a study report hitting the digital wires on Health Affairs at 4pm Eastern time today (March 2, 2015), a group of researchers are reporting the results of a longitudinal study of Patient Activation Measure (PAM) impact on cost and outcome metrics from a large study cohort. The results show that activated, engaged patients have better outcomes, at […]

Read More
e-pts resources, key people, net-friendly docs, news & gossip, policy issues, reforming hc, research issues

NLM Director Donald Lindberg is retiring. Speak up: what’s next for the Library?

-+*Dr. Donald Lindberg, long-time director of the National Library of Medicine, is surely the single most-quoted authority from “Doc Tom” Ferguson’s e-Patient White Paper. In almost every speech I’ve given in the past five years I’ve used Doc Tom’s quote of Dr. Lindberg in the White Paper: “If I read and memorized two medical journal articles […]

Read More
medical records, policy issues, positive patterns, pt/doc co-care, reforming hc

OpenNotes in the BMJ: the message goes global, adoption is international

-+*Our Society for Participatory Medicine is all about effective patient-clinician partnerships, and to us that simply requires patient access to all information about the case. As SPM co-founder Dr. Danny Sands often says in his speeches, “How can patients participate if they can’t see what I see??” So, naturally, this blog has been one of the biggest, […]

Read More
general, news & gossip, patient networks, positive patterns, pt/doc co-care, reforming hc, Stanford Medicine X, trends & principles

Big BMJ supplement on Patient Centred Care – with many SPM and MedX voices

-+*This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal) released a big, 21 article “Spotlight” supplement on “patient centred care.” The print edition is due out tomorrow, […]

Read More
general, policy issues, positive patterns, reforming hc

The movement gets real: one of Doc Tom’s sightings gets $28 million with Iora Health

-+*There are times in a movement when value is revealed and recognized, and you know something real is happening. In the engaged-patient movement, the first I noticed was when Amy Tenderich’s Diabetes Mine blog (and its community) was acquired several years ago. That takes it from what some people might view as “clubby” to tangible […]

Read More