Society for Participatory Medicine
e-patients.net blog
research issues
e-pts resources, news & gossip, research issues
Former NEJM editors on the corruption of American medicine (NY Times)
This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading “Today’s update.” As we said in December, an e-patient essential is sorting out what writings to trust, whether we find them online or in print. There’s an important update on this in [...]
Read Morefound on the net, general, positive patterns, research issues
Patients: Your Researcher Will See You Now!
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15. Patient voices are needed now! The Patient Centered Outcomes Research Institute (PCORI) [...]
Read Moreresearch issues, trends & principles
What’s the future for self-tracking?
Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users age 18+ track their own health data online. There [...]
Read Moregeneral, policy issues, reforming hc, research issues, shared decision making
Save the Date: PCORI’s National Patient and Stakeholder Dialogue
We encourage our readers to attend this February 27 event and help PCORI shape its agenda for clinical effectiveness research. You can find a link to their draft priorities by clicking to this page. Registration for the forum is required; please see the link in the press release below. The Patient-Centered Outcomes Research Institute (PCORI) [...]
Read Moregeneral, positive patterns, research issues, trends & principles
Opening the Door to Closeted Science
NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of us. Only in the past six months did [...]
Read Moree-pts resources, research issues
Once again: e-patient essential – sorting out what writings to trust
A prime benefit of individual membership ($30) in our Society for Participatory Medicine is the right to participate in our members-only listserv. It was pretty sleepy a year ago, but these days it’s a hotbed of juicy discussions. Here’s something that arose Thursday. Following a discussion of a controversial clinic, Fred Trotter (one of our [...]
Read Moree-pts resources, positive patterns, research issues
Health News Review gets its second makeover. With comments!
We’ve often cited Gary Schwitzer’s Health News Review (@HealthNewsRevu on Twitter) as an invaluable e-patient resource. With a structured ten point evaluation process, the site’s many trained reviewers evaluate the reporting of health news. We reported on their first makeover two years ago, and they’ve just announced another. I like it – especially the new name [...]
Read Moremedical records, positive patterns, research issues, trends & principles
EHR data spurs real-time evidence-based medicine (NEJM / Health IT Exchange)
Wow. Todd Park, Chief Technical Officer at HHS, ought to be jumping out of his skin with joy at this one. This time, House, M.D. fans, it was lupus. The article “Evidence-Based Medicine in the EMR Era” published in the Nov. 10 issue of the New England Journal of Medicine might have read like a House television script, but it was a real-life glimpse of [...]
Read Morepolicy issues, positive patterns, research issues
Agency seeks *patients*(!) for Patient Centered Outcomes project. Too few are stepping up! (You??)
Corrections 8:45 pm ET Monday 10/24: This post’s title originally said HHS was seeking patients. Actually it’s PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn’t part of HHS. The title also said “None are stepping up,” which disrespected those who had. “Too few” is better. As [...]
Read Moree-pts resources, research issues, understanding statistics
e-Patient Training via TED Talk: “Battling Bad Science”
We’ve often said here that when an e-patient wants to be responsible for treatment decisions, it’s essential to know how to evaluate the research about each option. A common mistake is to trust, blindly, news reports about a treatment, or even to trust, blindly, the journal articles that our clinicians read. Ben Goldacre (Twitter @BenGoldacre) [...]
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