research issues

 

ethics, general, policy issues, positive patterns, pts as teachers, research issues, Why PM

Partnering with patients – about patient centered RESEARCH METHODS

This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine, as the professions begin to understand the value […]

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e-patient stories, found on the net, news & gossip, positive patterns, reforming hc, research issues, trends & principles

Health Affairs Patient Engagement Edition – with videos and commentary

The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog post. It’s worth reading, it has other interesting tidbits. The briefing was […]

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research issues

PCORI Board Meeting, San Francisco, February 9, 2013

The Patient Centered Outcomes Research Initiative (PCORI) was established in 2010 by the Affordable Care Act with a mission to help people make informed health care decisions, and improves health care delivery and outcomes, by producing and promoting high integrity, evidence-based information that comes from research guided by patients, caregivers and the broader health care community and a vision […]

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research issues

Research – Route funding through consumer organizations

This is the third of 3 recommendations a group of Boston-based PCORI Ambassadors made to the PCORI Board in November. The first was Expanding the Scope of Research Questions Funded, the second, Micro-contracts.  Researchers typically struggle to include patients/consumers in their research design, implementation, and dissemination. The power dynamic favors the researcher, not the patient. Government and industry […]

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research issues, shared decision making

Finally! An initiative from *within* science to reproduce studies. (And not everyone likes it.)

Correction Monday morning: the project is called the Reproducibility Initiative, not Project. Also, note that we got a comment from co-founder Elizabeth Iorns – discuss! I happened to catch friend Ivan Oransky of RetractionWatch on NPR’s Science Friday last week, and caught an item that excites me because it could strengthen one of the pillars of […]

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research issues

PCORI and Micro-Contracts

Susan Woods responded to my previous post, PCORI and Just-In Time Decisions with the research funding system doesn’t really work for anyone. It is in concrete, Agreed.  Micro Contracts could be a small intervention that could help move the dial. (As a reminder, the Boston contingent of PCORI ambassadors, including S4PM member, Ken Farbstein, made three recommendations to the PCORI […]

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policy issues, research issues

Science Fraud site is shut down by legal threats

Jan. 3 update: See important update at bottom – the site owner has identified himself. I’m extremely troubled by this development, so much so I’m stopping a tight-deadline task to write this. Let’s hope that as things unfold this will resolve. Ivan Oransky, executive editor of Reuters Health, and Adam Marcus run the Retraction Watch blog, […]

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e-patient stories, general, research issues, understanding statistics

“Arm” ourselves with information: Health News Review and 2009′s “war on cancer” post

Some things are what they call “evergreen” – persistent value, never out of date. Two come together for this year-end post. __________ A lot’s changed since our society was formed in 2009, but year after year a core skill for participatory medicine is ability to think for ourselves (including providers) equipped with good information (which is distinctly […]

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policy issues, research issues, shared decision making

PCORI and Just-in-Time Decisions

SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make short blog posts about things like this!” And he did.  SPM members are welcome to write […]

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general, key people, news & gossip, positive patterns, pt/doc co-care, research issues, shared decision making

“The Patient as Partner” in Medical Research at Radboud University

This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the heavily patient-centric Future of Health conferences, which started with TEDx Maastricht 2011. Editorial note: I heavily edited […]

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