Society for Participatory Medicine
e-patients.net blog
shared decision making
general, policy issues, reforming hc, research issues, shared decision making
Save the Date: PCORI’s National Patient and Stakeholder Dialogue
We encourage our readers to attend this February 27 event and help PCORI shape its agenda for clinical effectiveness research. You can find a link to their draft priorities by clicking to this page. Registration for the forum is required; please see the link in the press release below. The Patient-Centered Outcomes Research Institute (PCORI) [...]
Read Morefound on the net, general, shared decision making
Peter Elias: Empowerment and collaboration
Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author’s blog, PeterEliasMD (personal observations and perspectives. I was struck last week by a remark in a discussion of patient-centric care: “…patient empowerment is [...]
Read Moremedical records, practice variation, pts as teachers, reforming hc, shared decision making, Why PM
HBR blog: “The trouble with treating patients as consumers”
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the paste-ins for this post, I was struck again [...]
Read Moregeneral, hc's problem list, policy issues, shared decision making
For some people, it’s still 1994
Here’s a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences library provides in this area but in this age of budget cuts (and [...]
Read Moremedical records, policy issues, pt/doc co-care, reforming hc, shared decision making, Why PM
Alert: Lawrence Weed, father of the Problem Oriented Medical Record, looks ahead
The excellent ICMCC daily newsletter just alerted me to this item from Permanente Journal: Interview with Lawrence Weed, MD – The Father of the Problem-Oriented Medical Record Looks Ahead. I hope to absorb it in the next day or two, and I invite people who know this history to do the same. It’s deep, and it’s connected [...]
Read Moreethics, general, others' e-patient stories, shared decision making
Kari Ulrich: Experienced from both sides of the bed
This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients’ blog. The November 2011 issue of Reader’s Digest reads in big, bold print, “50 Secrets Nurses Won’t Tell You.” Articles like this create fear and mistrust in the patient community.
Read Morept/doc co-care, pts as teachers, shared decision making, Why PM
Action in the face of uncertainty
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction. Sometimes I hear of patients who believe their physicians dissed a proposed or experimental [...]
Read Morepolicy issues, positive patterns, research issues, shared decision making
Agency seeks *patients*(!) for Patient Centered Outcomes project. Too few are stepping up! (You??)
Corrections 8:45 pm ET Monday 10/24: This post’s title originally said HHS was seeking patients. Actually it’s PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn’t part of HHS. The title also said “None are stepping up,” which disrespected those who had. “Too few” is better. As [...]
Read Moregeneral, practice variation, shared decision making, Why PM
Your Medical Mind: New book on *your* medical decision making process
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new book was published this week that adds substantially to my thinking: Your Medical [...]
Read Moree-patient stories, general, shared decision making
Jonena Relth: Participatory medicine: my first-hand account
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and decided that he would prefer to perform a [...]
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