Society for Participatory Medicine
e-patients.net blog
shared decision making
general, practice variation, shared decision making, Why PM
Your Medical Mind: New book on *your* medical decision making process
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new book was published this week that adds substantially to my thinking: Your Medical [...]
Read Moree-patient stories, general, shared decision making
Jonena Relth: Participatory medicine: my first-hand account
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and decided that he would prefer to perform a [...]
Read Moregeneral, policy issues, practice variation, reforming hc, shared decision making, Why PM
“Who Can Fix Health Care?” Al Mulley’s talk at TEDx Dartmouth
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In this talk from March’s TEDx Dartmouth, Al Mulley, MD, MPP doesn’t use the word e-patient, but [...]
Read Moree-pts resources, pt/doc co-care, shared decision making, Why PM
“Don’t you wanna know??” A proposed PSA about asking questions
Now up on YouTube: You, the patient, are a vital component of medical decision making. Believe it or not, it’s worth your effort to find out about your treatment options! This informal FlipCam vignette models a physician encouraging the patient to ask: “Don’t you want to know??” Cast: Pat Mastors as the empowering physician, and [...]
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Shared Decision Making in the News
Media coverage of the challenges we face in making good treatment decisions often focuses on and sensationalizes medical errors, catastrophes and risks. So it was great to see this impressive TV news clip circulated by Gary Schwitzer of HealthNewsReview.org in his blog last week. Reporter Jeff Baillon of Minnesota’s FOX 9 news does a great [...]
Read Morefound on the net, practice variation, reforming hc
NYTimes: Smaller hospitals often perform double CTs unnecessarily
Engaged patients and families, alert: the NY Times reports (here) on a form of unwarranted practice variation that has been exposing elders to excess radiation. Many smaller hospitals have been needlessly exposing their Medicare patients to double CT scans on the same day – one with a contrast dye, one without. Some do it on [...]
Read Moregeneral, shared decision making, understanding statistics, Why PM
Ellen Hoenig Carlson: Patients Beware – 1 Out of 3 Subject to Hospital Error
This guest post by SPM member Ellen Hoenig Carlson was inspired by a study on the prevalence of medical errors, published in the April issue of Health Affairs. Medical errors are one of the nation’s leading causes of death and injury. The famed 1999 Institute of Medicine study, “To Err Is Human,” estimated that avoidable [...]
Read Morepolicy issues, positive patterns, practice variation, pt/doc co-care, shared decision making
BMJ posts expert roundtable audio on Salzburg Statement and Shared Decision Making
The BMJ (British Medical Journal) has posted a three-part downloadable podcast about the Salzburg Statement. Part 1: History and current status of shared decision making. [26:04] Part 2: Vision of the future, and barriers to getting there. [23:31] Part 3: Informed doctors, informed patients. [35:48m] The participants were: Fiona Godlee, editor in chief, BMJ Angela Coulter, [...]
Read Moregeneral, news & gossip, policy issues, reforming hc, shared decision making
Accountable Care Organizations and Patient-Centeredness
As you may know, the proposed Accountable Care Organization regulations were released yesterday. I’ve posted links to the various documents and some early news reports on my blog: Accountable care organization proposed regulations released for public comment. I’ll be participating in the ACO Watch roundtable discussion on the ACO regulations this afternoon – feel free [...]
Read Moregeneral, pt/doc co-care, reforming hc, shared decision making, trends & principles
The Salzburg Statement on Shared Decision Making
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared decision making, which we’ve been posting about recently (series here; initial post here.) Developed [...]
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