Society for Participatory Medicine
e-patients.net blog
social media
found on the net, social media
Cleveland Clinic’s John Sharp with a review of Social Media in Healthcare
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned. http://www.ihealthbeat.org/perspectives/2012/a-look-at-social-media-in-health-care-two-years-later.aspx
Read Morefound on the net, net-friendly docs, positive patterns, shared decision making, social media
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence that more physicians are recognizing the value of these patient-empowerment tools, contributing to a trend toward patient-centered, [...]
Read Morefound on the net, social media
SPM Tweetchat last night: Patients at conferences
From SPM communication team leader Ileana Balcu: Lisa Fields @PracticalWisdom hosted an wonderful chat last night on the topic of patient presence at conferences. Lisa was a great host and we had a record number of paticipants. Please skim through the transcript on Symplur.com Well worth the read! Thank you Lisa, Marcela and all participants that [...]
Read Moree-patient stories, medical records, net-friendly docs, social media
Regina Holliday / Ted Eytan interview: StoryCorps audio, now in the Library of Congress
One of the best-known sad stories in the e-patient movement is that of SPM member Regina Holliday, her husband Fred, and their two children. Fred died three years ago of kidney cancer in a series of failures of American healthcare, leaving a story that Regina now tells in public speaking, blogging, and – most especially [...]
Read Moree-patient stories, patient networks, pts as teachers, social media
Helen Palmquist: Supporting my cyber-sisters with words of hope
Guest blogger Helen Palmquist is a member of the Ovarian Cancer National Alliance support community, hosted by Inspire. She lives in suburban Chicago. I was diagnosed with ovarian cancer at age 41, in the pre-Web days of 1987. From my hospital bed after my first surgery, I phoned two people whom I had heard were [...]
Read Morehc's problem list, reforming hc, social media
What’s your health care dream?
#whatifhc in #TheWalkingGallery Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – [...]
Read Moreend of life, found on the net, general, JoPM, others' e-patient stories, patient networks, social media
The unexpected power of storytelling
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online group, Patricia Flowers is surprised to learn how it moved and inspired her fellow members. This article [...]
Read Moreethics, found on the net, general, JoPM, net-friendly docs, social media
Social media, patients, and physicians: a sticky wicket
Social media is well established in our society and it shows much promise as a tool of patient-physician communication. But despite some cases of good and enriching rapport between patients and physicians in social media, the medical world, on the whole, is still cautiously trying to make sense of social media and how to use [...]
Read Moree-pts resources, general, others' e-patient stories, positive patterns, social media
Wendy Station: A community lifts up a priest in need
SPM member John Novack, of the Inspire.com patient communities, submitted this guest post by Wendy Station about another online community — another great example of patients engaging in their care, supplementing the value they get from their medical professionals by using online connections. “I feel cornered, at the end of my rope, trapped!” exclaimed Father [...]
Read Morefound on the net, key people, social media
What happens when you ask Atul Gawande to join a Twitter discussion of his work?
Awesome short post by Twitter buddy AnneMarie Cunningham (Twitter @AMCunningham), a GP in Cardiff, UK. The post starts like this: “On Sunday afternoon I spotted Atul Gawande tweeting whilst watching the Wimbledon final… I thought I would let him know that in a few hours time we would be discussing his paper in the Twitter journal [...]
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