social media

 

e-patient stories, end of life, ethics, key people, others' e-patient stories, patient networks, pts as teachers, social media

e-Patient Lisa Adams

In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused by two articles that criticized her efforts. A hashtag was […]

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ethics, social media

Husband-wife pieces in NY Times and The Guardian break ethics and lack a clue (re @AdamsLisa)

Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One of the best social media patient figures I met, long ago, was @AdamsLisa – Lisa Bonchek Adams of LisaBAdams.com. There’s a firestorm […]

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news & gossip, social media, trends & principles

Response to “We need to talk about TED” from an evangelist’s perspective

The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog.  In our Society for Participatory Medicine, part of our work is to change how people think about relationships in medicine. That involves […]

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e-patient stories, key people, others' e-patient stories, patient networks, pts as teachers, social media

Regina Holliday: The Walking Gallery film

Regina Holliday and her Walking Gallery project are featured in a new short film. Here it is: The Walking Gallery of Healthcare from Eidolon Films on Vimeo. How a movement begins…

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key people, net-friendly docs, social media, trends & principles

How do we know that social media is important to health care?

A cross-post from susannahfox.com… On Friday, I spoke at the Albert Einstein College of Medicine, along with Kevin Pho, MD. During a planning call, the symposium organizers had shared results from a faculty survey: Fully two-thirds do not use social tools on a regular basis. Asking them, therefore, to spend a half-day learning about social media […]

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e-patient stories, e-pts resources, JoPM, patient networks, positive patterns, social media

Join #s4pm tweetchat Saturday 10/12 at 3pm ET

We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care social media, and patient-centered design. Come meet the friends you made at MedX and share […]

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e-pts resources, patient networks, policy issues, positive patterns, pt/doc co-care, social media, trends & principles, Why PM

New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern

SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu, @Yogileana; and Carla Berg, @Confluently. We’ll be hosting an #s4pm tweetchat on the 2nd and 4th Saturdays of the month, with our 2nd […]

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e-patient stories, found on the net, social media

Lisanne St Onge Klute: The Power of Social Healthcare; Becoming an Empowered Patient and Surviving a Cavernous Malformation of the Brainstem

This guest post was written by Lisanne St. Onge Klute and originally appeared on The Story of iPatchman, a blog for e-patients with brain tumors. It is a great example of the power of social media for helping e-patients find the best treatment. Thanks to Akiva Zablocki, the blog’s editor and founder, for bringing Lisanne’s […]

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e-patient stories, e-pts resources, key people, patient networks, social media

How Things Change

SPM member Jody Schoger’s post “Cancer: Part Two” at her blog Women with Cancer landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She’s a co-founder of #bcsm (breast cancer social media), one of the highest rated Tweetchats with almost 6,000 tweets per month. In less than two years the group has gained […]

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e-pts resources, PM Tech, social media

Tweetchat on Wed March 20 about Gimme my DAM Data, Blue Button Plus and Commonwell

Please join us for a tweetchat this evening – Wednesday March 20 at 8 PM ET/ 5PM PT. We’ll talk about: What’s new with Gimme my DAM Data #gmdd ? - Wall Street Journal picked the story at SXSW conference http://epatientdave.com/2013/03/18/wall-street-journal-picks-up-gimme-my-dam-data-song/#.UUmxrBysh8E Blue Button Plus – why should patients fight for it? #bluebuttonplus #abbi http://bluebuttonplus.org/history.html CommonWell alliance […]

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