Society for Participatory Medicine
e-patients.net blog
social media
e-patient stories, e-pts resources, key people, patient networks, social media
How Things Change
SPM member Jody Schoger’s post “Cancer: Part Two” at her blog Women with Cancer landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She’s a co-founder of #bcsm (breast cancer social media), one of the highest rated Tweetchats with almost 6,000 tweets per month. In less than two years the group has gained [...]
Read Moree-pts resources, PM Tech, social media
Tweetchat on Wed March 20 about Gimme my DAM Data, Blue Button Plus and Commonwell
Please join us for a tweetchat this evening – Wednesday March 20 at 8 PM ET/ 5PM PT. We’ll talk about: What’s new with Gimme my DAM Data #gmdd ? - Wall Street Journal picked the story at SXSW conference http://epatientdave.com/2013/03/18/wall-street-journal-picks-up-gimme-my-dam-data-song/#.UUmxrBysh8E Blue Button Plus – why should patients fight for it? #bluebuttonplus #abbi http://bluebuttonplus.org/history.html CommonWell alliance [...]
Read Morefound on the net, key people, social media
HIMSS blog featured e-Patient Dave
The HIMSS blog features e-Patient Dave, the 5 Es of e-Patients and how social media can help. http://blog.himss.org/2013/01/25/part-1-value-of-social-media-in-healthcare-is-already-outlined-just-not-realized/ For whatever reason – whether it’s budget, time, buy-in or understanding – healthcare hasn’t fully embraced social media. But luckily the ePatient movement has already—perhaps unknowingly—done the grunt work and outlined the tenets of realizing social media’s [...]
Read Morepatient networks, social media
Sincerity in the storm (welcome to our world)
Hurricane Sandy “slapped the snark out of Twitter” for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition: – Twitter turns serious during a crisis – Certain users and hashtags can [...]
Read Morefound on the net, patient networks, social media
Social Media Breakfast – Healthcare in the Social Media Era
If you are in Boston this Friday, you can attend the Social Media Breakfast. The SPM member Alicia Staley will present the progress of the #bcsm (breast cancer social media) community. Other speakers will be there as well and it only costs $8.00. For more details and registration, use the link http://events.r20.constantcontact.com/register/event?llr=66td54gab&oeidk=a07e64g7v926c2fc283 Friday July 20, 2012 from [...]
Read Morefound on the net, positive patterns, pts as teachers, social media
Mayo Clinic Scholarship Contest for e-Patients
This post originally appeared at http://socialmedia.mayoclinic.org/2012/06/20/2012-patient-caregiver-scholarship-contest-for-social-media-summit/. The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media Summit and related events Oct. 15-19, 2012, in Rochester, Minn. through its second annual scholarship contest for patients and caregivers. “Making sure voices of patients and caregivers are included in [...]
Read Moree-pts resources, found on the net, patient networks, social media
2012 Patient, Caregiver Scholarship Contest for Social Media Summit
Thanks to David Harlow for the heads-up to a contest for scholarships for patients to attend Mayo Clinic’s Social Media Summit: Excerpt: The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media Summit and related events Oct. 15-19, 2012, in Rochester, Minn. through its second annual [...]
Read Morefound on the net, social media
Cleveland Clinic’s John Sharp with a review of Social Media in Healthcare
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned. http://www.ihealthbeat.org/perspectives/2012/a-look-at-social-media-in-health-care-two-years-later.aspx
Read Morefound on the net, net-friendly docs, positive patterns, shared decision making, social media
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence that more physicians are recognizing the value of these patient-empowerment tools, contributing to a trend toward patient-centered, [...]
Read Morefound on the net, social media
SPM Tweetchat last night: Patients at conferences
From SPM communication team leader Ileana Balcu: Lisa Fields @PracticalWisdom hosted an wonderful chat last night on the topic of patient presence at conferences. Lisa was a great host and we had a record number of paticipants. Please skim through the transcript on Symplur.com Well worth the read! Thank you Lisa, Marcela and all participants that [...]
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