Society for Participatory Medicine
e-patients.net blog
trends & principles
medical records, policy issues, trends & principles
What Do Aggregators Know About Me and Why It’s Important
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with them. The information moves and collects in secondary locations such as insurers (claims), public health agencies [...]
Read Morefound on the net, medical records, policy issues, trends & principles
KQED blog on Hugo Campos and his quest to access his data
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he wrote, “Just had the biggest arrhythmia ever. I’m trying to recover [...]
Read Moree-pts resources, found on the net, PM Tech, trends & principles
Applying Tom Gilbert’s performance improvement framework to the “compliance” issue
I participated today in a webinar hosted by eHI. My slides arrived (ahem) too late to be broadcast, so I posted them online, with comments, on my site. In case you don’t click through to the whole thing, here’s a quick excerpt: Long ago in another career I learned about Thomas Gilbert (1927-1995), a real [...]
Read Moree-pts resources, found on the net, positive patterns, trends & principles, Why PM
Gangadhar Sulkunte: TEDMED 2012 Highlights
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the Patient.” as on of its next “Great Challenges.” I was able to secure a scholarship [...]
Read Morepositive patterns, trends & principles, Why PM
TEDMED and RWJF accept “The Role of the Patient” as a Great Challenge
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, “We must vote.” You did. We’re in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and click “The 20 Great Challenges” at bottom left. (The site doesn’t offer direct URLs to [...]
Read Moree-pts resources, PM Tech, reforming hc, trends & principles
Self-Service Healthcare?
In a recent commentary on the American Public Media program Marketplace Money, Francis Frei discussed the failure of self check-out at supermarkets. Her insightful commentary is clearly based on both personal experience as well as her professional knowledge of operations management and customer behavior (she is a professor at Harvard Business School). The piece is [...]
Read Moregeneral, news & gossip, policy issues, reforming hc, trends & principles
The Government’s Assault on Women’s Health
I’m a little confused… I’m not sure where the U.S. Constitution guaranteed the government’s right to interfere with the doctor/patient relationship. Nowhere in this historic document could I find anything about the government’s right to dictate how women’s health and reproductive health (but not men’s) are areas appropriate to government interference. (You won’t find it [...]
Read Moree-patient stories, found on the net, policy issues, trends & principles
Hugo Campos: compelling 3 minute video (Medicine X promo video)
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his call to action, for patients to have access to their [...]
Read Morefound on the net, news & gossip, positive patterns, trends & principles
“Physicians, Patients and the Internet”: good article in Physicians Practice magazine
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s Advocate is prominently featured, along with data from the Pew Internet and American Life project and [...]
Read Moreresearch issues, trends & principles
What’s the future for self-tracking?
Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users age 18+ track their own health data online. There [...]
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