trends & principles

 

policy issues, reforming hc, trends & principles

WHO in Geneva – SPM in the house!

SPM member Casey Quinlan (who’s posting this) was invited to attend an event at the WHO in Geneva. This post originally appeared on her Mighty Casey Media blog, and is reposted here in its entirety by SPM request. Guess who got invited to WHO? No, really. The World Health Organization (WHO) invited yours truly to its First Global […]

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news & gossip, positive patterns, pt/doc co-care, pts as teachers, trends & principles

Mayo chief residents name SPM patient as Visiting Professor in Internal Medicine

Wikipedia says “Participatory medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as  full partners.” That movement gets a big boost in credibility today: the Chief Residents at the Mayo Clinic have invited SPM co-chair “e-Patient Dave” to be […]

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trends & principles

To Be, or Not to Be, a B Corp

Preface (later) by e-Patient Dave – Casey and I were discussing that one of the obstacles impeding changing in medicine is that by law, corporate officers have to serve their shareholders first, i.e. make money before they get into any do-gooder stuff. The subject of “B Corps” came up – a pretty new development in […]

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general, positive patterns, reforming hc, trends & principles

New evidence: Engaged (activated) patients do better and cost *less.*

Update: instant egg on the face! This article is actually 18 months old, part of the big Health Affairs issue “New Era of Patient Engagement,” which Ileana Balcu blogged about at the time. Well, this post has already been retweeted ten times in 90 minutes, so I guess I’m not the only one who didn’t […]

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JoPM, positive patterns, trends & principles

An important moment in our movement (JoPM article): The evolving language of patient engagement

An article of importance to our movement appeared in June, in our Journal of Participatory Medicine. It’s an analysis of twelve years of literature about patient engagement, documenting what words people used, what context they appeared in, and (perhaps most importantly) how the language has shifted – a sign of cultural evolution. Finally, the article proposes a […]

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e-pts resources, medical records, PM Tech, trends & principles

Let’s crowdsource what a “good” medical record tool for patients is (and list some products)

Ah, social media. On Facebook a couple of hours ago, Swedish SPM member Sara Riggare posted: Responses were quick and robust: “Web MD has an app that you can download that I use. I find it pretty useful.” - Mark Burek “That’s a sticky question. I tried Caresync ([SPM member Amy McFall Gleason’s app) and thought it useful. […]

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e-pts resources, key people, patient networks, trends & principles

Communicating the experience of illness in the digital age

At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Meredith Gould and me about the power and pitfalls of people sharing their health experiences online. We are “flipping” the panel by sharing resources and participating in online discussions throughout the summer, hoping to include […]

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found on the net, positive patterns, research issues, trends & principles

From BMJ: The BMJ’s own patient journey – Seeks to promote patient partnership by walking the talk

An interesting editorial in the BMJ (British Medical Journal) describes BMJ’s path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world. http://www.bmj.com/content/348/bmj.g3726 Our new strategy aligns with our “too much medicine” and “open data” campaigns and our support […]

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medical records, news & gossip, policy issues, positive patterns, trends & principles

Wall Street Journal on patient access: “Health-Care Providers Want Patients to Read Medical Records, Spot Errors”

Regular readers know that this blog has long advocated for patient access to, and engagement with, the medical record. In the past 2-3 years we’ve especially advocated for OpenNotes, in which patients can see their primary’s actual visit notes.  At my hospital, Beth Israel Deaconess, not only can patients see their primary’s notes, in 2014 it’s […]

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found on the net, positive patterns, pt/doc co-care, reforming hc, trends & principles

JAMA: Reducing the Trauma of Hospitalization

Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient’s hospital stay – really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress is also toxic and can emanate from uncertainty, unforeseen events, and anxiety. […]

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