Society for Participatory Medicine
e-patients.net blog
trends & principles
general, positive patterns, research issues, trends & principles
Opening the Door to Closeted Science
NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of us. Only in the past six months did [...]
Read Moregeneral, medical records, trends & principles
Nancy Finn: Personalized medicine and participatory medicine intersect
There’s no stopping an idea whose time has come. SPM member Nancy Finn (@NFinn8421), in the process of her own odyssey as a health care thinker, had an epiphany that strongly echoes the principles of the growing P4 Medicine movement (“predictive, personalized, preventive, and participatory”). The days of “one size fits all” medicine appear to [...]
Read Moremedical records, positive patterns, research issues, trends & principles
EHR data spurs real-time evidence-based medicine (NEJM / Health IT Exchange)
Wow. Todd Park, Chief Technical Officer at HHS, ought to be jumping out of his skin with joy at this one. This time, House, M.D. fans, it was lupus. The article “Evidence-Based Medicine in the EMR Era” published in the Nov. 10 issue of the New England Journal of Medicine might have read like a House television script, but it was a real-life glimpse of [...]
Read Moree-pts resources, patient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
Libro Blanco de los e-Pacientes en Español
To read this post in English, click here. Hacía tiempo que teníamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la segunda lengua más hablada en el mundo, [...]
Read Moree-pts resources, patient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
Announcing: the e-Patient White Paper, in Spanish
It’ s been a long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish, click here. From the editors of the Spanish edition, Elia Gabarrón and Luis Fernández [...]
Read Moree-pts resources, found on the net, trends & principles
Nancy Finn: Smartphone Health Care Apps Storm the Market
Guest blogger Nancy Finn reports on the popularity of health apps. She is the author of e-Patients Live Longer. The Pew Internet & American Life Project conducted a national telephone survey of 2,277 adults in May 2011 and found that 83% own some kind of cell phone. One-third of these cell phone users (35%) own [...]
Read Moregeneral, key people, policy issues, pt/doc co-care, reforming hc, trends & principles
Lab Results for All! Of Data Liberation, Participatory Medicine, and Government 2.0
On September 14, HHS released for comment draft lab results regulations that will, if finalized, effectively bathe the Achilles’ heel of health data in the River Styx of ¡data liberación! Lab results will be made available to patients, just like all other health data. (See the HHS presser and YouTube video from the consumer health [...]
Read Moregeneral, trends & principles
Peer-to-peer Healthcare at Medicine 2.0
I was honored to give the closing keynote at the Medicine 2.0’11 Congress at Stanford. In preparation for it, I gathered all of the Pew Internet Project’s recent research on social networks, smartphones, and health communications. Then I added stories from the front lines, which turned out to be mostly about moms, the power users [...]
Read Moregeneral, net-friendly docs, trends & principles
Nancy Finn: E-Visits foster continuum of care and communication, but there is a price
Nancy Finn submitted this guest post about the challenges facing doctors and patients who want to have clinical conversations online. The quest for the right communication formula and balance that will satisfy doctors and e-patients who want to experience continuous care can be partially resolved with the spread of virtual clinical electronic messaging, or e-visits. [...]
Read Moree-pts resources, trends & principles, Why PM
Health Literacy Missouri: Clarity is Power.
I’m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It’s like we’ve been ships in the night – not crossing in the night, but sailing in parallel. And now we meet. They’re a small non-profit in St. Louis, just 18 months old, and [...]
Read More
