Why I joined


reforming hc, Why I joined

How can we achieve shared work, connection, and communication?

Peter Elias MD is a member at large on SPM’s board of directors. He’s a primary care physician in Maine who, when I first met him at a speaking event, said he’s always practiced this way but didn’t know it had a name – participatory medicine. He’s active both in our member community and in our executive committee’s biweekly […]

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general, pts as teachers, Why I joined, Why PM

on the complexity of problems and ePatients as innovators

One of our Society’s best kept secrets is the composition of our membership. And lately, some of my best collaborations are coming out of conversations with fellow members. Last week, as I frenetically packed for a trip, I was chatting on the phone with our own e-Patient Dave. We were talking about the Movement, some […]

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general, key people, net-friendly docs, positive patterns, pt/doc co-care, Why I joined

Thanks from the Philippines

In this guest blog post, member Beatrice Tiangco describes some of the pain and suffering in the Philippines after the typhoon and expresses her gratitude for the SPM, local community and overall support. Beatrice Tiangco is a practicing Medical Oncologist from the Philippines. She is also a Clinical Epidemiologist with a special interest in Personalized […]

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e-patient stories, e-pts resources, found on the net, general, hc's problem list, Why I joined, Why PM

New SPM Members Bring Magic Levers and Untanglers for Healthcare

This listserv exchange between new Society for Participatory Medicine members is a nice example of how “newbie” e-patients often come to us with decades of experience and well-honed (and well-blogged) philosophies of what healthcare should be and can be.   From: Danny van Leeuwen Subject: Re: Greetings from a new member As a newbie to […]

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positive patterns, pt/doc co-care, Why I joined

“People without medical background can understand if you tell it in a language they understand”

In the latest post in our Why I Joined SPM series, guest blogger Dr. Nabin Sapkota shares his story of discovering that patients like to be taught what’s going on, and how this replaced what he’d lost when he gave up doing teaching rounds. Every “why I joined” post is inspiring to me, but this one brought me […]

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e-patient stories, patient networks, Why I joined

Ileana Balcu: The marriage of HIT with quality, transparency and cooperation between patients and doctors

In the latest post in our Why I Joined SPM series, guest blogger Ileana Balcu shares her story of pain, searching, and finally healing, once she discovered the e-patient community. Follow her on Twitter at @yogileana. It was 2002 and I was happily pregnant. I thought I’d read all I could about pregnancy. But scary […]

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e-pts resources, general, Why I joined

Kathy Kastner: Why I joined is not why I’ve stayed

Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its practical day-to-day application(s). I heard e-Patient Dave and Danny Sands speak and I was energized by the […]

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e-patient stories, Why I joined, Why PM

Meredith Gould: Why Go Public Now About My Fibro?

Guest blogger Meredith Gould is on Twitter as @meredithgould and @HealthFaith. Over a year ago, I agreed to write about my personal experience with fibromyalgia for a new health and wellness site. The piece wasn’t going to be published for a while and although I was comfy with what I’d written, I was in no […]

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e-patient stories, Why I joined, Why PM

Jackie Fox: Why I Joined the Society for Participatory Medicine

This is an unusual contribution in our series Why I Joined. As we’ve observed (August 2008, February 2009, February 2011) that language can be important in social movements, because as words change their meaning, messages can get crossed, and what a speaker meant may not be what others hear. In the story presented here, the language of […]

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key people, net-friendly docs, positive patterns, pt/doc co-care, reforming hc, Why I joined, Why PM

Why Victor Montori joined the Society for Participatory Medicine

Next in our “Why I Joined” series is Victor Montori, MD of the Mayo Clinic. My wife and I met him in May; he’s high energy, with boundless optimism. And as you’ll see, he feels very strongly about patients being at the center of healthcare. The civil rights movement has not finished its job.  In […]

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