Society for Participatory Medicine
e-patients.net blog
Why PM
ethics, general, policy issues, positive patterns, pts as teachers, research issues, Why PM
Partnering with patients – about patient centered RESEARCH METHODS
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine, as the professions begin to understand the value [...]
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HIMSS and S4PM collaborative – Advise us!
As you see in Sarah Krug’s letter above, HIMSS and S4PM entered into a collaboration. I sit (with Ileana Balcu) on HIMSS’ eConnecting with Consumers Committee where we advocated for this partnership. Everyone on the Committee could be a member of S4PM, as they live and breathe our mission in their work and advocacy: Catalyzing collaborative partnerships across [...]
Read Moree-patient stories, pt/doc co-care, Why PM
The Case for Being On Top of Your Case
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today – lack of coordination – and makes a compelling case for patients and families to be engaged in every case, to the full extent of their [...]
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Our latest “doctor as e-patient”: SPM member Leana Wen
It’s less common today but people used to think empowered patients were anti-doctor. One part of our response on this blog was to point out the many clinicians who are e-patients themselves, as in Let’s hear it for the d-patient e-patients (with dozens of comments). This guest post by SPM member Leana Wen, MD (Twitter: @DrLeanaWen) is another, about [...]
Read Morepolicy issues, reforming hc, Why PM
Can Patient-Centered Care Reduce Hospital Readmissions?
A recent Press Ganey white paper highlights an association between HCAHPS performance — patient experience scores — and lower rates of readmission. (Performance Insights – The Relationship Between HCAHPS Performance and Readmission Penalties.) With Medicare payment penalties for excess readmissions now in effect, reducing readmissions has become a top priority for hospitals and other stakeholders. The Centers [...]
Read Morept/doc co-care, Why PM
A wide-open brainstorm: let’s list clinicians’ skills, beyond diagnosing
During a conversation with a friend last week I had a hare-brained thought – not rare, as friends know, but this one was thought-provoking. So, patients and providers and everyone else, let’s talk about this: If diagnosis magically became automated – if some super-test could suddenly identify exactly what your condition is – what are [...]
Read Morepositive patterns, reforming hc, Why PM
“My Health Counts: e-Patients” (coming soon from WNED, PBS Buffalo!)
Check this trailer for a new program, to be launched in January, produced by WNED, the PBS affiliate in Buffalo: One of the challenges of starting a movement like this, especially a Society with little budget, is that you have to bootstrap, like any modern business: you take what you have, make something of it, [...]
Read Morenet-friendly docs, reforming hc, shared decision making, trends & principles, Why PM
Nancy Finn: Collaborative Teams that Include Patients Make Care Coordination Possible
Today’s guest blogger, author and SPM Secretary Nancy Finn, originally posted this essay on her personal blog. Care coordination requires that the right information reaches the right people within an optimal time frame, so that a patient’s full information is always at the point of care, and all of the follow-up clinical work, as well [...]
Read Morepolicy issues, reforming hc, trends & principles, Why PM
No-brainer alert: sign this now! O’Reilly letter on “give us our lab data”!
Quick, quick, do this now! Go add your signature to the hundreds who have already signed – this is about getting us access to our lab results, the same as any other health data! How important is this? Here’s a video of SPM member Ann Waldo discussing it with awesome internet guru Tim O’Reilly. Yeah, [...]
Read Moregeneral, positive patterns, Why PM
What makes a doctor-patient partnership flourish?
TEDMED last April was a big time for our Society. Many members were there, especially our artist-in-residence Regina Holliday and videographer Ross Martin, who collected the footage for his now-famous Gimme My DaM Data video. And, as we reported here, The Role of the Patient was selected as one of the Great Challenges for TEDMED 2013. Today [...]
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