Why PM


policy issues, positive patterns, pt/doc co-care, trends & principles, Why PM

Mythbusting, “demanding patient” edition

We’d bet good money that anyone who identifies as an e-patient has been led to believe that their desire to participate actively in their medical care marks them as a “demanding patient.” The perception of demanding patients is that they’re behaving like spoiled divas at a medi-spa, with their demands driving up incidence of unnecessary […]

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general, pts as teachers, Why I joined, Why PM

on the complexity of problems and ePatients as innovators

One of our Society’s best kept secrets is the composition of our membership. And lately, some of my best collaborations are coming out of conversations with fellow members. Last week, as I frenetically packed for a trip, I was chatting on the phone with our own e-Patient Dave. We were talking about the Movement, some […]

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trends & principles, Why PM

A Case for Autonomy & The End of Participatory Medicine

Guest post by Hugo Campos; introductory note from Society for Participatory Medicine president Nick Dawson Every movement evolves. And as a grassroots social justice movement, the Participatory Medicine Movement is also growing, changing and evolving. Something I’ve learned about myself is how uncomfortable I get when I’m on the edge of learning or gaining understanding. For […]

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general, key people, pt/doc co-care, Why PM

Surgeon: “Participatory Medicine encourages partnership between patient and provider”

I now ask all my patients, at the end of our visits, “Did I get it? Did I successfully answer your questions and address your fears?” Dr. Marc Katz is a cardiac surgeon in Richmond Virginia. His op-ed, ‘Participatory Medicine’ encourages partnership between patient and provider, appears in today’s Richmond Times Dispatch. This is an […]

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pt/doc co-care, Why PM

Guest post by Kate Lorig: Words Matter – Let’s Reconsider the Term “e-Patient”

This is a real treat – a guest post by SPM member and participatory pioneer Kate Lorig. Kate was a friend of our founder “Doc Tom” Ferguson, is cited twice in his e-patient white paper (see right sidebar), was the author of an important essay What will it take to embrace participatory medicine? One patient’s view in […]

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e-patient stories, general, Why PM

My Reasons for Thanksgiving: On The Ultimate Loss of Control, Unclear Diagnoses, and Being a Patient

As we know participatory medicine is based upon mutual respect: the clinician respecting the self-knowledge, experience, and wisdom that the patient brings to the collaboration and the patient respecting the knowledge, clinical experience, wisdom, and technical skills that the clinician brings. While most patients won’t be able to experience what it’s like to be a clinician, […]

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e-pts resources, patient networks, policy issues, positive patterns, pt/doc co-care, social media, trends & principles, Why PM

New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern

SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu, @Yogileana; and Carla Berg, @Confluently. We’ll be hosting an #s4pm tweetchat on the 2nd and 4th Saturdays of the month, with our 2nd […]

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e-patient stories, key people, patient networks, positive patterns, pt/doc co-care, Why PM

A parent speaks: “Our child’s disease is OUR disease”

Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the speakers and his words were so compelling that I asked if we could publish them […]

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ethics, general, policy issues, positive patterns, pts as teachers, research issues, Why PM

Partnering with patients – about patient centered RESEARCH METHODS

This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine, as the professions begin to understand the value […]

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Why PM

HIMSS and S4PM collaborative – Advise us!

As you see in Sarah Krug’s letter above, HIMSS and S4PM entered into a collaboration. I sit (with Ileana Balcu) on HIMSS’ eConnecting with Consumers Committee where we advocated for this partnership. Everyone on the Committee could be a member of S4PM, as they live and breathe our mission in their work and advocacy: Catalyzing collaborative partnerships across […]

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