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general, policy issues, pt/doc co-care, trends & principles, Why PM

NPSF’s magnificent Universal Patient Compact

One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the “patient culture” who’ve been doing wonderful, empowering, participatory things for years – and who’ve already been producing valuable results for years. Example: the patient safety movement. On Paul Levy’s blog I [...]

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e-patient stories

ER tweet: “If my husband dies, I’m going to go [eff]ing ballistic”

When Benn Rosales had a heart attack in December, his wife Lani, a very active member of the Twitterati, tweeted throughout the experience. Afterward she thought to compile those tweets as a record of Benn’s e-patient experience: “this hospital is understaffed and we’re being sh*t on because of it. if my husband dies i’m going [...]

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