news & gossip, positive patterns, pts as teachers, reforming hc, trends & principles

“Words that annoy, phrases that grate”: BMJ Patient Panel post & tweetchat

We’ve written often here about the BMJ’s leadership on not just listening to patients but looking at healthcare from the patient’s perspective. Their patient partnership campaign, launched in 2014, includes a patient advisory panel that works actively to consult with the editors on several projects, and ongoing discussions lead occasionally to editorials (such as last month’s on […]

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general, pts as teachers, trends & principles, Why PM

Service Agreements Among Friends and Colleagues

I’m an old hippie [left]. I’ve lived in many houses and on a farm (commune?) with other people. Regularly we heard, “I agreed to what? No I didn’t.” “Since when is that a rule?” I, and then my wife and I, developed skill in clarifying expectations and accountabilities: much effort invested to reach consensus, always […]

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policy issues, positive patterns, research issues

NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?

This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s original data. Many (including Vice President Biden, at Health Datapalooza (video)) have objected strongly, saying […]

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New paper: “The Road to Making Patient-Centered Care Real: Policy Vehicles and Potholes”

SPM Past President Michael Millenson reports that the Urban Institute has published a paper he co-authored with Bob Berenson: The Road to Making Patient-Centered Care Real: Policy Vehicles and Potholes. Michael writes: This is the most comprehensive look ever at the current state of patient-centered care activities that related to the actual clinical encounter. (Not included […]

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found on the net

National Library of Medicine’s ePatient Conference

The e-patient movement is so real that in April the National Library of Medicine had its first ePatient Conference. Yes, that’s what they called it. The event is covered on the inside front cover of the current Medline Plus, including  Society co-chair e-Patient Dave. More info on Dave’s blog.

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e-patient stories, patient networks, pt/doc co-care, pts as teachers, research issues, Why PM

e-Patient Judy Feder’s time runs out

As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her e-patient community (BCMets), she learned of […]

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