Society for Participatory Medicine
e-patients.net blog
blog
medical records, policy issues, reforming hc
Society for Participatory Medicine Files Comments in Support of Proposed CLIA and HIPAA Regs Making Lab Results Available to Patients
As you may recall, in September the federales issued proposed regulations that would make all lab results subject to the basic rule that all patient records should be provided to the patient upon request. See the post on e-patients.net explaining the proposed rule on access to lab results and its background. Following discussion in the comments to the blog [...]
Read Moregeneral, shared decision making
Shared Decision Making in the News
Media coverage of the challenges we face in making good treatment decisions often focuses on and sensationalizes medical errors, catastrophes and risks. So it was great to see this impressive TV news clip circulated by Gary Schwitzer of HealthNewsReview.org in his blog last week. Reporter Jeff Baillon of Minnesota’s FOX 9 news does a great [...]
Read Moregeneral, understanding statistics, Why PM
“You’re 100% alive or 100% dead at any given moment”
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.) Not only are statistics often misinterpreted; even when they’re correctly understood, patients too often interpret a slim chance as no chance. During my illness I heard from a long-ago co-worker. [...]
Read Morefound on the net
National Library of Medicine’s ePatient Conference
The e-patient movement is so real that in April the National Library of Medicine had its first ePatient Conference. Yes, that’s what they called it. The event is covered on the inside front cover of the current Medline Plus, including Society co-chair e-Patient Dave. More info on Dave’s blog.
Read Morefound on the net, medical records, policy issues, positive patterns, reforming hc, trends & principles, Why PM
“The stage is being set for patient-driven disruption”
The e-Caremanagement blog has released my post that we mentioned last week: “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation. It’s part 5 of their excellent series (really, excellent) “Is HITECH working?” As I said then, if you’re into health IT, please catch up on this series – their [...]
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Joe Kvedar’s “cHealth blog” (Connected Health)
We’re long overdue in welcoming Joe Kvedar MD of Partners Healthcare to the blogosphere. From his About page: “The term “connected health” reflects the range of opportunities for technology-enabled care programs and the potential for new strategies in healthcare delivery. “A division of Partners HealthCare, the Center for Connected Health works with Harvard Medical School-affiliated [...]
Read Moree-pts resources, medical records, policy issues, pt/doc co-care, reforming hc, Why PM
Testimony submitted to the Meaningful Use workgroup (and an urgent call for citizen participation)
There’s an important call to action below. If you care about making healthcare more responsive to us, and less responsive to vendors, please read to the end. This is short. Thanks to all of you who submitted comments on this week’s post, offering feedback. Here is the PDF I submitted today, which is being distributed to [...]
Read Moree-patient stories, pt/doc co-care, pts as teachers, Why PM
e-Patients, send video messages to @Berci’s med students
If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious Best Medical Technologies/Informatics Weblog for the second year in a row. @Berci, [...]
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Journal of Participatory Medicine cited on Scientific American blog
Scientific American writer Robin Lloyd (Twitter: @RobinLloyd99) has written a nice, clear, hit-the-nail-on-the-head post on their blog about our Journal of Participatory Medicine.
Read Moree-pts resources
Engage With Grace
Alexandra Drane and her team have a new post on The Health Care Blog about how to put this holiday to work in a new way. Here’s a snippet: Some conversations are easier than others Our original mission – to get more and more people talking about their end of life wishes – hasn’t changed. [...]
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