Society for Participatory Medicine
e-patients.net blog
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e-pts resources, medical records, pt/doc co-care, trends & principles
From Ted Eytan’s blog: “Now Reading: Patients actually want their entire medical record”
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added) Patients do keep their own medical records They want access to everything in their record Privacy worries [...]
Read Morenet-friendly docs, pt/doc co-care, reforming hc, trends & principles, Why PM
“Doctors Are Killing Their Profession, the Healthcare System and Their Patients with Paternalism”
That’s the strongest language yet in our “Why Participatory Medicine” series. And it’s not our words – it’s the words of a board certified neurosurgeon after he heard the Participatory Medicine message at Medicine 2.0 last month. The message echoed his thoughts, and he blogged about it. The “DocPatient” blog, by Dr. Louis Cornacchia of [...]
Read Morepositive patterns, pt/doc co-care, trends & principles, Why PM
Keep an eye out for tomorrow morning’s post
In our “Why Participatory Medicine” series, leading up to the October 21 launch of the Journal of Participatory Medicine, tomorrow’s guest post will be a special treat for me. It contains a breakthrough insight about participatory medicine, and it’s a perfect example of how social media is enabling a wildfire acceleration of the spread of [...]
Read Morechapter reviews, general, positive patterns, pt/doc co-care, trends & principles, Why PM
Participatory Medicine around the world: the Seven Preliminary Conclusions reach India
A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don’t we love it when social media let empowering information spread! It’s exactly what our founder “Doc Tom” predicted with his now-famous 1995 triangle slides: the internet gives us access to information and to each other, which puts [...]
Read Moremedical records, news & gossip, policy issues, reforming hc, trends & principles
Civil rights activist Dorothy Tillman vindicated
a year after arrest for demanding medical records
Important addition 7/16/09 6:40 pm EDT: Be sure to read the HIPAA clarification by commenter “SLC” below, and any subsequent discussion. Dorothy Tillman was requesting her aunt’s records, not her own. This doesn’t change the need (IMO), but it does put a different light on the event. This is a tiny item, which we might [...]
Read Moremedical records, policy issues, trends & principles
EMRs: “Would you take it if it were FREE?”
Blogger John at the “EMR (EHR) and HIPAA” blog posted a musing that caused my business antennas to twitch. A vigorous discussion has started in the comments.
Read Morefound on the net
Next stage in mapping my hospital’s clinical data to PHRs
John Halamka’s blog has a new post today announcing that the National Library Medicine has mapped 93% of his hospital’s “problem list” codes to the SNOMED CT set of clinical data codes that’s widely used. For more info on data formats see our post on data vocabularies.
Read Moremedical records, policy issues, positive patterns, reforming hc, trends & principles
Consumer Partnership for eHealth’s thoughts on Meaningful Use
Precursor posts: The “meaningful use” debate (my thoughts); the Markle Foundation’s work on the subject Thanks to Josh Seidman of the Information Therapy Blog for steering me to the “meaningful use” work that’s been done by the Consumer Partnership for eHealth – another great group I’d never heard of. I’m loving the way Web 2.0 [...]
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Patients first. Doctors second.
An Op-Ed piece at the healthcare blog, written by 2 MDs from Harvard Medical School is pretty clear! For those of us who believe the time has come for participatory medicine, the following quote is particularly interesting: Empowering patients should be the first step in transforming American healthcare. The central question that policy makers should [...]
Read Moree-patient stories, others' e-patient stories
E-patient Interview: Sheryl Stein
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit [...]
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