Society for Participatory Medicine
e-patients.net blog
Boston Globe
e-pts resources, general, news & gossip, policy issues, understanding statistics
e-Patient Training Topic: National Article Reports Relative Risk, Not Raw Data.
Important update: it turns out the writer did get it right, and this was an editing error at the Boston Globe. See my comment August 17. —– As empowered, engaged patients we have a responsibility to evaluate the articles we read. A case in point is this week’s Associated Press article Any Spread Of Breast Cancer [...]
Read Moree-patient stories, general, hc's problem list, medical records, news & gossip, reforming hc, trends & principles
Imagine someone had been managing your data:
next anecdote
Next anecdote about poorly managed medical data: Amen! Just had an incident where my SS# was attached to a different patient’s name in the electronic med record. And the health facility will not tell me where the error occured, or how long someone else’s name was linked to my ss# and my medical record. Discovered [...]
Read Morenews & gossip, pt/doc co-care, trends & principles
Another great reason to be a participatory e-patient
The Boston Globe had a brief interview with me last Monday, and commenter “MikeScanlon” gave a great additional reason to go “e”: Doctors are required to respond to a lot of things – health insurance requirements, liability insurance requirements, rules and regulations of all sort – and finally, the assumptions about their patients that they [...]
Read Moree-pts resources, hc's problem list, medical records, positive patterns, pt/doc co-care, reforming hc, trends & principles
Quick update on moving my data
A few items before I head off to the day job:
Read Moree-patient stories, general, hc's problem list, news & gossip, reforming hc
E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work
It is absolutely amazing to watch the unfolding saga the moment a real patient enters real data into Google Health from his hospital’s medical records. The way the marketing folks tell us, this is a seamless exercise that gets you up and running on personal health records (PHRs) like Google Health instantly. The reality, as [...]
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