brain cancer

 

policy issues, positive patterns, research issues

Prepare for NEJM’s major web event on sharing research data next week

In November we posted about an extraordinary development: NEJM Data Analysis Challenge: can others create value by seeing researchers’ data? The project has come to fruition, and the big event (free) is next Monday-Tuesday. The question for us: What’s the impact on patients? Join us along with @zakkohane for #NEJMDataSummit, a free web event on April 3–4, […]

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general, policy issues, positive patterns, pt/doc co-care, trends & principles

OpenNotes hits TEN MILLION patient level

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the same page,” is no joke: I was one of the subjects in the study, and I’ve […]

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found on the net

Justin’s Journey With Brain Cancer, Chronicled Through Facebook and His Blog

Through Facebook and a Caringbridge blog, twenty-six year old Justin Anderson drew friends, family, and now the public into his experience after being diagnosed with brain cancer. His last post in the article is an update from Mount Everest, his latest feat after cancer. CNN reports here.

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