Breast Cancer

general

Terrorized By The ‘War On Cancer’

Gilles Frydman | November 27, 2009

How a Three-Word Mantra Has Undermined America’s Ability To Make Sound Healthcare Decisions with apologies to Zbigniew Brzezinski In his original article about the war on terror Brzezinski argues that the use of the term War on Terror was intended to generate a culture of fear deliberately because it “obscures reason, intensifies emotions and makes it [...]

e-patient stories, others' e-patient stories, positive patterns, Why PM

From incurable to “We can now call you cured”: Cheryl Greene’s story

e-Patient Dave | November 11, 2009

Here’s another true e-patient story from one of our team. Cheryl Greene is third from the left in the banner at top of this blog. She’s a long-time friend of our founder “Doc Tom” Ferguson, a board member of the Society for Participatory Medicine, executive producer of DrGreene.com (AMA: “the pioneer physician web site on [...]

e-pts resources, general, news & gossip, policy issues, understanding statistics

e-Patient Training Topic: National Article Reports Relative Risk, Not Raw Data.

e-Patient Dave | August 14, 2009

Important update: it turns out the writer did get it right, and this was an editing error at the Boston Globe. See my comment August 17. —– As empowered, engaged patients we have a responsibility to evaluate the articles we read. A case in point is this week’s Associated Press article Any Spread Of Breast Cancer [...]

e-patient stories

Stress: the New Normal for Cancer Patients?

Susannah Fox | May 2, 2009

Deborah Bell is actively involved in cancer advocacy and manages several online communities for cancer patients, their families, and their friends, having been an ACOR listowner for 11 years, and a listmember for 13. She contributed the following essay: I know a 15-year breast cancer survivor who was just diagnosed with a recurrence in the [...]

e-pts resources, trends & principles

Immediate data requested. Please share with breast cancer patients everywhere.

e-Patient Dave | April 30, 2009

Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical professionals. A key sentence in Chapter 5 is “One of the great benefits of patient-initiated research [...]

e-patient stories, hc's problem list

In the Spin III: The Smart Resident

Christine Gray | January 13, 2009

My quest for a second qualified opinion on an abnormal mammogram (microcalcifications) began in October, Breast Cancer Awareness Month. Two days before the end of the year, a sharp surgical resident put an end to the spin. The solution was simple – and not high tech. She got on the phone and spoke to the [...]

e-patient stories, hc's problem list, policy issues, reforming hc, understanding statistics

In the Spin II: You and Your Billing Code

Christine Gray | December 23, 2008

Pass the Valium! Previously on e-Patients.net I recounted the crazy-making quest for a second opinion on an abnormal mammogram (microcalicifications) as per the advice of New York Times health columnist Jane E. Brody, a breast cancer survivor. The gynecologist who ordered the mammogram refused to authorize a second opinion, deferring to the radiologist, who referred [...]