cancer Archives - Page 2 of 7

CHCF’s iHealthBeat podcast on online communities

by e-Patient Dave | Jan 15, 2015

One of the California Health Care Foundation’s regular projects is iHealthBeat, “Reporting technology’s impact on healthcare.” Wednesday they released a five minute podcast on patient communities, which are of course a core activity of engaged...

The diverse nature of patient communities: a prostate cancer patient’s experience

by e-Patient Dave | Sep 16, 2014

On my own site I have a (loose, rough, poorly managed) list of patient communities, gathered ad hoc, as time allows. Today I posted a new contribution of a different sort – the experiences of a prostate cancer patient I met at a speaking event last week in...

Jessie Christine Gruman, 1953-2014

by e-Patient Dave | Jul 15, 2014

I’m saddened (really saddened, as I write this) to report that one of the titans of our movement, Jessie Gruman, died unexpectedly yesterday at home in New York. She had long been sick, but the demise was sudden. In addition to the mountain of work she produced...

Thanks from the Philippines

by Ileana Balcu | Nov 27, 2013

In this guest blog post, member Beatrice Tiangco describes some of the pain and suffering in the Philippines after the typhoon and expresses her gratitude for the SPM, local community and overall support. Beatrice Tiangco is a practicing Medical Oncologist from the...

That is a Real Doctor

by Ileana Balcu | Aug 13, 2013

Guest blogger Peggy Zuckerman tells us a story about a young competent doctor and how transparency and openness is key to giving better care. Peggy Zuckerman never intended to be a patient advocate, not even a patient! But after her diagnosis with a “tiny,...