Cleveland Clinic

medical records, policy issues, positive patterns, research issues, Why PM

ONC’s new Query Health initiative – what’s in it for e-Patients?

e-Patient Dave | September 10, 2011

This is a guest post by SPM member John Sharp, Manager of Research Informatics at the Cleveland Clinic. John gets it about how information empowers healthcare and e-patients. I first met him at Medicine 2.0 in Toronto, 2009, after which he wrote an article for our Journal of Participatory Medicine, which began: “If you have not [...]

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Clinical Trial Data Rights?

Susannah Fox | October 29, 2009

“If you expose human beings to an experimental treatment, the public has a fundamental right to see the results of those experiments.” – Steven Nissen, chairman of the cardiology department at the Cleveland Clinic, quoted in The Sunlight Foundation’s account of Bray Patrick-Lake, an e-patient who has left with only questions after a clinical trial [...]

key people, positive patterns, reforming hc, trends & principles, Why PM

Journal of Participatory Medicine and e-Patients

e-Patient Dave | September 29, 2009

A guest post by John Sharp of the Cleveland Clinic: If you have not read the e-Patient White Paper, you do not understand the future of medicine. Being an e-Patient is beyond being empowered. The subtitle of the paper, “How they can help us heal healthcare,” describes the potential for a revolution of change. Why [...]