medical records, policy issues, positive patterns, pt/doc co-care

Beth Israel Deaconess FAQ for their patients reading OpenNotes

Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when I myself got notified that Beth Israel Deaconess (my […]

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medical records, policy issues, positive patterns, pt/doc co-care

The OpenNotes project goes wide: a million patients and families enabled by information!

Updated Sept. 6: I’d forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record Standard Operating Procedure. For the first time, an unprecedented number of patients and […]

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e-pts resources, research issues

“I’d be 400 years behind” – updated, bigtime

One of the most-quoted eye-opening quotes in “Doc Tom” Ferguson’s e-Patient White Paper is this: As Donald Lindberg, director of the National Library of Medicine, explains, “If I read and memorized two medical journal articles every night, by the end of a year I’d be 400 years behind.” It’s in a section titled “Clinicians can […]

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e-patient stories

How to be Participatory in the Face of Adversity

From the lens of a patient who recently experienced major surgery, I now realize how difficult it is to be participatory when you are in pain and taking large doses of pain medication which dulls the senses and puts you in a place where you are not really thinking about anything but how to get […]

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ethics, general, policy issues, positive patterns, pts as teachers, research issues, Why PM

Partnering with patients – about patient centered RESEARCH METHODS

This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine, as the professions begin to understand the value […]

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research issues, shared decision making

Finally! An initiative from *within* science to reproduce studies. (And not everyone likes it.)

Addition Oct 2014: added link to the Reproducibility Initiative, now at Correction Monday morning: the project is called the Reproducibility Initiative, not Project. Also, note that we got a comment from co-founder Elizabeth Iorns – discuss! I happened to catch friend Ivan Oransky of RetractionWatch on NPR’s Science Friday last week, and caught an item […]

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e-pts resources, news & gossip, trends & principles, Why PM

“Mind the Gap” on patient engagement: uck, “What???” and the scapegoat disconnect

Over on Mind The Gap, Steve Wilkins (Twitter) has a poster about patient engagement that annoyed me:-) right out of the box – because although I pretty much like everything he does, the poster starts with what I find to be the ouchiest mental disconnect in all of medicine today. But it quickly follows with […]

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patient networks, trends & principles

Alpha Geeks in Health Care

Here’s how tech guru Tim O’Reilly describes his work: So often, signs of the future are all around us, but it isn’t until much later that most of the world realizes their significance. Meanwhile, the innovators who are busy inventing that future live in a world of their own. They see and act on premises […]

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Joe Kvedar’s “cHealth blog” (Connected Health)

We’re long overdue in welcoming Joe Kvedar MD of Partners Healthcare to the blogosphere. From his About page: “The term “connected health” reflects the range of opportunities for technology-enabled care programs and the potential for new strategies in healthcare delivery. “A division of Partners HealthCare, the Center for Connected Health works with Harvard Medical School-affiliated […]

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medical records, trends & principles, Why PM

Is Your Healthcare Practice Patient-centered?

Yesterday I was at a monthly TelePresence meeting of the Person Centered Health initiative, a group that started in Canada that’s closely aligned with the Society for Participatory Medicine. At this meeting, some expressed concern that the memes of “person-centered health,” “patient-centered healthcare,” “participatory medicine,” and the like are becoming so overused as to become […]

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