Society for Participatory Medicine
e-patients.net blog
data
found on the net
Ooops: Health Net Loses 1.9 Million Patient Data Records
As a reminder that even the best technology still relies on humans not making dumb mistakes, PCMag.com reports that Health Net’s technology partner, IBM, has seemingly lost a few hard drives. Normally not a big deal. Except that these drives contained patient data records of nearly 1.9 million people. What good is encrypted online transmission [...]
Read Morepolicy issues
HIPAA’s Broken Promise
If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand. “Computer scientists…have demonstrated they can often ‘reidentify’ or ‘deanonymize’ individuals hidden in anonymized data [...]
Read Morepositive patterns, reforming hc
Happy Dogs in a Pile of Sticks (Spreading Improvement in Chronic Disease Care)
The California HealthCare Foundation’s Chronic Disease Care conference was so packed with great panels that I needed help choosing my targets. Here is the first in a series of posts about this event. Spreading Improvement: After the Innovators/Early Adopters
Read Moredemographics
Crowdsourcing a Survey: Reassured? Overwhelmed? Eager? Confused?
The Pew Internet Project is finalizing our fall health survey and we are now in the painful cut phase. Here’s a question I’m hoping to save in a shorter form: At any point in your last search for health information online did you feel any of the following things? At any point, did you feel…?
Read Moretrends & principles
Participatory Medicine, Connected Health
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, [...]
Read Moredemographics
41% of Adults are “Activated Patients”
The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).
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