Society for Participatory Medicine
e-patients.net blog
diabetes
found on the net, JoPM
Two new JoPM articles tell one great participatory medicine success story
The Journal of Participatory Medicine has published a pair of complementary articles, one by a patient advocate and one by a physician, both concerning the story of a woman who worked tirelessly to obtain better health care for her two chronically ill and developmentally disabled sisters, and of the team of participatory clinicians who helped [...]
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ISO: Randomized Trials
I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health care, cancer screening, diabetes care, etc)? My answer: I haven’t done a [...]
Read Moremedical records, positive patterns, pt/doc co-care, trends & principles, Why PM
Smashing myths & assumptions on PHR use (Chilmark)
John Moore of Chilmark Research has another great post, this time on the realities being discovered about PHR use among the urban poor – something most observers considered unlikely. It’s aptly titled Smashing Myths & Assumptions: PHR for Urban Diabetes Care. Give that man an Emmy, or something.
Read Moredemographics, trends & principles
Health 2.0 Europe: A Moveable Feast
Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, [...]
Read Moree-patient stories, pt/doc co-care, pts as teachers, Why PM
e-Patients, send video messages to @Berci’s med students
If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious Best Medical Technologies/Informatics Weblog for the second year in a row. @Berci, [...]
Read Morepositive patterns
Designing for Better Health
This is a banner week for people who think good design contributes to better health. On Monday, DiabetesMine and the California HealthCare Foundation launched the 2010 DiabetesMine Design Challenge. Last year the contest garnered more than 150 entries and awarded a grand prize, a “most creative” prize, and a kids’ category prize. I can’t wait [...]
Read Moredemographics
Access is (almost) everything
Or: Why health geeks should pay attention to internet access geeks. The Pew Research Center’s Hispanic Project and Internet Project just released an in-depth look at internet penetration across racial and ethnic categories in the U.S.: Latinos Online, 2006-2008 From 2006 to 2008, internet use among Latino adults rose by 10 percentage points, from 54% to 64%. [...]
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A Mission 2 End Diabetes
I like to invite all students, teachers, researchers, and entrepreneurs within the ‘earshot’ of this announcement to ‘listen’ carefully. If you have an idea (conceptual or a working model) of a way to help educate, treat, and/or diagnosis diabetes in rural areas with an annual budget of $200,000.00, then I need to talk with you [...]
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“Patients” vs. “Health Care Consumers”? Both, If You Ask AmyT
Amy Tenderich weighs in on the name debate: patient vs. consumer. Almost anything is better than cyberchondriac or medical googler, but e-patient is still my favorite.
Read Moree-patient stories, positive patterns, reforming hc
Patient Voices at CHCF’s Chronic Disease Care Conference
This is the second in a series of posts about the California HealthCare Foundation’s Chronic Disease Care conference (the first was Happy Dogs in a Pile of Sticks). Patient Voices: Managing Chronic Conditions, Living our Lives Ted Eytan snapped a photo that captured this session: Patient Involvement Makes People Smile Here is each person’s story:
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