Diabetes patient leaders: apply by 2/15 for fully funded #MasterLab Leadership Institute

Now THIS is what we call #PatientsIncluded. Twenty patient leaders will be fully funded to attend a new “MasterLab Leadership Institute” in the San Francisco bay area March 31-April 2. Click here (or the graphic above) to learn more and apply by next Wednesday, Feb 15. (They’ve been promoting it for weeks – this post is a late […]

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positive patterns, pts as teachers, reforming hc, research issues, trends & principles

BMJ seeks more patients to be reviewers on articles about their conditions

This is a call for patient participation. We’re especially inviting members of our Society, but it’s open to anyone; feel free to circulate widely, especially to people with the conditions listed below! First, a bit of background, then the request. Regular readers know that the BMJ (formerly the British Medical Journal) is far and away […]

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reforming hc, trends & principles, Why PM

We’re all in this together

A guest post from member Jeffrey Halbstein-Harris – this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout their life. I was leaving a meeting of healthcare policy experts […]

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news & gossip, patient networks, positive patterns, pt/doc co-care, reforming hc, Stanford Medicine X, trends & principles

Big BMJ supplement on Patient Centred Care – with many SPM and MedX voices

This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal) released a big, 21 article “Spotlight” supplement on “patient centred care.” The print edition is due out tomorrow, […]

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medical records, policy issues, positive patterns, pt/doc co-care

OpenNotes in the news: Now 3 million patients – and mental health, too

We’ve often written here about the OpenNotes study (here’s a site search), which documented that when patients can see what their clinicians wrote, the sky doesn’t fall; instead, all kinds of good things happen. This is game-changing, even world-changing for how we conduct medicine: As I’ve often said, “People perform better when they’re informed better,” […]

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positive patterns, trends & principles

Mobile, social, health, care

A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you live with a chronic condition. People know this, but they need help doing it. They tend […]

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PM Tech, positive patterns, pt/doc co-care

“Apprenticeship” for developing patient skills: results from the CollaboRhythm platform

I’ve just attended John Moore MD’s “defense,” as they call it – his presentation of the results from his PhD thesis project at the M.I.T. Media Lab. The project has participatory medicine written all over it: it’s about Developing the role of the patient using an “apprenticeship” approach to the patient/clinician relationship enabled by technology that […]

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net-friendly docs, patient networks, pt/doc co-care

Bowling Alone, Healing Together

One year ago, I read a JAMA commentary that was so good I had to stand up while I was reading it: Are Patients Knights, Knaves, or Pawns? I blogged about it here (touching off a heated discussion) and started an email correspondence with one of the authors, Sachin Jain. The result of that correspondence, […]

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found on the net, JoPM

Two new JoPM articles tell one great participatory medicine success story

The Journal of Participatory Medicine has published a pair of complementary articles, one by a patient advocate and one by a physician, both concerning the story of a woman who worked tirelessly to obtain better health care for her two chronically ill and developmentally disabled sisters, and of the team of participatory clinicians who helped […]

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found on the net

ISO: Randomized Trials

I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health care, cancer screening, diabetes care, etc)? My answer: I haven’t done a […]

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