Society for Participatory Medicine
e-patients.net blog
Diana Forsythe
e-pts resources, patient networks
Patient Communities… at Walgreens?
In May, I spoke at the Chronic Care and Prevention Congress about my most recent report, “Chronic Disease and the Internet.” I talked about the social life of health information and the internet’s power to connect people with information and with each other. Living with chronic disease is associated with being offline – no surprise. [...]
Read Morehc's problem list, medical records, policy issues
“HIPAA is SO 1996″
That’s a direct quote from Paul Tang, of the Palo Alto Medical Foundation, at last week’s meeting of the Health IT Policy committee, of which he is vice chair. Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony: I want innovation at a rate that resembles the rate of [...]
Read Morenews & gossip, understanding statistics
Cyberchondria: Old Wine in New Bottles
Just before Thanksgiving, Microsoft released a study entitled, “Cyberchondria: Studies of the Escalation of Medical Concerns in Web Search.” Ryen White and Eric Horvitz took advantage of a data set that few people have access to (log files from Microsoft’s Live Search engine and MSN Health and Fitness) as well as a survey of 515 [...]
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