Society for Participatory Medicine
e-patients.net blog
digital divide
ethics, found on the net, JoPM
New editorial series in JoPM asks the tough questions
A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled “Participatory Medicine: Must You Be Rich to Participate?” — read on at http://www.jopm.org/?p=2342. And by [...]
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A Health Information Divide
This post is first and foremost a thank-you note. Thank you to everyone who posted a comment, emailed me, or tweeted a suggestion in response to my request for input last July: Crowdsourcing a Survey. Six new topics came directly from those conversations. Thank you to Veenu Aulakh and the California HealthCare Foundation who provided [...]
Read Moremedical records, policy issues
What people living with disability can teach us
The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is, What can be done? The third is, or [...]
Read Morepatient networks, policy issues, positive patterns
The Decision Tree: How Better Health Can Scale
“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care from the internet. But there is a loophole: to [...]
Read MoreWhy PM
Participation Matters
In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life, find a better treatment, or just manage the health of a loved one. What are you doing in [...]
Read Moredemographics, hc's problem list
NIH Summit on Health Disparities
NIH is sponsoring a summit this week, The Science of Eliminating Health Disparities. I heard about it from Mary Brophy Marcus’s article in USA Today and I found this press release online, but I haven’t seen other coverage of the event. If you spot stories about the summit in the news, on blogs, on Twitter, [...]
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Reducing Disparities, Spreading Improvement
Josh Seidman asks a very good question that goes toward our discussion of spreading improvement and the digital divide, “If [targeted] interventions… have been shown to have an enormous impact on the health of these populations, maybe Ix and related initiatives can be applied to a wide variety of challenges that underserved populations face — [...]
Read Moregeneral, hc's problem list, trends & principles
Health 2.0 & The Widening Digital Divide: A Call to Action
Too many years witnessing the same thing. First in the ACOR system. Then in many conferences about eHealth, e-Patients and now Health 2.0 and the Connected Health symposium at Harvard Medical School. Why is an entire segment of the US population almost completely absent from the fast evolving world of Health 2.0 and Participatory Medicine?
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