Society for Participatory Medicine
e-patients.net blog
doctors
e-patient stories, general
Worst Headache of My Life Becomes Lesson About Role of Story in Health
This post and 5 minute video were published on ABC News yesterday and I want to share them with this community as well. Three months ago, at the age of 40, I had a small bleed in my brain. My story is no more special than any of your stories, but I learned something important [...]
Read Moree-patient stories, others' e-patient stories, Why PM
Next “doctor as e-patient”: Howard Luks, MD
We’ve sometimes written about doctors as e-patients. (There are a lot!) Here’s the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him pills. It didn’t make sense to him. So he did what a lot of us do: “Then I headed onto a [...]
Read Moree-patient stories, general, shared decision making
Jonena Relth: Participatory medicine: my first-hand account
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and decided that he would prefer to perform a [...]
Read Morefound on the net, news & gossip, positive patterns
Would Your Doctor Pay for Wasted Time? (CNN.com)
Strictly speaking this isn’t about participatory medicine, but it is about being an empowered consumer of care. There are several dimensions to empowerment, including (but not limited to): Knowing what you want Recognizing whether you’re getting it When you’re not, speaking up about it – courteously, when you can. You know real change is happening [...]
Read Moreethics, general, policy issues, pt/doc co-care, trends & principles
Should More Doctors Participate in Social Media?
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog, suggesting that because doctors aren’t engaging in social media as much as the ordinary person, they’re [...]
Read Moregeneral, understanding statistics, Why PM
“You’re 100% alive or 100% dead at any given moment”
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.) Not only are statistics often misinterpreted; even when they’re correctly understood, patients too often interpret a slim chance as no chance. During my illness I heard from a long-ago co-worker. [...]
Read Moree-patient stories, pt/doc co-care, pts as teachers, Why PM
e-Patients, send video messages to @Berci’s med students
If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious Best Medical Technologies/Informatics Weblog for the second year in a row. @Berci, [...]
Read Morept/doc co-care, Why PM
Patient to doctor: “Why aren’t you harder on me?”
A joint post by e-Patient Dave and Dr. Danny Sands, written from alternating points of view. Danny: An important moment happened a few months ago during office hours – important because it brought a profound shift in Dave’s view of the doctor-patient relationship. And that’s a vital part of participatory medicine.
Read Morenet-friendly docs
Ahem. :-)
I am about to punk my well-known doctor. :–) Me being me, I just had my annual physical. Great visit and all that. Yesterday I got a letter about my lab results. My cholesterol and weight are trending unfavorably, so the good doctor said “you need to take lifestyle changes more seriously to reduce your [...]
Read Moree-patient stories, general, Why PM
A family becomes e-patients, of necessity — and succeeds
This is an inspiring story from several years ago of how a family became e-patients. When things got rough they were empowered and engaged, taking matters into their own hands. As the picture shows, there’s a happy ending, though it was rough along the way. Unlike millions in the US today, Gangadhar Sulkunte and his [...]
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