Society for Participatory Medicine
e-patients.net blog
doctors
net-friendly docs, pt/doc co-care, reforming hc, trends & principles, Why PM
“Doctors Are Killing Their Profession, the Healthcare System and Their Patients with Paternalism”
That’s the strongest language yet in our “Why Participatory Medicine” series. And it’s not our words – it’s the words of a board certified neurosurgeon after he heard the Participatory Medicine message at Medicine 2.0 last month. The message echoed his thoughts, and he blogged about it. The “DocPatient” blog, by Dr. Louis Cornacchia of [...]
Read Moregeneral, policy issues, reforming hc, trends & principles
KQED examines realities of Canadian healthcare
Good piece on NPR this morning about what a KQED correspondent found when she went to Canada and talked to citizens and doctors about their experience of wait times. Click to go to their site and listen. One might ask, what does this have to do with patient empowerment? In my view, one of the [...]
Read Morepositive patterns, pt/doc co-care, trends & principles
The power of listening and being heard
This is a special occasion for me, a guest post by Dr. Louise Glaser. Louise is a pediatrician in the Kaiser Permanente system, where among other things she’s Chief of Leadership and Communication Development in the Sacramento area. I met her a year ago at the annual Conference for Global Transformation (CGT), and again this [...]
Read Morenews & gossip, pt/doc co-care, trends & principles
Another great reason to be a participatory e-patient
The Boston Globe had a brief interview with me last Monday, and commenter “MikeScanlon” gave a great additional reason to go “e”: Doctors are required to respond to a lot of things – health insurance requirements, liability insurance requirements, rules and regulations of all sort – and finally, the assumptions about their patients that they [...]
Read Moremedical records, policy issues, trends & principles
EMRs: “Would you take it if it were FREE?”
Blogger John at the “EMR (EHR) and HIPAA” blog posted a musing that caused my business antennas to twitch. A vigorous discussion has started in the comments.
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Patients first. Doctors second.
An Op-Ed piece at the healthcare blog, written by 2 MDs from Harvard Medical School is pretty clear! For those of us who believe the time has come for participatory medicine, the following quote is particularly interesting: Empowering patients should be the first step in transforming American healthcare. The central question that policy makers should [...]
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You’re Not Crazy After All
Had chemotherapy and weeks after the treatment has ended, still feeling not quite yourself? You’re not alone. The memory and cognitive problems after receiving chemotherapy is known as “chemobrain.” As Ellen Clegg notes in The Cloud Over Chemotherapy, finally the medical profession is taking notice of years of patients’ complaints about this phenomenon and conducting [...]
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The e-patient white paper: Seven Preliminary Conclusions
One year ago today I finished reading e-Patients: How they can help us heal healthcare, the e-patient white paper. It turned my head around because although I’d experienced excellent care in almost all ways, it showed that I as a patient have far more to contribute than I ever would have imagined. The people who [...]
Read Moree-pts resources, general, news & gossip, reforming hc
How Good Are Doctor Rating Sites?
Ruth Given has written a paper entitled, MD Rating Websites: Current State of the Space and Future Prospects (PDF), that was recently published on THCB. It’s a 39-page informal analysis (with an emphasis placed on informal) that takes a fairly good and comprehensive look at the space of doctor rating sites as they exist today. [...]
Read Morepolicy issues, positive patterns, reforming hc, trends & principles
Steal these slides
Click images to view full size originals. Last weekend I stumbled across the “attic” of Tom Ferguson MD, who was the “George Washington of patient empowerment,” as CNN put it this month, citing his work since 1975 to create a world of freedom and power for patients. (That’s you. Thank him.) Those familiar with this blog [...]
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