e-patient

 

precision medicine

Precision Prism

I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in a different state. My mother has diabetes and is depressed. Her care team, besides herself and me, includes medical providers in various health settings, community support agencies, and a full-time caregiver that helps her schedule and get to health-related services. […]

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general

Shared Decision Making in Imaging: How Should Patients and Physicians Discuss the Costs of Care?

The Society for Participatory Medicine is pleased to announce that we will be partnering with the American College of Radiology to present an important topic in healthcare at the next Learning Exchange, which will take place on April 19, 2017, 2-3PM EST.  Join us as we share tips, data and best practices that can empower you […]

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e-patient stories, e-pts resources, key people, medical records, net-friendly docs, positive patterns, precision medicine, pt/doc co-care

Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care

This is a post by SPM Board Member John Hoben – Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on realizing improved health status for populations through unique, individualized approaches.   A funny thing happened on my recent annual […]

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reforming hc

Has your doctor ever talked to you like this Oliver Wendell Holmes quote?

A large part of our work here at the Society for Participatory Medicine is about changing culture of healthcare. In such times, I’d useful to look at our roots. Here’s an attitude tidbit from 1871 that our friends at the BMJ published sixteen years ago.   “FOUL,” you say – “That was 145 years ago!” Well, a […]

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chapter reviews, DocTom10, positive patterns, pt/doc co-care, pts as teachers

#DocTom10, post 2: Please download the White Paper / Libro Blanco

Yesterday, in Honoring the memory of “Doc Tom” Ferguson, ten years after his death, we started a series of posts to mark his untimely demise and look back on his work. As we noted, at his death he was working on a project funded by Robert Wood Johnson’s Pioneer Portfolio to document the reality of, and […]

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e-patient stories, how I became an e-patient, Why I joined

How I became an e-patient: through practice, with coaching (using Lean on the patient side)

The next in our series of “How I became an e-patient” posts. Tyson Ortiz joined a few months ago, having been introduced to us by fellow Lean practitioner Mark Graban. His story weaves together two concurrent threads: learning about a new aspect of Lean, and the arrival in his life of an urgent need for […]

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e-pts resources, general, reforming hc

Curiosity Got These Cats Their Health Data – from GetMyHealthData

Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data – it’s yours! Here’s the whole GIF-rich party. Cats have nine lives to figure out how to get their health data, but you don’t have that kind of time.  Here are […]

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general, reforming hc, trends & principles

Pharma TV ads: Film at 11

SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, “Patient Leaders Want To Kill Pharma TV Ads, Right Now,” at the 2016 ePharma Summit in New York last week (February 29 through March 2). This was the first time a group of […]

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e-patient stories, pts as teachers, research issues

Astounding #RareDisease e-patient story: Jill Viles, via @SusannahFox tweets

Longtime readers of this blog know that for years Susannah Fox was its heart and soul. She was a devoted friend of “Doc Tom” Ferguson, creator of the e-patient concept in the 1990s, and for years at Pew Research she was the dependable guru of Pew’s health research. (For a summary of her work see […]

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general

The e-Patient “e”s reach Japan!

As a social movement, we like to track the progress of the e-patient concept as it moves around the world. The e-patient message has been presented in at least fourteen countries that I know of. A few hours ago on Twitter, SPM member Matthew Holt, of the famous “Health 2.0” conference series, posted this photo […]

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