Society for Participatory Medicine
e-patients.net blog
e-patients
ethics, found on the net, JoPM
JoPM: A Doctor’s Remedy for Long Waits
A new article in the Journal of Participatory Medicine tackles the problem of long wait times at doctors’ offices, a leading cause of patient dissatisfaction. “Waiting Room Remedy: Doctor Pays for Delays (The Doctor’s Perspective)” by Pamela Wible, MD offers a solution that shows respect for patients, at the same time explaining why many of [...]
Read Moree-patient stories, general, shared decision making
Jonena Relth: Participatory medicine: my first-hand account
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and decided that he would prefer to perform a [...]
Read Morefound on the net, JoPM, others' e-patient stories
The Journal has just published a commentary by SPM member Kathy Kastner, “My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient.” The author describes the “aha moment” when she decided to become a participatory patient and shares the attributes that helped her achieve her goal — they include discipline and hard work, as well [...]
Read Moregeneral, key people, medical records, policy issues, reforming hc
Society for Participatory Medicine Comments on ONC Federal Health IT Strategic Plan 2011-2015
We e-patients are an impatient lot, and therefore we may not be big fans of the Five-Year Plan approach to creating change. The Office of the National Coordinator for Health IT released a draft federal health IT strategic plan in late March, via blog post (the plan itself is linked to from the post; a [...]
Read Moreethics, general, policy issues, pt/doc co-care, trends & principles
Should More Doctors Participate in Social Media?
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog, suggesting that because doctors aren’t engaging in social media as much as the ordinary person, they’re [...]
Read Moretrends & principles
E-patients, Cyberchondriacs, and Why We Should Stop Calling Names
New concepts need gimmicks. Proven concepts do not. The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms. Carlos Rizo and I invite you (everyone!) to join our discussion on Wed. Sept. 1 at [...]
Read Moree-patient stories, general, patient networks, pts as teachers, trends & principles
e-Patients Discover Unrecognized Side Effects
Detecting drug complications is too important to leave to doctors or FDA administrators. We have learned the hard way that randomized controlled trials (RCTs) don’t detect all the adverse drug effects that may be important. Far too often, serious side effects brought on by popular drugs can go unrecognized for years. A recent review in [...]
Read Morefound on the net
“Patients” vs. “Health Care Consumers”? Both, If You Ask AmyT
Amy Tenderich weighs in on the name debate: patient vs. consumer. Almost anything is better than cyberchondriac or medical googler, but e-patient is still my favorite.
Read Moree-patient stories, positive patterns, reforming hc
Patient Voices at CHCF’s Chronic Disease Care Conference
This is the second in a series of posts about the California HealthCare Foundation’s Chronic Disease Care conference (the first was Happy Dogs in a Pile of Sticks). Patient Voices: Managing Chronic Conditions, Living our Lives Ted Eytan snapped a photo that captured this session: Patient Involvement Makes People Smile Here is each person’s story:
Read Moree-patient stories, pt/doc co-care, trends & principles
Internet diagnoses: Trust them or toss them?
This guest post is an article written by Lisa Neal Gualtieri, published in her local paper. It’s an example of widening distribution of principles and practices documented in the e-patient white paper. I’m grateful to Lisa for sharing these true stories of patients taking matters into their own hands, sometimes in collaboration with their care [...]
Read More
