e-patients

 

general

The S’mores Circle

This time of the year is often filled with reflection and a retrospective review of our lives with a focus on lifestyle changes we hope to attain in the New Year. It’s a time where regrets can be erased by future aspirations. Many of us set resolutions, which I stopped doing years ago, but as […]

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general

Imagine if You Could Cut Through the Clutter With a Health GPS

Spearheaded by Vice President Joseph Biden, the White House Cancer Moonshot Task Force was created to double the rate of progress in cancer research and treatment, striving to accelerate what could be achieved in ten years in just five. Earlier this week, Vice President Joe Biden delivered the Cancer Moonshot Report to the President and the American public in the Oval Office. The […]

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general

e-Patient alert: “Are sites like WebMD healthful?” Dive in on NYTimes debate

Thanks to @SusanCarr, the highly patient-centered editor of Patient Safety & Quality Healthcare, for this tipoff this morning. I only have time right now to post this & run out the door. Click the image to visit the piece on the Times site, but first, consider my questions below. My initial thoughts – but I haven’t had time to […]

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end of life, Patient Conference Participation, positive patterns

CCCC conference announces inaugural class of palliative care e-patients

Guest post by SPM member Liz Salmi of CCCC, an organizational member and supporter of our Society for Participatory Medicine. Note also (at bottom) that this event provides a model for other organizations to follow: patient participation is enabled by a foundation grant. In our society, talking about serious illness and death and dying is often difficult. Having these […]

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DocTom10

Susannah Fox: Tom’s legacy #DocTom10

Next in our #DocTom10 series, which started here.  This is a blessing – the first post here in two years by Susannah Fox. More about this at the end of the post – for now, let’s get to the good stuff. She originally posted this as a comment on Friday’s post by John Grohol. Thank you, […]

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news & gossip, patient networks, pt/doc co-care

National Doctors’ Day, clinicians, hacking open access, and remembering an e-patient

Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in! And I want to shine a broader spotlight on the wider class called clinicians (Wikipedia): all sorts of medical professionals […]

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e-pts resources, general, reforming hc

Curiosity Got These Cats Their Health Data – from GetMyHealthData

Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data – it’s yours! Here’s the whole GIF-rich party. Cats have nine lives to figure out how to get their health data, but you don’t have that kind of time.  Here are […]

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general, reforming hc, trends & principles

Pharma TV ads: Film at 11

SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, “Patient Leaders Want To Kill Pharma TV Ads, Right Now,” at the 2016 ePharma Summit in New York last week (February 29 through March 2). This was the first time a group of […]

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general

Meet Donna Cryer, new co-chair of SPM

At 10 ET today (Feb 25) Donna will be a guest at the White House Precision Medicine Initiative, with several other members of our Society. Watch it on livestream. See also our post on the PMI event a year ago by then-president Nick Dawson. I’m thrilled to announce that after seven years as founding co-chair […]

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general

Read & share! Washington Post *nails it* about patient-clinician partnership

Today’s Washington Post has a terrific, carefully researched, precise article – on the front page of the Health & Science section – about the reality of a good patient-clinician partnership: Does your doctor listen when you talk? by Suzanne Allard Levingston. (As often happens, the print edition’s headline is different: “Patients make themselves heard,” with the […]

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