Society for Participatory Medicine
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Patient Involvement Makes People Smile
Ted Eytan’s Photo Friday features a crowd of chronic disease care providers listening to patients tell their stories — and smiling as they see the impact of what they do. As I wrote in the comments, I’ll post here soon with more notes, but this photo is a good start toward understanding the impact of [...]
Read Morereforming hc
Help Me Choose: Sessions at the Chronic Disease Care Conference
I will be heading to San Francisco this week to attend the Chronic Disease Care conference sponsored by the California HealthCare Foundation. Registration is closed but I promise to take notes on as many panels as possible. Please help me choose from the smorgasbord of topics and I’ll make you a plate.
Read Moretrends & principles
Participatory Medicine, Connected Health
The Center for Connected Health’s 2008 Symposium was held in Boston on October 27-28, 2008. I gave a talk entitled, “Participatory Medicine: How User-Generated Media are Changing American Attitudes and Actions, Online and Off.” As always, the conversations I had with people after the speech were the best part of the event. Lena Sorenson, RN, [...]
Read Moree-patient stories, hc's problem list
All MRIs Are Not Created Equal
Gina Kolata’s must-read article, “The Scan That Didn’t Scan,” in last week’s Science Times points out vast differences in the quality of MRIs as well as vast differences in the expertise of the radiologists who interpret them. Patients need to understand this, because physicians sure as Hades aren’t going to tell you. Kolata uses sports [...]
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Crowdsourcing the Definition of Participatory Medicine
“Crowdsourcing: the act of taking a job traditionally performed by a designated agent and outsourcing it to an undefined, generally large group of people in the form of an open call.” Jeff Howe Or in other words Participatory Outsourcing. There is clearly a growing interest in Participatory Medicine and with the forthcoming Journal of Participatory [...]
Read Morehc's problem list, key people, net-friendly docs, positive patterns, pt/doc co-care, trends & principles
Two Views on e-Patients, and the Doctors who See Them
We live in a time of rapid tectonic shifts in what it means to be a doctor and what it means to be a patient. I’m not surprised that there are clashes of ideology and practice. Our labyrinthine, barnacle-encrusted healthcare system resists change. So do our social structures that have lasted for millennia.
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Open Internet vs. Closed Doctor-Directed Systems
Our research shows that most people just use a general search engine when they have a health question, but many report feeling overwhelmed by what they find. What’s the trade-off? What other resources are out there for e-patients?
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