Society for Participatory Medicine
e-patients.net blog
EMR
general, hc's problem list, medical records, policy issues, reforming hc, understanding statistics
Fred Trotter: Data, damn data, and statistics
Why does this blog use the word “damn” so often? A search produces a whopping 38 hits, such as: Fools! Damn fools! And Medical Science (Right, Santa??) Atlantic: Lies, Damned Lies, and Medical Science “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation Lies, Damn Lies And Statistics: Collective Statistical [...]
Read Moregeneral, medical records, news & gossip
Bye Bye Google Health
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its Google Health service, after just 3 years being open to the [...]
Read Moregeneral, hc's problem list, medical records, trends & principles
Rest in Peace: Personal Health Records (PHRs)
While doing some research the other day on personal health records (PHRs), I came across this article, describing Revolution Health’s announcement — without much media attention — about dropping its PHR at the beginning of 2010. (Disclosure: I worked for Revolution Health in 2005-2006, and now have a business relationship with the company that acquired [...]
Read Moremedical records, trends & principles, Why PM
Is Your Healthcare Practice Patient-centered?
Yesterday I was at a monthly TelePresence meeting of the Person Centered Health initiative, a group that started in Canada that’s closely aligned with the Society for Participatory Medicine. At this meeting, some expressed concern that the memes of “person-centered health,” “patient-centered healthcare,” “participatory medicine,” and the like are becoming so overused as to become [...]
Read Moree-pts resources, pts as teachers, Why PM
ICMCC: Perhaps the single most valuable e-patient info site
In last weekend’s post about “patients want all their data” I said I wished I’d known about the article (published mid-May) during last summer’s health data debates in Washington. Incredible Dutch e-patient Lodewijk Bos tweaked me, saying he’d posted it the day it was released. That led me to ask him to offer email subscriptions. [...]
Read Moree-patient stories, general, hc's problem list, medical records, news & gossip, reforming hc, trends & principles
Imagine someone had been managing your data:
next anecdote
Next anecdote about poorly managed medical data: Amen! Just had an incident where my SS# was attached to a different patient’s name in the electronic med record. And the health facility will not tell me where the error occured, or how long someone else’s name was linked to my ss# and my medical record. Discovered [...]
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