Society for Participatory Medicine
e-patients.net blog
general, medical records, news & gossip
Bye Bye Google Health
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its Google Health service, after just 3 years being open to the [...]
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Pandas, Lobsters, and Health Care
Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of chronic illness, patient readiness, and technology readiness. That makes sense to me, [...]
Read Moregeneral, net-friendly docs, patient networks, positive patterns, trends & principles, Why PM
Health Data is Useful… if it Informs Conversations
Dr. Roni Zeiger, MD is currently Chief Health Strategist at Google where he has helped create and lead Google Health. He continues to see patients on occasional evenings and weekends at a local urgent care center. Roni earned his MD at Stanford and completed his internal medicine residency at the University of California, San Francisco. [...]
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Health Sites: Some Are More Equal Than Others
Update: Roni Zeiger of Google Health emailed me and gave permission for me to post the following statement, which I think is a helpful addition to the conversation: Health information is obviously an important category of information users are looking for. For this health search feature we decided to offer users one source each from [...]
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The Pew Internet/Health FAQ
A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your questions and answers in the comments: What are you curious [...]
Read Moree-pts resources, trends & principles, understanding statistics, Why PM
Journal of Participatory Medicine Launches at Connected Health
Press release for the October 22nd launch of the Journal of Participatory Medicine: Improving health care: Journal of Participatory Medicine will document methods that work for patient/provider collaboration Launch at Connected Health Symposium features essays by visionaries in health care, Internet, high tech, business, and sociology Patient engagement and patient empowerment are popular topics, with [...]
Read Morenet-friendly docs, pt/doc co-care, reforming hc, trends & principles, Why PM
“Doctors Are Killing Their Profession, the Healthcare System and Their Patients with Paternalism”
That’s the strongest language yet in our “Why Participatory Medicine” series. And it’s not our words – it’s the words of a board certified neurosurgeon after he heard the Participatory Medicine message at Medicine 2.0 last month. The message echoed his thoughts, and he blogged about it. The “DocPatient” blog, by Dr. Louis Cornacchia of [...]
Read Morechapter reviews, general, positive patterns, pt/doc co-care, trends & principles, Why PM
Participatory Medicine around the world: the Seven Preliminary Conclusions reach India
A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don’t we love it when social media let empowering information spread! It’s exactly what our founder “Doc Tom” predicted with his now-famous 1995 triangle slides: the internet gives us access to information and to each other, which puts [...]
Read Moree-patient stories, general, hc's problem list, medical records, news & gossip, reforming hc, trends & principles
Imagine someone had been managing your data:
next anecdote
Next anecdote about poorly managed medical data: Amen! Just had an incident where my SS# was attached to a different patient’s name in the electronic med record. And the health facility will not tell me where the error occured, or how long someone else’s name was linked to my ss# and my medical record. Discovered [...]
Read Moreethics, general, hc's problem list, medical records, news & gossip, policy issues
Dossia, Microsoft HealthVault & Google Health:
Illegal in NJ?
In the last few days the announcement of a proposed NJ state law has made the Internet rounds. “· On or after January 1, 2011, no person or entity is permitted to sell, offer for sale, give, furnish, or otherwise distribute to any person or entity in this State a health information technology product that [...]
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