Society for Participatory Medicine
e-patients.net blog
medical records, policy issues, pt/doc co-care, reforming hc, trends & principles
“Give us our data”:
my talk at the NeHC board meeting
Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative. This is a heady group to be addressing; as this press release says, nine of these people are on the advisory committees that are working directly with David Blumenthal, Obama’s National Coordinator for Health IT, to [...]
Read Moremedical records, policy issues, pt/doc co-care, reforming hc, trends & principles
“Meaningful Use”: a pivotal definition for new-wave medical records systems
I’ve struggled with what to say about this subject for two weeks, because I want to “get it right” but it’s vast. So I’m giving up any hope of being comprehensive, and I’m just going to say what little I know, and what I think, and let any discussion happen from there.
Read Moree-pts resources, hc's problem list, medical records, positive patterns, pt/doc co-care, reforming hc, trends & principles
Quick update on moving my data
A few items before I head off to the day job:
Read Moree-patient stories, general, hc's problem list, news & gossip, reforming hc
E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work
It is absolutely amazing to watch the unfolding saga the moment a real patient enters real data into Google Health from his hospital’s medical records. The way the marketing folks tell us, this is a seamless exercise that gets you up and running on personal health records (PHRs) like Google Health instantly. The reality, as [...]
Read Moree-pts resources, medical records, reforming hc, trends & principles
The I in IT stands for Information
I’ve been thinking a lot about where to take the discussion that’s exploded on my post about moving my data from PatientSite into Google Health. I’m hardly an IT guru, but as I said, I do work with data at my day job. And before we proceed, there’s something I think is a foundation level [...]
Read Moregeneral, news & gossip, positive patterns, trends & principles
Using Aggregate Data to Help Public Health
Public health is different than our personal health. Most people take for granted the role public health agencies play in our lives, but its primary emphasis is tracking disease data across the country in order to prevent a nationwide epidemic or pandemic. Nobody wants another bubonic plague, right? Public health agencies carry out their mission [...]
Read Moretrends & principles
“Good enough” technology
What else out there in the e-patient world is “good enough” (or not)? It might be OK if your diet and exercise plan is just “good enough,” but you want your surgeon to strive for perfection. What are some other examples of “good enough” technology or care?
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